gastro sugested pain management clinic

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rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/28/2010 6:57 PM (GMT -7)   
Hey folks,this is poss. another stupid question. I  am facing another sx. I can put it off,but the pain has become pretty much unbearable. My gastro does not prescribe pain meds. She said to find a pain management doctor close to my area. Does that mean they give pain meds or some other form of thearpy?? My colon,rectum needs to be removed. Fistula's,abcess's have taken over. I hate to spend the money and get someone to tell me to light candles and sit in the tub! Thanks!

Mary Lynn


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/28/2010 8:27 PM (GMT -7)   
Hello Mary Lynn, lots of us go to pain management clinics for pain meds. It is often the best route to take.
Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 5/28/2010 11:32 PM (GMT -7)   
I'm going to one here in Vancouver next month, I've been on a list for over a year. Don't know what to expect, just hope they help somehow.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/29/2010 7:41 AM (GMT -7)   
Yes, the pain mgmt is the best way to go in my eyes. That is there specialty and I really think you will get the pain relief you need. Many GIs do not prescribe pain meds, I get mine from my family doc. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/29/2010 8:32 AM (GMT -7)   
Thanks for the reply. my family doc is retiring. I just do not know what to expect! I do not what to appear as a drug seeker. Does my situation sound like this is chronic disease?

Mary Lynn


mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 5/29/2010 9:00 AM (GMT -7)   
my doc won't prescribe either...i need to find a pain clinic also. i've been in a lot of pain the past week or so. luckily i had some leftover percocets from a kidney stone but they're gone. looks like it's going to be a fun holiday weekend.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/29/2010 8:17 PM (GMT -7)   
I've seen one for over a few years now...I see a physician who deals in pain medicine, not a clinic (she was my neurologist, before I had to see a pain doc so she does both)...I do know that they tend to know the best treatment for visceral pain, which is treated different than muscle/skeletal pain...they, as part of their practice, keep current with their paperwork and in accord with any regulating agencies (like the DEA)

BTW, I live in AZ too...
"The earth laughs in flowers"


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/29/2010 10:14 PM (GMT -7)   
where in az?
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/6/2010 8:33 PM (GMT -7)   
Southwest Phoenix...my GI is in central Phoenix
"The earth laughs in flowers"


John510
Regular Member


Date Joined Jun 2004
Total Posts : 226
   Posted 6/6/2010 8:42 PM (GMT -7)   
MY GI gives me all my pain meds once a month..oxycodone..my PCP would never and I never tried a pain mgt doc..didnt know there were "lists" and stuff
 
Why wont your GI give you some pain meds just find another GI who will honestly ..my GI does not want me to be in any discomfort

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/6/2010 10:32 PM (GMT -7)   
My first visit to the Surrey Memorial Hospital Pain Management Clinic is tomorrow. I sure hope they can do something to help with this unending pain, I try my best to be strong and only use what I absolutely need but I'm getting so worn down I need help.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 6/7/2010 1:26 AM (GMT -7)   
Don't a lot of the pain management meds cause stomach and intestinal discomfort?
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/7/2010 5:17 AM (GMT -7)   
That is the reason to go to a pain management clinic. All they do is treat the SYMPTOM of pain. They are not trying to find the cause or cure it. They have a vast array of medical options at their finger tips and can work with you to find the right level of relief so that you can still function but take the edge off the pain. It is the very rare GI who will RX pain meds and when they do, they really don't have a very big arsenal to pull from. Pain management doctors are the leading edge of pain medication so you are getting the most pain reliving aspect with out as many side effect(like drowsiness and tolerance). Everything is done above board so they are watching for any signs of addiction, dependence, tolerance and can work through them.

Its like going to your GP to be treated for CD. They can treat you, they have a basic knowledge, but it isn't the one thing that they do best.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/7/2010 1:34 PM (GMT -7)   
rovin, once you have the surgery you've been putting off and recover you probably won't need any pain meds. You hanging onto a colon and rectum that are causing nothing but pain and misery.

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 6/7/2010 3:06 PM (GMT -7)   
I know,I know. Thanks for reminding me. I have been putting serious thought into this. Is this gonna be like when I quit drinking?? Sick and tired,of being sick and tired??? Is there ever a good time?? I am scared of the pain. Yes....my family(,not husbandwho won't discuss it)would believe thatWe all liketothink we are,and we have to be with this DD. That is all i hear anymore..."you are the strongest person, I know."But you folks know1!

