I've had Crohn's for over 20 yrs and never had any symptoms like yours. Sorry I can't be of more help but I hope you can find some answers soon.
Diagnosed with Crohn's April 2009 after suffering for over 20 years.
Current meds: 6mp, Salofalk granules, somac, Vendolizumab clinical trial, mobic and panadol osteo.
Also dx with Spondyloarthritis of the sacroiliac joints and psoriasis.