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downgarden
Regular Member


Date Joined Jan 2010
Total Posts : 74
   Posted 6/5/2010 12:10 AM (GMT -7)   
According to Borody, crohn´s are caused by mycobacteria.

They successfully treat the infection with a cocktail of antibiotics, its called anti-MAP treatment.
I know they do this in Australia, UK and Czech.

Another way you can do it is by implanting new stem cells into you stomach which is´nt damage by the bacteria and therefore strong enough to defend itself against it.
They have done this on a lot of places. I know Hospital Clinic in Barcelona was one of the first to do it.


Thou if you like me live in a more socialistic country (Sweden:)) you probably have to wait a few years before these new treatments will come available.

Until then you can life a near to symptom free life by eating helmantic worms.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 6/5/2010 2:30 AM (GMT -7)   
 
Yes, but according to other gastroenterologists/researchers etc other factors are the 'main' ones in causing crohn's. Some people have found certain things to be effective whereas others have done the same thing with no effect at all.
It is great that there are people working tirelessly to try and get a cure/prevent this disease but none of them appear to concur 100% with what is the way to go. Until this is achieved I think it is a fair comment to say that the consultants mainly go down the medicinal route to try and keep this disease somewhat under control.
I believe (but I could be wrong) but here in the UK it is not standard for people to be treated with the anti-map treatment.
I know that the stem cell treatment is still under trial but unfortunately it is not a simple case of implanting new stem cells in your stomach. The patients involved in the trial have to undergo a lengthy process (somewhere up to 2 years) which involves major chemotherapy treatment and at the end of it they may still not be cured. The thought behind this treatment is that the master cells are extracted, cleaned up and replaced in the bone marrow enabling the immune sytem to re-boot.
 
One day the answer will be found............

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/5/2010 6:59 AM (GMT -7)   
We have had many discussions/debates on this and I think everytime we have come the same conclusion. NO ONE knows what causes Crohns, there are just too many possibilities. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

downgarden
Regular Member


Date Joined Jan 2010
Total Posts : 74
   Posted 6/5/2010 11:14 AM (GMT -7)   
Yeah, the stemcell can give some side effects in the same category as the immunosupressive drugs.


Vixen, do you know the name of the hospital in UK giving the anti-MAP treatment?

Thou I just wished there were at least one person on this forum how actually tried, any of these alternatives.
Im going to start with the worms myself next week, until I get a appointment for the Anti-MAP treatment.

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 6/5/2010 11:30 AM (GMT -7)   
hey guys!
I asked my gastro if I could try anti-Map, and he said yes! I've been on clarithromycin and rifampin for approx 1 month, am still waiting on the clofazimine as its a special access drug in Canada :) The wheels are in motion. I haven't noticed a diffeence yet, but was expecting it to be at least 4months before noticing a diffeence.
I will certainly updat e as I have more to share.This is the first treatment I've ever had though that I am hopeful may work. I just had a feeling about Humira and remi that they wouldn't work- and they did nada for me.

I feel so lucky my gastro treats me like an equal and is willing to go down this road with me :)
30 years old, dx with Crohn's in 1998. Currently on Imuran 100mg/day, Flagyl 1000mg/day
and Cipralex 10mg/day for anxiety. Just got off Cipro which was my drug for last 4 years.
Perianal fistula, and 2 more suspected. Crohn's only at end of colon, cecum. Remi and asacol did NADA.


jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 6/5/2010 7:59 PM (GMT -7)   
have have you guys seen the results of the randomized controlled trial of the anti-map cocktail? the long term results are not very good at all.
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 6/6/2010 1:09 AM (GMT -7)   
 
downgarden
Sorry I don't have a definitive answer for you. It may be worth you contacting either Prof Herman-Taylor of St George's Hospital Medical School, London(has/is doing plenty of research into this) or Google Tim Page Crohns-he is another who strongly believes in the MAP theory and may be able to point you in the right direction.
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