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Blondie11
New Member


Date Joined May 2010
Total Posts : 5
   Posted 6/3/2010 9:44 PM (GMT -7)   
Today I went to my GI and was told that my Remicade would eventually stop working and that we need to start looking into alternative treatments when it does.  He gave me a brochure on Cimzia.  It is a injection given under the skin.... I was just curious if anyone has tried this and what their response has been to it?  Any input would be appreciated....

Diagnosed with CD 2006....currently on Remicade (so far so good)...


mirowpl
Regular Member


Date Joined Nov 2009
Total Posts : 380
   Posted 6/4/2010 3:11 AM (GMT -7)   
i was on cimzia for 14 months. had to stop due to a blockage then surgery. My Dr does not want to say, yet, that cimzia failed me as he thinks we might have started it too late. I went from Asacol to cimzia after a colomoscopy showed dramatic inflamation and my anemia was getting much worse. I had not side effects from cimzia. i hope this helps.

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/4/2010 5:22 AM (GMT -7)   
I took it while it was still in clinical trial stages and am on it again.  Until recently, it had kept my Crohn's in remission and I have been on it for a total of 2 years.  It has not helped much with arthritis, though.  Also, it worked great doing the loading doses but wears off too soon once you go to monthly shots.  My docs say they can't get it approved more often (I got it every 2 weeks on the clinical trial and it worked much better that way).  We are currently doing half a dose (one shot) every 2 weeks instead, but it still isn't working great.  My rheumy said none of her RA patients are seeing great results once they go to the monthly shots.  But, for the year that I was on the clinical trial getting a full dose every 2 weeks, it was a life saver.  I hope it works for you!

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/4/2010 8:33 AM (GMT -7)   
Zena, I'm sure I've seen posts on here by people who are taking Cimzia more often than every 28 days and in fact, my rheumatologist offered to rewrite the prescription so that I would take it every 21 weeks. Fortunately, the problems with arthritis pain have resolved for the most part - or are at least more tolerable than when I was on Humira.

Blondie: I've been on it for a year and have no problems with side-affects and doing the injections myself. A nurse was dispatched to my home to watch me do the shots after a little training session and I've had NO problems.

Best of luck - don't be afraid to try something different and make the switch before you go into a major flare would be my advise!

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 6/4/2010 9:00 AM (GMT -7)   
cleo, you are correct that others on here get it more often.  Many get Humira weekly but I have asked over and over and been told by both my GI and rheumy that they cannot get it approved more often, regardless of what type of insurance I have.  They both say they have tried with several patients on a variety of insurances and have always been denied.  I don't know what the issue is.  I've told them that I know others who get it more often.  When I first asked my rheumy about the Cimzia, she talked to the drug rep and was told that it probably wouldn't get approved by insurance more than once every 4 weeks but that if a doctor had some samples they could choose to give a patient an extra "boost" once or twice.  That being said, he said that if a patient needs that extra boost on a regular occasion, then the Cimzia really isn't working for them and they need to be on something else anyway.  I asked her again about it a couple months back and she said the new research is showing that Cimzia is actually less effective when taken more than 400 mg once every 4 weeks.  I don't believe that one bit because it worked so much better for me when I was getting 400 mg every 2 weeks on the clinical trial.  But anyway, for some reason, everyone in the world other than patients of my two doctors can get both Humira and Cimzia more often. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/4/2010 9:48 AM (GMT -7)   
Zena, WOW - that's very interesting. My next call would be to the company - UCB, UBC or whatever it's called :) "Probably" won't get approved is not good enough for me!

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/4/2010 10:04 AM (GMT -7)   
I went from Remicade to Humira to Cimzia. I had good success with all of them, though I was only on Cimzia for about 4 months before we decided that it was too far gone and I needed surgery. I know it was working, though, because my joint pain and other manifestations disappeared during that time.

Humira and Cimzia are both injections. Humira burned like hell so I preferred Cimzia, though the Cimzia is very thick and takes quite a bit of pressure to get in. I didn't think it hurt at all.

No side effects from it at all.

Blondie11
New Member


Date Joined May 2010
Total Posts : 5
   Posted 6/6/2010 10:01 PM (GMT -7)   
Thank you all for your input...... I will keep my fingers crossed that it works for me when we decide to go that route :)

Diagnosed with CD 2006....currently on Remicade (so far so good)...

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