Great web presentation on risk of meds

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Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 6/1/2010 3:12 PM (GMT -6)

This is through CCFA. Great explanation of the balance of risk vs. benefits for the medications we take.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Regular Member

Date Joined Apr 2007
Total Posts : 208
   Posted 6/1/2010 6:40 PM (GMT -6)   
thanks for posting this.

Regular Member

Date Joined Apr 2010
Total Posts : 69
   Posted 6/1/2010 6:54 PM (GMT -6)   
Thanks for posting!!! Great info!
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently moving onto the "big doctors". AKA: Transferring out of Children's Hospital of Wisconsin.
Doing lots of testing now that I have a new doctor:
Just started B-12 injections ( monthly)
Currently on: Purienithol (6MP), Calcium, and Multi-Vitamin
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)

Veteran Member

Date Joined Mar 2007
Total Posts : 1466
   Posted 6/1/2010 8:08 PM (GMT -6)   
Thank-You for posting this. It's very well laid out and informative.
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 6/2/2010 2:54 AM (GMT -6)   
  scool Yes it is very well laid out and properly puts many fears into perspective. I learned alot, thank you so much! :-)
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

Veteran Member

Date Joined Apr 2006
Total Posts : 1884
   Posted 6/2/2010 4:23 PM (GMT -6)   
Thanks. The doc is a fan of the top down approach -- more powerful but also more toxic meds - and it shows. He has been promoting versions of this presentation for a number of years, now. Some interesting information but doesn't tell the whole story - for instance, fatal and irreversible bone marrow suppression due to treatment with meds like 6mp.
Am not dazzled by the metrics (only one in ten thousand!) and my fears are not allayed. Fewer than two in one thousand people in the US get Crohn's and yet we have Crohn's in my family so do we feel lucky enough to roll the dice and try 6mp? Not really.
Have had first-hand experiences with this doc and am not a fan.

Post Edited (njmom) : 6/2/2010 9:20:18 PM (GMT-6)

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