Upper Endoscopy Results

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MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/1/2010 12:32 PM (GMT -7)   
I had my Upper Endoscopy today to check out some apparent narrowing in my duodenum which the pillcam discovered. Turns out, it wasn't narrowing but "sharp angulation in small bowel" and no evidence of inflammation was found in the duodenum. I'm kindof skinny, and he attributed it to my small frame. They did do biopsies, though, so I guess I'll hear about those here in a few weeks.
He also told me that he saw evidence of acid reflux and put "Esophagitis, Grade A" on my report and prescribed omeprazole. I love that for my symptoms he finds nothing (episodic cramping w/D), but something in my esophagus shows up which in my mind I have no symptoms for. I think I had heartburn one time over the course of two pregnancies.
So for now, it appears I'm not a Crohnie. Hope it stays that way. 
 
May
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tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 6/1/2010 1:40 PM (GMT -7)   
May I hope this turns out that you do not have crohns although it is great to meet new people on this board.  I m sending good thoughts your way and keep us posted. Many of us wnt in for crohns symptoms and the docotrs discovered other stuff while looking! Never knew I had acid reflux or sacroilitis(sp?) :-)
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Ferrous Sulfate(iron supplement)


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/1/2010 2:47 PM (GMT -7)   
Thanks, Tewcute. So then I take it you had no symptoms of acid reflux either? How do you know if the medicine is working? Routine endoscopies? I hope not...

I'll just keep all that I have found out about Crohns in the back of my mind in case it should be necessary to recall it in the future.

And my hat is off to all the Crohnies - you guys go through so much.

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/3/2010 8:28 AM (GMT -7)   
Tewcute:

I have had back pain (low down) that is reminiscent of back pain I had in my second pregnancy. Uncomfortable, all over, lower back pain. Not acute, but bothersome to say the least. And last week, I was picking my toddler up and threw it out and was actually in pretty bad pain for about 48 hours when it finally subsided. It's kindof been on and off for a few weeks. Like I'm fine today, but last week before I threw it out, it had been aching for several days. What does sacroiliitis feel like? How did they find it? I'm going to mention it to my GP next time I see her...

Thanks!

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 6/3/2010 5:57 PM (GMT -7)   
May,
I hate to ask but did they do the 18 endoscopy or did they do the 3 foot one? Not that I am not happy for you, but sometimes it is better to get the full story instead of just one part of it.
Take care,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/3/2010 7:31 PM (GMT -7)   
Honestly, I don't know, but if I had to guess it'd be the 3-footer.  I asked the tech before they knocked me out if it would take as long as a colonoscopy and he said that sometimes they're out in 10 minutes with upper endoscopy.  That leads me to believe that it is a short one.  I know he was specifically looking at a spot he thought was narrowed in my duodenum, which didn't end up being narrowed, but sharply bent.  Seems like 3 feet would be sufficient.  But to be perfectly honest, I have no clue.
 
I did have a pillcam about a month ago, so scopes have literally been all through my guts.  I know the pill can't biopsy, but at least he's gotten a visual of everything. 
 
I had a positive prometheus IBD serology, which is the reason he went beyond a colonoscopy in the first place.  From what I've researched, it seems like most feel that test should not be used in initial diagnostics.  Maybe it was a false positive, I dunno.  I was a little surprised that he's never done any other blood work, although maybe if you're not clearly "flaring" then that would be as big a shot in the dark.  No mention of CT scans or any barium tests.  At least I know that Crohn's can hide out and be all sneaky, so I'm aware of this stuff for future reference, you know?  
 
Just for the sake of background I have these really periodic episodes of diarrhea and cramping, and actually haven't had one in all of May.  Coincidentally or not, I've been on probiotics for that time.  I'm not in chronic pain by any means.  I know my GI thought IBS right off the bat, but told me he had to exclude Celiac and Crohns first.  I'm not even sure my symptoms fit that textbook IBS definition.  I don't know.  If I hadn't fainted from one of those episodes, I'd have never gone to the doc in the first place, as we have a high deductible insurance plan. 
 
