starting remicade

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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/26/2010 10:42 PM (GMT -7)   
Next week will be my first transfusion. Any advice.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/26/2010 11:32 PM (GMT -7)   
Vicky It will take some time the first infusion, probably 3-4 hours. Take something to occupy your time a book or ipod etc. If you recieve pre-mededication such as benydryl or steroids before the infusion you may be sleepy after. I'd recommend the night before you drink plenty of water or liquids other then caffine drinks. The same thing the morning of the infusion, this will help to keep a good blood volume in the veins and makes for an easier "stick". Most people don't have any problems but being tired afterward is probaby the most common one. For me I've been on remicade every 8 weeks for 3 years with out any side effects at all. Best of luck and please be sure to let us know how it goes for you. Rob
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/27/2010 5:14 AM (GMT -7)   
Thanks Rob, I'm scheduled to have it done week one, week two and then every six weeks. I'm just ready to have my energy back and not feel like I'm tied to the house. I've been able to retired but the last few months have been awful.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/27/2010 5:58 AM (GMT -7)   
Just wanted to send good wishes that the Remicade does the trick for you! Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Dunchad
Regular Member


Date Joined Sep 2009
Total Posts : 36
   Posted 5/27/2010 9:21 AM (GMT -7)   
Good luck! been on it since 02. Same day of my first infusion I started to feel better!. Just had my first since my surgery yesterday.
Diagnosed Crohns 02. Just had a resection April 20th 2010. Two sections removed had a fistula into the bladder. Also have a temp ostomy. GI said I could stop the 6mp, but going back on remicade.


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 5/27/2010 10:08 AM (GMT -7)   
I hope it goes well. I was on it from 2002 until just recently with excellent results. I hope it works as well for you as it did for me.

The only thing I'd add is that it can take 3-4 infusions for the results to show up. You may notice some improvement in your symptoms within a few days of your first infusion, but don't worry if you don't. Usually the doctors won't consider even talking about that until you've had the loading doses and at least one or two of your regularly spaced infusions.

Other than that, ditto to what Grandpato2 says.
Matthew McKenna,
Joey's dad.
Crohn's Disease and Guillian-Barre' Syndrome.
Remicade, 6MP and a few of their friends.

"I'm just along for the ride."

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