Mary Lynn


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/7/2010 11:57 PM (GMT -7)   
  scool Rovin1959 I'm a friend of Bill and Bob so I understand what your going through. I went to a pain management Clinic today. It took about 20+ minutes just to fill out the paperwork which was obviously testing me on I don't know what but generally examining all areas of my life with regards to pain meds. Then I met the Doctor who continued to discuss my answers as I didn't understand a few and couldn't answer a few more. Then we just chatted me giving him a history of what and when I used pain killers. How the pain I get from crohn's affects how I uses meds. For instance the difference between crohn's arthritis and a partial blockage with cyclical pain, which are two very different types of pain. My journey along the Bill and Bob route was also covered very well. Much more was covered, education was very involved in the process and I learned quite a lot especially why my family Dr. was giving me meds I thought were pointless. Now I understand why. In all we talked for an hour! A hour! I've never talked to any Dr. for that long. He obviously wanted to know exactly were I was at and he wanted me to understand were I was at. He made sure I left feeling vindicated that I'm doing the absolute best I know how to control my drug use. That was huge for me as controling my pain meds to what my Dr. has prescribed is a battle I continually go through. He said I was right on top of it and he was impressed at how I managed my pain. He also made sure I understood there are different ways we can try to lower my usage more but it'll take experimenting and time. I know we discussed other things but they escape me right now. I was very unsure of what a pain management clinic was all about but went there with the objective of trying anything they recommended. I left feeling great and vindicated that I have been doing very well and together with him the future will involve less not more narcotics but will still manage my pain sucessfully. If my experience is "normal" then you have nothing to lose going to a pain specialist and alot to gain. tongue
P.S. Becoming undone, Dr. was great at explaining visceral pain and the differing treatments.
 
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/8/2010 12:20 PM (GMT -7)   
For those of you who's GI's won't perscribe pain meds, I'm curious. Are these doctors at clinics affiliated with teaching hospitals or commnity clinics?

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 6/8/2010 12:32 PM (GMT -7)   
Grandpato2, I lost a lengthy reply to you. Thanks for giving me that info. I appreciat it more than you know!

Mary Lynn


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/8/2010 10:20 PM (GMT -7)   
Glad I could help! You must type like me it probably took me 30 minutes or more to type what I posted yesterday! lol I figured it was important to you so the effort was worth it. Rob
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 6/9/2010 7:52 AM (GMT -7)   
Yes,you are correct in saying that I do not type well. Not a friend,but someone I know,said that a pain management,closest to us would not help her. Personally, I am not sure that she is in pain. She has no medicial dx. Although,she has triedvery hard to "be sick." Example, running from doc to doc for pain meds. That does not mean she does not hurt though. She drinks,smokes and parties hard. I can only tell you that this fistula is hurting,colon is on fire,and it makes me depressed. I also do not think my surgeon would suggest removal of my rectum,if anything else were possible. As a matter of fact, his words on my last scope was "this is just awful,MaryLynn" I say that out loud if I want to make people laugh!

Mary Lynn


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/10/2010 3:36 AM (GMT -7)   
  scool Personally I hope the someone you know is not you! I may be way off base but here's how my intuition reacts to what you posted. Running from Doc to Doc for pain meds sounds like addictive behavior to me. Could she be presenting pain to the Doc as worse than it really is to get more and stronger meds? Pain meds are good to party on. Won't go to a pain management clinic as they "would not help her" could be someone who doesn't want Doc's at the clinic to compare notes with family Doc or specialists and she how she's manipulating the system to get what she wants. nono If this person is close to you I'd be worried. Now for you, I understand the pains that leads to depression very well, if the depression is affecting your quality of life you should take steps to treat it soonest (if you haven't already). Tell your Dr how your feeling, if he's any good 5 or 6 questions should easily lead to a not a problem diagnosis or more questions to investigate further. Remember if anti-depresant meds are needed they can take 2-3 months to start effectively working. In the past when I thought I had a problem, was diagnosed and started anti-depresants, it took2 different courses of meds to start to control my symptoms effectively. SIX MONTHS after I saw the Dr. initially. By that time I was thinking suicidal thoughts every day and was gratefull that I was getting mentally stronger day by day. Don't wait. And yes it does sound like the surgeon was serious, must have picked up your heart rate for a bit! Lastly it's 3:30am here and I'm getting Remicade tomorrow at 1:30 pm ( Yah Hoo) so time for bed for me! My best wishes for you and certainly prayers as well Rob turn
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

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