Will be starting Humira next week

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Veteran Member

Date Joined Jun 2005
Total Posts : 838
   Posted 5/27/2010 9:01 PM (GMT -6)   
  I really dont want to start this medicine but I guess I have no other choice. the colonoscopy results was not good.  mad

Regular Member

Date Joined Jul 2008
Total Posts : 383
   Posted 5/27/2010 9:51 PM (GMT -6)   
I just started at the beginning of the month. I wasn't thrilled about starting it either but my Dr. gave me the choice of starting Humira or another round of prednisone. Guess which one I chose.

It's not as bad as I had made it out to be in my mind. I think it was more fear of the unknown.

Good luck! Hope it works for you!
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 5/27/2010 10:04 PM (GMT -6)   
Many here hv had great success with Humira
i wish you all the best n im sure ppl on it will post to you
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Veteran Member

Date Joined Jan 2009
Total Posts : 829
   Posted 5/28/2010 5:43 AM (GMT -6)   
I love Humira so much easier then Remicade :D

I can not tolerate the pens so I use syringes and it is all fine.
It took about 12 shots for the Humira to work for me.

Good luck hope you feel better soon.
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 5/28/2010 5:56 AM (GMT -6)   
I've been on it sine Jan 2009. I did not want to go on it either but my scope results were pretty bad after having surgery 10 months prior. My chioce was Remicade or Humira. Well i chose Humira cuz I did not want to see for a few hours once a month or whatever the dosage requirments are for Remicade. Humira is simple and easy to do by yourself and only takes a couple of minutes to do.
I have really only had one problem and that is that this last injection left a really good size bruise.  Other then that no problems so far (knock on wood).
Good luck and don't worry to much about all the side effects. I was one that worried and I'm doing fine.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Regular Member

Date Joined Jul 2004
Total Posts : 422
   Posted 5/28/2010 6:17 AM (GMT -6)   
I'm so glad you posted this topic.  My scope last week was not good - disease is progressing.  I go next Friday to see my GI.  His recommendation that we will DISCUSS is Humira. 
I'm anxious about the thought of going on it, too.  Part of me wants to say, "Can't we go to Imuran, 6MP, Methotrexate, Entocort? SOMETHING ELSE FIRST?!"  But then there's another part of me that thinks I should give it a shot (no pun intended!). 
One of the main things that debilitates me with my CD is my constantly swelling ankles when I'm flaring.  Can't walk...can't drive...and Humira will help with that (supposedly).
Diagnosed in October, 2004 at age 32 (misdiagnosed with IBS in 2002)
Current Rx's: Colazal (generic), Omeprazole (PRN), Librax, One-A-Day multivitamin, Probiotic, Omega-3 Fish Oil, Vitamin D, Cranberry pills; Slow Fe (PRN) 
Secondary conditions: swelling ankles, extreme fatigue, mouth ulcers, joint pain
Previous/occasional Rx's: Prednisone, Flagyl, Levaquin, Xifaxan, Carafate
4/7/09: Gall bladder removal laproscopic surgery (gall stones)

Regular Member

Date Joined Jul 2009
Total Posts : 61
   Posted 5/28/2010 7:13 AM (GMT -6)   
I just finished my first loading injection. It wasn't that bad. I split up the 4 pens. 2 one day, 2 the next. It does hurt a little but it is over in less than a minute and you can go about your day. I hope to see an improvement soon and will keep trying. Good luck!
Diagnosed with Crohns in 1998. Been on and off pred, entocort, immuran, asacol. Currently on Remicade every 6 weeks along with Asacol. Began having joint pain 01/2010.

