Hi, Susan. Welcome to the forum! I'm sorry to hear about
what you are going through. I did not have any problems like that while on Remicade, but I was supposed to be in remission clinically while on Cimzia, then Humira, then Cimzia again but still having tons of arthritis problems. Everything I read said that if your gut is in remission that the arthritis should be too, but that's not the way it has worked for me. Now I think both are flaring, after about
4 years in "remission." I have gone from working out at the gym for about
11 hours a week to not stepping foot in the gym for the last few months. I completely understand that it makes you feel like you aren't yourself and others will notice that as well. I hate to think that this is how my life will be going forward, as I always thought that I would get over this and get back to how life was, but it's been a year and a half now of continuous arthritis flare with no end in sight. All we can do is take it day by day and have hope that things will get better. I hope you get some answers soon as to why you are still feeling so badly.
Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety. Too many meds to list them all. =)