Side effects a month after stopping Pred?

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80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/5/2010 8:56 AM (GMT -7)   
Hi everyone,
I finally got off pred a month ago after being on 40 mg for about 11 months (yay me!)...I'm doing ok symptoms-wise, but I'm just wondering how long it will be until my pred side effects go away. I know no one really knows, but just posting your experiences would be great.
 
I have been losing my hair for a few years now (may be a side effect of drugs, malnutrition, or psoriasis of the scalp...no one is sure). I am now off all drugs and doing much better nutrition-wise because I had surgery. I was hoping my hair would stop falling out. It has stopped a lot but it is still falling out some...my big annoyance is that it is growing back BLACK, and not as fine as the rest of my light brown hair (only in my hairline and eyebrows, not anywhere else). I thought that was due to the pred, but now it's been a month since I stopped it...could it still be from the pred? Should I still hope for it to stop being so weird, or will it be like this for the rest of my life? :/
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/5/2010 2:34 PM (GMT -7)   
Hmmm. This is just a wild guess, Stephanie, but can you discuss this with your gynae (or regular doctor if you must) and ask if it's possible that your hormone balance has changed? There might be a blood test that can be done for that, and that might account for the darker hair.

I know pred can mess with hormones, but I don't know for how long that can continue after stopping the med.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/6/2010 7:22 AM (GMT -7)   
I think by now the Pred is out of your body. I think that you are just growing in new hair and its coming in differently. I know chemo patients often talk about when their hair grows back, its curlier or straighter than it was. By the way, you really should be on maintainence meds. Just because you had surgery doesn't mean the Crohns is gone, there is no cure. I didn't take meds after my first resection and ended up having to have another surgery only 3 years later. I now only take Asacol to maintain my Crohns and have been in remission for the past 5 years. I don't want you to suffer again needlessly. JMHO
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 6/6/2010 3:23 PM (GMT -7)   
Thank you Gail. I know, I really should be on maintenance meds. I am discussing it with my dr. the problem is that I have tried just about everything (see my sig) and they've all stopped working. In addition, my dr isn't sure if I have UC or Crohn's.
Stephanie, 28 years old
Diagnosed with Crohn's Colitis March 2000
Possible diagnosis of IBS-D
Total Proctocolectomy and Permanent Ileostomy 3/18/10!
 
Tried: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Imuran, Rowasa Enemas, Colocort Enemas, Psyllium Seed Powder... Tried Probiotics: Align (with no change except bloating) and VSL #3 DS (AWFUL diarrhea).
 
Currently taking: Prenatal Vitamin, Vitamin B 12 Complex, Biotin, Vitamin D, Calcium, Flomax (for urinary retention). 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/7/2010 6:37 AM (GMT -7)   
That was before your surgery, maybe you need to give one of them a try now and maybe they will work better this time. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 6/7/2010 8:06 AM (GMT -7)   
My hair continued to fall out for about 6 months after stopping prednisone. It will stop, but it takes awhile.
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 developed anastomostic leak and EC fistula. 2nd Resection, April 1, 2010-to fix leak and fistula-feeling fabulous now.  Taking 100mg Imuran for maintenance. 


dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 6/7/2010 12:56 PM (GMT -7)   
Hi: Just wanted to let you know that my hair also continued to fall out for 6 months after stopping pred. Saw a dermatologist for it, and she said the timing of it all made sense. I was getting really scared, but it finally did stop.
40 years old female
Salmonella - 1996
Crohn's Colitis in entire colon - Diagnosed in 2000
Hypersensitive/Allergic to Asacol/Pentasa/Budonside/6MP/Immuran/Humira/Remicade, and more
Past meds that worked: Cipro, Prednisone

Daily: Folic Acid, Omega 3, Multi-Vitamin, Cipro 1000mg, yummy homemade yogurt

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