Joint Pain remedies

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/30/2010 8:07 AM (GMT -7)   
I am currently just waiting for my doctor to return from vacation so we can get started on the next course of treatment. I talked to the Mayo dr on Friday and he won't do anything until he can speak to my doctor. He wants to make sure I am closely followed with the Imuran. I told him about the joint pain and he said he will recommend another course of prednisone to my local doctor. The colestipol is helping with the urgency , just not the diarrhea but its the joints that are driving me crazy.


In the meantime.. I am in pain... so much pain. What can I do to help myself. I am not allowed to take any nsaids. Can anyone give me any ideas to help with the joint pain, any home remedies??? anything?? Between the joint pain and the fatigue I feel like I have been hit by a truck.

thank you !!
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/30/2010 8:32 AM (GMT -7)   
Well once you get onto the Prednisone should help relieve some of the joint pain. But in the meantime you might try some Tylenol Arthritis, that might help some.

Many us of us have joint issues while flaring, so hopefully once you get on treatment you will start feeling better. And if its any comfort, the first flare is usually the worst. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/30/2010 8:16 PM (GMT -7)   
Its not a quick fix and its not cheap, but acupuncture helps. Some insurance covers it and if you can find a community clinic they are much cheaper. I was going once a week and paying only 15 dollars. It really helped, but it took a month or more to start to help. Before I found a community clinic it was much more expensive, like $60 an hour. You can do a web search and see if you have any near you.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/30/2010 11:10 PM (GMT -7)   
Sorry the only thing that worked for me was Remicade.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/31/2010 7:16 AM (GMT -7)   
ok than... :) I will be patient and just deal with the pain ... hopefully they can put me on prednisone and that will help until the Imuran kicks in.

thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently waiting for Imuran and another course of Prednisone to start, take propranolol, vivelle patch and colestipol
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol, Prednisone, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/31/2010 7:22 AM (GMT -7)   
Heat helps, in particular wet heat (microwaving hot towels)
You might want to think about trying Tylenol to see it might help?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 6/1/2010 12:58 PM (GMT -7)   
I take tylenol, sometimes helps a bit, but the joint pain is really inflammatory and just crying out for NSAIDS. In a pinch I'll take ONE Aleve. I've been known to take Aleve for 36 hours (one pill every 12 hours) but then my stomach hurts and I stop.

I got and used wrist supports to help my hand pain. For shoulders and knees and feet - I got nothin' for ya except rest.

Sorry you're having to deal with this! I also found that my joint pain was much, much worse just before my menstrual cycle. Once my period started and estrogen started rising, the joint pain was lessened considerably.
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