I really enjoyed ignoring you guys...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 5/28/2010 12:12 PM (GMT -7)   
Nothing personal to any of you, but I really enjoy not being on this board and reading posts. That usually means my CD is not bothering me and life is good as I casually ignore it and go on with life as if I don't have CD and I'm just a normal person. Ignorance truly is bliss. Well, that level of denial has been smacked upside the head with a series of flares over the last 6-7 months or so and it looks like I'm forced to deal with my CD again. I ended up in the ER again Mon-Weds with another small bowel obstruction and I'm back on the meds for the first time since my last resection surgery almost 6 yrs ago. NO FUN, as you all know.

Anyway, I tell you all this to say hello and to thank you all for showing me once again that I'm not alone with this junk. It's both encouraging and saddening to read what some of you have to deal with in your battles. New meds/treatments make me hopeful; hearing of young children being dx'd brings tears to my eyes as I remember those days too well and don't wish that on anyone, especially young children. Sometimes it makes me feel petty and that I have it pretty good as it is, but there are days I still wallow in the frustration of Crohn's.

So there you have it - I'm back on HW and hope to add a laugh or some input if and when I can. Press on, Crohnies!
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!


*Life is 10% what happens to you and 90% how you react to it."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/28/2010 12:31 PM (GMT -7)   
Welcome back, only I am sorry you have had to return. I will tell you I went thru much the same as you at one time, and thats why I ALWAYS stay on some type of maintenance meds now. If you are not treating this disease at all times, it will surely one day reappear and bite the heck out of you. I am maintained solely on Asacol now, and you can bet I will not stop it again. Now that you are back on Pentasa, if it works for you, I would stay on it all times. Save yourself some pain and grief. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 5/28/2010 1:24 PM (GMT -7)   
Thanks, Gail.
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!


*Life is 10% what happens to you and 90% how you react to it."


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 5/28/2010 10:04 PM (GMT -7)   
I feel that way a lot of the time too. Sometimes I'm not feeling great and come on here and just read up on what's happening with people. Then I'm a lurker. When I'm feeling great, I don't need to visit the forums. Lately I've also been talking a lot 'cause I've been hurting a lot.
29/f
Allergies and Asthma my whole life: Benadryl
Depression and PTSD after surgeries and illness of 2003 (turned out to be Crohns)
Crohns Dx'd: February 2008: Pentasa, Hyoscyamine
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin


Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 5/29/2010 11:54 AM (GMT -7)   
Hang in there, Joie - things will get better!

On a lighter note, while I'm on prednisone I basically turn into Superman: need little to no sleep, have tons of energy, and get lots of stuff done. By noon today I ran 6 miles, trimmed our bushes, sprayed weeds, and started cleaning the garage. I'm trying to focus on the positives of being on meds right now, so making the most of it. wink
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!


*Life is 10% what happens to you and 90% how you react to it."


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/29/2010 6:47 PM (GMT -7)   
Welcome back to you cd family
HUGGS
LYN
                  
 
        
         ..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic
             Crohns.. PG ..Seizures..Neuropathy..A/P...Fibro..Deaf 
        medications..lyrica..diazepam bid..ativan..prn...trazadone at hs..folic acid    
                                    mtx..potassium..dilantin..pentasa..lomotil..val acid
                                      DONATE TO www.HealingWell.com
                                       I AM STRONGER NOW THAN EVER
      TRUE FRIENDS WILL B THERE FOR YOU..SUPPORT YOU THRU EVERYTHING
                                                      LYN
                                                         
                                  
 
 
 
 
 
 
 
 
 
 
 
 
                                                                                                      


staroflife911
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/29/2010 9:31 PM (GMT -7)   
I'm the same way Joie. Sat away, pretend it isnt there. Then it hits me like a freight train, coming at me like the guy in the shining saying "Heeeeere's Crohn's-sey!". A little hard to ignore then. Called in to work 1-3 days for the passed four weeks (I work three twelves every weekend). So not only does it hurt physically, it hurts financially.. Its hard enough being a single 20 year old working full time and going to school full time.. four eight hour shifts for clinical rotations for school a week followed by classes at night and work every weekend it difficult enough without trying to drag crohn's around with me like a gorilla on my back. I have just reached the point now where I just want to quit. Put everything on pause and breathe for a few days. Then I go to the doctor, and he makes me feel like I am crazy, that I am not having a flare up after a scope (HELLO!!! Its crohn's! maybe you should look at the stomach and small intestines too! Not just the colon!) Then again, they are the ones who have the education and are supposed to know about all this stuff. Maybe I am crazy.

