for those who have had a resection or stricturoplasty.....

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Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 5/27/2010 5:30 AM (GMT -6)   
how long did you have severe D after? And how much intestine did you have remove?
My surgeon said I could have it months and I may not return to having normal BM's (or somewhat of normal)
I know it will vary from person to person but just want to get a general idea if I can. I am incontinent and cannot get these types of surgery's if this is the outcome, so we are looking at a colostomy as an option. If I wasn't incontinent (due to a botched surgery mistake) this procedure to remove/repair my stricture would be very simple but of course, it is not that easy anymore due to this darn incontinence problem. It has turned my life upside down, aside from my Crohn's symptoms. I am so nervous to jump into getting a bag when there is a possibility I "may" not have the severe waterworks forever after a resection or stricturoplasty. Do I take the risk and chance more time out of work, more time on the table, and more guessing and hoping? Or do I just take the a colostomy a permanent thing - is it reversible if they come out with something in the next few years to help my incontinence? In a very difficult place. Ultimately my surgeon will help me decide the best procedure for the best quality of life outcome but I would like to get your opinions :)
*FYI - I already had  a sphincter repair last year which was successful in gaining muscle movement back. For some reason though I am still not able to control, especially if they are loose and gas (so embarrassing!!!!). My dr's are doing tests to see if the Crohn's has drifted into my colon and have also put me on Canasa suppositories to see f it will help my urgency issues. Right now I only have a few seconds to make it to the BR. Its terrible.
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira, Fish Oil, D3, Entocort, B-12 shots, Align, Multi

Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 5/27/2010 5:45 AM (GMT -6)   
Hi LauryLu!  I had my TI resected 20 years ago.  With that and the removal of my gallbladder, I had constant liquid stools due to lack of absorption liquids and bile.  The one thing that helps me is the cholestyramine.  You might want to discuss this option with your doctor if you do not return to normal BMs

Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa, cholestyramine, iron and vitamin supplements. 
Prepare for the future, but live in the present

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 5/27/2010 6:36 AM (GMT -6)   
Had two resections and after the first one, after awhile it got more normal although I noticed slightly looser stools and I never experienced constipation after that first one. After the second one, I'm completely diarrhea since. BUT, I also got diagnosed during my last resection and was put on Pentasa at that time. So, I can't say if it might be different if I wasn't on that medicine in the first place. I hope you make the right decision for you and I hope whatever your choice, that it makes you better.
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/27/2010 8:02 AM (GMT -6)   
Had two resections myself and I only had the explosive diarrhea for a few weeks after the surgery. Now I am back to more c than d.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2005
Total Posts : 1709
   Posted 5/27/2010 9:44 AM (GMT -6)   
I had a resection for a sticture done in January. They removed about 6 inches at my anastomsis site from prior surgery. I've been struggling with consist BMs since then. One day is solid, the next is D all day with major urgency issues. But I'm guessing the surgery flared my CD and this is what is causing my issues.

If the stricture is bad enough you might not have a choice. I put mine off for over a year and then it got so bad I couldn't wait any longer.

Good luck

Regular Member

Date Joined Jul 2009
Total Posts : 103
   Posted 5/27/2010 10:02 AM (GMT -6)   
had 1 resection (3 weeks ago :)) ), waited 4 or 5 days after surgery for stool (it was D), but got normal stools 4 days after
I have 1 regular / normal stool a day for about a week half now :) but I have to say that I never had problems with D

Regular Member

Date Joined Jan 2010
Total Posts : 222
   Posted 5/27/2010 10:51 AM (GMT -6)   
I had a resection in 2006, they took out 12 inches of bowel and have constant diarrhoea, it is only since I have been flaring again now that I don't know whether I'm going to be running or not have anything at all. The doctor did put me on cholestyramine which did work for a while but now has stopped working for me, along with the loperamides. I am also on pentasa , (8 tablets a day) which I have been on since before my op.
if you are getting a lot of diarrhoea it might be an idea for you to speak to your doctor about the cholestyramine, I know it has helped quite a few ppl on here.
Good Luck!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections

Regular Member

Date Joined Jan 2010
Total Posts : 265
   Posted 5/27/2010 12:30 PM (GMT -6)   
Not an easy choice...
After my resection, I had severe D (4-5 times - liquid - a day) for 2 months. Then 3-4 times, then...
Then  Remi worked to 2-3 times not always D.
Now, Remi + Imuran and an SOS Questran (Cholesteramine) usually got things under control again.
Male, 35 (lovely family of wife and two daughters)
Diagnosed in nov/94 - Started with Prednisone, followed by Pentasa, entocort, flagyl, Imuran, Cipro, etc.
Blockage (popcorn!!) - First Surgery 2001 (no ressection)
Severe bleedind - 2003 - Stopped by 60mg of Prednisone
Stricture leading to a ressection in Dec/2008 - Second Surgery
Now on Remicade + 100 75mg Imuran + Iron (doc said i'm in remission, but I'm not sure at all)

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 5/27/2010 1:21 PM (GMT -6)   
Since starting my Humira I haven't had a problem with D. Every once in awhile, if something I ate bothers me I will have a little D but lately its been normal, prob due to the stricture. Sometimes I even am C. The surgeon says though since I've had my stricture for so long, it will be like opening up a dam. I really don't need that in my situation. Back before I became incontinent, I could hold it for hours...never had a control issue! I am so upset over this.