So I guess barring any weird results from the biopsies, for the time being I am not a Crohnie.  While I'm thinking about it...he says I have "esophagitis" which is inflammation of the esophagus...so how do they tell that sort of inflammation apart from the type associated with Crohn's Disease? 
 
Thanks and sorry this got so long!!

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/4/2010 9:16 AM (GMT -7)   
May, the normal way to tell if the meds for acid reflux are working are by lack of symptoms (  even though you didn't even notice them to start with).  My recent endoscopies have shown gastritis and NERD (non-erosive reflux disease), but we only did them because I was having a lot of stomach pain which turned out to be 3 ulcers as well.  There are no plans to do any follow up endoscopies on me until I start having pains again. 
 
I guess I'm wondering if you could have Crohn's but it just wasn't active when they did the colonoscopy.  My colonoscopies have never shown anything, but the capsule endoscopy did and the Promethius test did as well.  Based on colonoscopies and all of the other tests before that, they never could come to a dx for me.  I don't have many of the typical Crohn's symptoms.  I hope they find an answer for you soon. 
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/4/2010 10:43 AM (GMT -7)   
Yeah, so if I had no symptoms to begin with, then how would I know? Guess he'd have to do a follow-up scope. I'm guessing that if this inflammation is from Crohn's then hopefully the biopsies will differentiate it from regular esophagitis. I don't know if that's how it works. It's "Grade A Esophagitis" so it's not even that bad.
This is the only thing that has shown up at all in all three of my scopes, but like I said, those plus the Prometheus test are the only tests he's ordered. No stool samples, no other bloods, nothing. He was not willing to prescribe anything based on the Serology results. I'm glad, b/c Crohnies take some wicked meds, so I respect him for that, but it's also kindof like, "hey, if you don't think it's really reliable, then why'd you order it???" Esp considering how pricey it is.
What are your typical symptoms if you don't mind my asking?

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/4/2010 11:07 AM (GMT -7)   
Zena, your post is the second time I've ever heard the term NERD instead of GERD. I'm waiting for the biopsy results from an upper endoscopy now. Supposedly there were no signs of inflammation. But I WAS having symptoms (which could have been aerophagia from too high pressures settings on a bi-level PAP). The gastro told me I had NERD, the first time I'd heard the term.
My computer says I need to upgrade my brain to be compatible with its new software.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/4/2010 11:41 AM (GMT -7)   
May, I really just have a lot of stomach pain and arthritis.  My first GI did test after test (twice!) and couldn't find anything.  They removed my gallbladder, they told me it might be IBS or all in my head, etc.  He finally told me to see another GI, who did the capsule endoscopy and Promethius test and dx me right away.  I switched again to a GI who has Crohn's himself.  He's told me that he has patients that have Crohn's who never even have any gut related symptoms...that it only presents as arthritis or other problems.  I don't have D very often and have actually had C for most of my life.  My blood work normally doesn't show any inflammation, even when my joints are swollen from arthritis and it's obviously there.  Because of this, they almost didn't allow me in the clinical trial for Cimzia because that doctor questioned whether I even really had Crohn's when he saw my medical history and all of the tests that never showed anything.  So, I know it was hard to dx me...took 8 years...because I'm "atypical." 
 
ChronieToo, I had never heard of NERD either and had always seen it written as GERD in my medical charts/tests results until my last endoscopy.  On that report, he put NERD and I had to look it up to see what it meant!  Maybe it's a newer term...I don't know.   
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 6/4/2010 3:58 PM (GMT -7)   
My GP checked my gallbladder and that's fine. I'm guessing I'm going to get the IBS label here shortly.

That must be nice to have a GI with Crohn's. It would be so much more personal to them. Wish they advertised stuff like that. :)

If things get worse in the future, then I might go to someone else. Nothing wrong with a fresh pair of eyes. Plus I think my being not presenting with typical Crohn's symptoms is skewing his perception perhaps.
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