blockage/partial blockage but with new symptoms

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Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 5/27/2010 1:11 PM (GMT -7)   
So as many of you know, I get blockages frequently. But they pass on their own and relatively quickly. Now it seems my CD has decided to throw me a curve ball. For the past few weeks I have had days go by with no BM, which is very unlike me. (Normally I have 6-8 a day). Then after 4 or 5 days of this I will have a half hour in the bathroom, only to repeat the cycle. I don't have the pain I would expect with a blockage or the normal bloat. Yesterday the nausea set in and today the dry heaves. I finally bit the bullet and called my doctor. I am waiting for his office to call me back with a time for a CT in the next 24 hours. Not looking forward to it. Both my doctor and I are a bit confused by this. My pain level is nothing compared to what it should be if I was having a blockage, although I am having pain in waves, just at a low level. Things are moving, just really slowly. I hate to think that my luck has run out. sad
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Howlyncat
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Date Joined Jan 2005
Total Posts : 24909
   Posted 5/27/2010 6:02 PM (GMT -7)   
I am so so sorry to hear you are dealing with this
plz do keep us posted as to whats going on
huggs
lyn
                  
 
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NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8586
   Posted 5/27/2010 7:46 PM (GMT -7)   
Can't help much, but your symptoms sound similar to mine! I've never had the obstructing type of disease, though - just chronic diarrhoea for 10 years until last year when things began to change. Transit times began to slow down. At the moment, instead of going a few hours after dinner, it takes 2-3 days for my insides to be emptied out in 3-4 bathroom trips in the space of about half an hour. By the last day I'm usually in a lot of discomfort, with pain that is invariably made much worse from the prolonged lying down of bedtime.

It does feel like things are moving slowly, to the point of being inert at times - although what comes out is still liquid 99% of the time. When I spoke to my GI a few months ago, she ordered a colonoscopy because she thought that constipation indicated possible strictures in the colon. But it turned out I didn't have any strictures there. At any rate, if you have disease in the colon that's a possibility for you too, I guess. Mind, I don't think I described the "constipation" well enough - not very good at talking to doctors.

Good luck with the CT scan and hope that your luck hasn't run out :-/

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/28/2010 6:21 AM (GMT -7)   
Zanne I suffer with more c than d. I have to take stool softners nightly in order to keep things softer and easier to pass. If I don't go for a day or two, I will get really nausea and my stomach will hurt really bad. I can't let myself not go for one day, or I feel as you do. Instead of letting it go days, I might suggest the stool softners. They have been a life saver for me. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 5/28/2010 9:51 AM (GMT -7)   

Hi Zanne-

The problems you described sound similar to what I've been going thru. I truly feel for what you've been dealing with. I too finally went to the doctor and he rolled out all the tests which included a CT Endography(?). I too am awaiting results and am going to be paying close attn to your post here. I do hope they find some resolution on your side that doesn't require any drastic measures. Peace be with you.

 

JAB


Tebasaki
New Member


Date Joined May 2010
Total Posts : 7
   Posted 5/28/2010 10:09 AM (GMT -7)   
While I dream of days without pain or going to the toilet double digit times a day, I did have one episode where I was taking Immodium bi-daily. The pain came by the end of the week and it was different than before. As it turned out I had constipated myself and the pain was from the blockage. I drank lots of water and waited 48 hours and it all came tumbling out returning me to my un-normal regularity. I've also had nausea and dry heaves (at times daily) because my stool gets too solid, which isn't even the definition of normal solid. (I think there's something down there that triggers the nausea, like stool rubbing a certain part of your colon.) I think maybe a stool softener would help because it's generic (I don't know what would break you up, everyone is different to greens, dairy, carbs, and such), but if you do take them, start slow!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/28/2010 10:56 AM (GMT -7)   
I also wanted to point out that when my system gets too slow, I will get really nauseous everytime. Thats why I now take the stool softners all the time to keep me going everyday. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/28/2010 6:32 PM (GMT -7)   
I may have to resort to stool softeners if the doctor doesn't find something. I had blood drawn last night and I am having a CT tomorrow afternoon. What a lovely way to spend the holiday weekend. At this point the pain is getting a bit stronger and coming in waves so I think it is probably a partial blockage that has been going on for a few weeks. I'm sure I won't find out the results for days unless its something grossly major since its the weekend and a holiday. But that seems to be the way it always goes for me. I have spent more holidays in the ER and hospital than I can count.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/28/2010 8:21 PM (GMT -7)   
Suzanne let us know how it all turns out. What you describe is exactly what happened (is happening) to me.  I was feeling ill, not able to pass stool (not even diarrhea for several days)  Later, what I did pass was little bits of diarrhea at a time, in between air spasms. On most days I am unable to pass gas normally ( my butt feels sewn up)  I'm also nauseous, and feel a pressure around my middle  going up, more  belching as well.   I do not have severe pain, only discomfort.    I've had obstructions before, and this feels different but uncomfortable just the same. 
 
I was told over a year ago that I needed surgery for a long stricture where the small and large bowel join, but when I went to the doctor about my recent symptoms he ordered a small bowel follow thru thinking my stricture is worse, but apparently results show there has been no change from last years (the long stricture still remains)?  So what am I feeling?
The one thing I have thought about, I've been taking Questran more often to stop the diarrhea, and I think that it may be plugging me up and allowing very little through.  I still do not feel good and may have to call the doctor again.  I've also been wondering if this feeling could be (stress) or nerves?  I don't know what to think?
I am interested in what your doctor says, so please let us know when you find out.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/29/2010 8:00 AM (GMT -7)   
Dorri,

Thats exactly how I feel if I get backed up and slow. I get pain in the belly button area like an obstruction, nauseous, no appetite. So now I know that its me getting backed up again. Once the stool passes I feel a lot better. I have had SBFT, CT Enterography and I have no strictures. I am due to have another CT Enterography on June 11th to check the status of my Crohns before my knee replacement, and expect to see all is okay. At least thats my hope, as I have been feeling relativey okay except for those slower days.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/29/2010 9:05 AM (GMT -7)   
i've never had a obstruction at least that i know about- i went ot the er in severe pain once but they did an mri or ct scan (can't remember) and said all they saw was the normal inflamation...now for the past few days i've had a lot of pain when i try to go the the br and blood. it hurts so bad that i've puked a few times...not really food- more dry heaves and bile? last time this happened it went away on it's own. this disease sucks.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/29/2010 1:16 PM (GMT -7)   
I'm back from my CT and feeling worse of course because now I have all the barium in me and it has no place to go! Now the pain has increased and my belly is all bloated so that I look pregnant. This if finally feeling familiar and oddly comforting. At least when the pains and symptoms are what I expect I know what is going on. After so many years with this DD I really don't like when it throws me a curve ball.

I am hoping the barium can find its way out. I will let you know when/if I hear anything from the doctor, but I don't expect to find anything out until after the holiday. Hope someone is having a burger and potato salad for me!
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/29/2010 8:21 PM (GMT -7)   
I was going to say all the best, but instead I will say I hope the tests you had done will show something up and bring you the answers that you need.

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