Do you guys ever consider a bag to regain your life back?

At the end of the day, it may be worth it all to get one. I mean, I don't have a lot of accidents. I do worry continuously about having one though. I want to stop worrying so much about being close to a bathroom. Its the fear of "what if" that gets me. I wish it would stop but it seems to only get worse. Just as I gain confidence, an incident occurs and its back to feeling really bad about myself. But will I feel better mentally with the bag hanging off my stomach? - a constant reminder of the crap we go through, literally. In a way, of course it will give me my life back. In another way, its taking a little bit away such as my confidence. I feel I will always worry about smell or noises or feeling un-attractive to my bf. I could go on and on but I will spare all of you. I don't know what answers I am looking for really. I just hope that when I go back to the surgeon's office, he will guide me in the right direction and I will go through with it. I trust him completely - he is a renowned surgeon in NYC -he actually cares about my quality of life after surgery, which is very hard to find.
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira, Fish Oil, D3, Entocort, B-12 shots, Align, Multi

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 5/27/2010 4:32 PM (GMT -6)   
Since you are so undecided why not give the Questran (cholesteramine) a good try? You don't want to always regret that you didnt try it and give it a chance. What they take out they can't put back in. And - SOME colostomies ARE reversible. The reversability is something you would have to talk over w/your colorectal surgeon. But if it were me I would give the Questran a good college try.
My computer says I need to upgrade my brain to be compatible with its new software.

Veteran Member

Date Joined May 2003
Total Posts : 2480
   Posted 5/27/2010 5:03 PM (GMT -6)   
I had 1 resection, 10-12 inches removed. I had diarrhea immediately afterward and it got progressively worse. CD came back pretty much immediately. Sometimes I've been hanging by a thread to not having another resection, but thank God I've managed to avoid it and at least now I'm not obstructing all the time.
It's been so rough at times.
Anyway, if they can fix you up by avoiding the bag, I suggest you look carefully into that route.
Best wishes, hope you feel better soon!

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 5/27/2010 11:59 PM (GMT -6)   
ive had 14 and had D after each one.. now permantly since i have only a couple feet left ;0).. but i would try anything before going that route....

i dont know if this is true but somehwere in my journey i heard that there are exercises to strengthin the sphincter. it sounds wierd but it has to do with putting something in it and tensing and releasing the muscles. maybe ask your dr if they have some idea what the procedure is?

Regular Member

Date Joined May 2010
Total Posts : 88
   Posted 5/28/2010 10:43 AM (GMT -6)   
i had my resection 4 years ago, i had almost 3 feet removed and have had d ever since, but i also had it before..
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 5/28/2010 11:15 AM (GMT -6)   
Hi, I had a resection 16 yrs ago and also have had D ever since, but am able to control it with Lomotil Bev x
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."

Regular Member

Date Joined Mar 2010
Total Posts : 49
   Posted 5/28/2010 12:41 PM (GMT -6)   
I had a resection in April -- 2.5 feet removed. It's been about 2 months now, and stuff still goes through me sooo quickly, however, it's become more predictable -- as in I know that if I eat, within 15-45 minutes it probably is going to go through me.
Diagnosed at 17, currently 23 :)  Have had 1 resection so far.  It's been an adventure!

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 5/28/2010 7:41 PM (GMT -6)   
I had my first resection March 16 - 8 inches removed at my TI / ileocecal valve. I take 1 Imodium every 2-3 days, which keeps my BMs solid. Otherwise I still go more often than I'd like, and they aren't completely formed. I had REALLY bad d for the first few weeks after, though.

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 5/29/2010 11:34 PM (GMT -6)   
Thank you so much for all your advise.

I have started the Canasa suppository. I am getting a few tests done and I also increased my Humira from 10 days to once a week. Hopefully these things will help to push off surgery a little bit but indefinitely I need more intestine out. Its been 13 years since my last (2 ft out) so I have been very lucky! I mentioned Questra to my GI and she would love to put me on that after surgery. I am pretty sure I am willing to risk just getting the resection or stricturoplasty and hoping for the best afterwards. Oh, and also I will be going to biofeedback - physical therapy for the butt per say. Hopefully this will strengthen the muscle. Then I can maybe fix the darn fistula I have as never ends!!
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira, Fish Oil, D3, Entocort, B-12 shots, Align, Multi

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