New Member

Date Joined Apr 2010
Total Posts : 18
   Posted 5/28/2010 11:47 AM (GMT -6)   
I just started Humira back in April and I was actually terrified of it - not of the shot or the pain but the actual medication and the risks associated with it.  I think I am actually starting to see some improvement in my condition at this point.  I don't feel great by any means but I seem to have more energy and my joints definitely feel a lot better.  I have also had some fairly normal bathroom experiences which I have not experienced in over 5 years.........so, I think I am on my way to be another success story.  Just a few tidbits of advice:
* My nurse said that you can also give the shot in your hip / butt - This is what we have been doing and I think it hurts a little less than the ones I did in my stomach.
*  We ice the area for a couple of minutes prior to the injection
*  I make sure  Itake the pen out of the fridge for about 45-60 minutes prior to injecting
* Make sure the area that you wipe with the alcohol prep pad is dry prior to injecting
*  Once the injection is done - just rest and lie down for 20 minutes or so with another icepack or cold compress on the injection site.
These are the things I do and it has made the experience OK.  It hurts but these things really do help.  Also, you might be tired the following day or so.....especially on your loading doses so take that into consideration when scheduling the injection.
Good luck!!!!!
Crohn's DX in 2006 but sick for well over a year before that. Currently just started on Humira, Pred - 40mg (hoping to taper off of this soon), Phenergan 25gm prn, Percocet, Pentasa 500mg, Protonix 40mg and Lomotil, prn. 
I live my life to the fullest, enjoy every day and am excited for the day when we will be able to say good-bye to CD and UC.  I am becoming active in my local CCFA chapter and have found them to be a wonderful resource!

Regular Member

Date Joined Nov 2003
Total Posts : 351
   Posted 5/28/2010 12:13 PM (GMT -6)   
I started Humira last fall and it gave me my life back. I've had a few complications along the way probably self induced tho. I started feeling so good that I was back to my old ways in no time. Just because you feel better doesn't mean you can super size the burrito. smilewinkgrin
On the other hand not having to take a single pill other then supplements each and every day is a blessing.

New Member

Date Joined May 2010
Total Posts : 7
   Posted 5/28/2010 12:28 PM (GMT -6)   
I've done Remicade and Humira. The strange thing was the effects it had on me. When I came back from Japan and had my first colonoscopy in a medical world that understood the disease a bit better (and used drugs to knock me out for it) the doc said I looked "like hamburger." It was exhaustive for me, and it took great effort to move. As with a lot of these drugs I loaded up on Remicade, and in about 2 weeks I was eating and drinking anything I wanted, and gaining serious weight. (Like I didn't even have the disease.) I set up a plan to receive treatment in Japan and went back pumped and ready to go. I was at the gym, getting ripped, and actually being pretty healthy! However, it seemed that after each treatment of Remicade (8 weeks), the effect would start to drop off earlier and earlier. Usually I would go to Starbucks and celebrate my treatments with a Frappuccino but it got so bad I couldn't even do that. I went further and further downhill until I called and myparents booked me into see the doc in the US again with a plane trip back in a week. At that point I couldn't get out of bed; but managed to at least shower and take a cab to the hospital for an IV drip of Iron, vitamins, nutrients, and the like. (Just to keep me alive, I wasn't eating or drinking because of the pain.)

Back in the US I hit up a double dose of it for one last push and there was no effect at all. I tried a few other things (natural meds, probiotics) because of the limited options for me. When I passed out in the X-ray room trying to test for tuberculosis I finally agreed to the Humira. (I was a man who originally was around 240 lbs. had turned into a 147 lb. weakling.)

I don't really mind if I stub my toe, or slam my hand in the car door, but to intentionally inflict pain (like with a needle) drove me nuts. The nurse on the first day of treatment (the first load day) sat with me for 2 hours while I worked up the nerve to push the pen button. While my Remicade run was about 8 months, I've been on Humira for 21 months. (I believe it's because the Remicade has some strange mouse protein in it. Yum!)

In your case, and probably most with Crohns, I would be more worried with it NOT working than any side-effects at this time. As we all know the the FDA would rather have us suffer with a treatment rather than a cure, there won't be anything more to help us (outside of butchering our colon) for a long, long long time. (Unless you want to take your body into your own hands to cure.)
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