I also tend to think about the past and feel guilty about those days I felt great and took it for granted. Then my mind shoots back to the present as I dart for the toilet to either sit or worship. Then there is the future, which is the scary part to me. Whats going to happen to me? How long will it be until we get this under control? I want a husband, and beautiful children one day? Will that ever be possible? Will I even be able to produce a healthy child? What meds could I take while pregnant if any? What if I am having a flare during pregnancy? Then I read about all the women on here who do have children. That raises my spirits and I try to move on to other things. But it is always there lurking....
Emergency Room PCT
20 Years Old
CD since 2006
Remicade IV every 6 weeks
Paramedic Student


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/29/2010 10:03 PM (GMT -7)   
Dooger, like your attitude and your quote. :-)
58 yr. old F dx. CD 07/07
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 5/30/2010 8:45 AM (GMT -7)   
Dooger73 said...
On a lighter note, while I'm on prednisone I basically turn into Superman: need little to no sleep, have tons of energy, and get lots of stuff done. By noon today I ran 6 miles, trimmed our bushes, sprayed weeds, and started cleaning the garage. I'm trying to focus on the positives of being on meds right now, so making the most of it. wink


Wow. Even pre-Crohn's I never had that much energy. While I do feel (quite a bit) better on Entocort, my feeble energy boost from it is but as a flickering candle flame to a roaring inferno by comparison. >_>

On a serious note, it does make me wonder if there's more than physical illness and general debility which affects energy levels. I get shattered if I try to do anything too physical (such as gardening) for too long, but to some extent I've always been that way. Obviously made worse by Crohn's and anaemia, though.

staroflife911 said...
Its hard enough being a single 20 year old working full time and going to school full time.. four eight hour shifts for clinical rotations for school a week followed by classes at night and work every weekend it difficult enough without trying to drag crohn's around with me like a gorilla on my back. I have just reached the point now where I just want to quit. Put everything on pause and breathe for a few days.


Careful you don't burn yourself out: that sounds like a gruelling schedule for even the totally healthy.

On another note, there's no reason why you can't have kids in the future. There's few meds which can't be taken during pregnancy, nor is it any more likely you will produce sickly babies than the general population. It's easier said than done - I know - but you'll do yourself no favours by worrying about a future years away, particularly when it sounds like you've got an extremely hectic now to deal with.

Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 6/1/2010 9:44 AM (GMT -7)   
Bammer - thanks! There's more where that came from. smilewinkgrin

NiceCup - this past week the world just seems more alive - colors are brighter, food tastes better, life just seems more "on" for the first time in a long time. Not sure if it's because I have slowly been degrading so long that I didn't realize how far things had gone? I do believe the emotional drain associated with CD (or any chronic dx for that matter) along with the physical drain of CD take their toll on you, pushing many crohnies to depression. It's a battle.

Staroflife - wow, you're burning the candles at both ends. As NiceCup says, take care of yourself first and don't overdo it. For me, stress + lack of rest has ALWAYS been the one-two punch to make me flare and go down for a day or two. Sounds like you're in it up to your eyeballs right now.
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!


*Life is 10% what happens to you and 90% how you react to it."


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 6/3/2010 10:27 AM (GMT -7)   
Dooger - I get the same rush from pred and sometimes feel like a drug seeker when I complain of my various inflammatory aches and issues. Glad you're feeling so good!

It's a good reminder to keep up with maintenance meds. I think it's human nature to be noncompliant when you're feeling good. I have an awful habit of forgetting a midday dose of my meds - still haven't worked that one out. Grr.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 11, 2016 1:07 AM (GMT -7)
There are a total of 2,736,238 posts in 301,363 threads.
View Active Threads


Who's Online
This forum has 151453 registered members. Please welcome our newest member, LvGuy1.
163 Guest(s), 1 Registered Member(s) are currently online.  Details
bluelyme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer