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Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 6/5/2010 10:03 AM (GMT -7)   
Hi everyone, I'm new and just wanted to introduce myself.
I'm 23, Married, and have a wonderful 3 y/o little girl.
I got diagnosed 3 years ago, but obviously had had it for at least 9-10 years before, just thought I was "weird" and ignored all the stuff going on with me until I couldn't anymore.
I've been fighting to get to remission ever since, nothing has really worked yet :(
just got fired from my job in March from being sick just weeks after buying a house, skull
Just trying to find some poeple like me to feel like I'm not alone with this, thanks everyone!
 
Tara
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance at 11 y/o
Misdiagnosed w/ IBS @ 16
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP,about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o


newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 6/5/2010 10:31 AM (GMT -7)   
Welcome!  This is a great place filled with LOTS of people who understand!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
Crohn's diagnosed 11/12/09
Cytomel and Levoxyl for thyroid.  Supplements for all else as per my ND.


artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 6/5/2010 10:35 AM (GMT -7)   
hey tara, welcome to this forum, lots of smart people here, I lost my job,(the one with ins.) due to my cd, I had called in sick a lot and finally they were watching me, hopeing that I would do something wrong, and i did, which was due to the med's I was on, so yea you are not alone, I applied for ssdi, but I will be 60 this month and I have had cd for 40 years, many surgeries, a few obstructions which led to surgery. I go see a shrink today that ssdi is sending me to before they deem me 100% disabled. then at least i will get medicare ins.good luck to you in finding remission, i had surgically induced remission a few times

artist guy


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/5/2010 3:34 PM (GMT -7)   
Hey, Tara! Sounds like you're in some dire straits... Have you gotten a new job... or is your husband or anyone helping you out with the whole house situation? I mean... I imagine ya still have to make payments and pay utilities and such...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 6/5/2010 8:22 PM (GMT -7)   
hey Tara.. welcome to the group... I also lost my job..my fmla ran out and they released me...

so sorry you have to be here but this is a great group...we will survive this together...

hugs.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Imuran, Prednisone, Colestipol. propranolol, vivelle patch

Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol, Prednisone, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


FogOverLa
New Member


Date Joined Jun 2010
Total Posts : 1
   Posted 6/5/2010 10:53 PM (GMT -7)   
Hi Tara! I was so moved by your story I made this my first post ever.

I'm 29 and a male. I don't even know if I have Crohn's, only that I have a fistula leading from my Small intestines to Bowel. I go into Surgery June 15th for a Bowel Resection. I pretty much have lost my job as I will be out another whole chunk for recovery that they won't tolerate. I was 2 months shy of being able to have health insurance through my job so the 2 three day hospitalizations mixed with abscess aspiration and when it recurred I had a drain installed (Today marked 42 days of living with this) are all uninsured, so I understand how heavy this can seem.

My only advice is seek the comfort of friends and family. I am desperately trying to do the same but I have had so many of them leave this town. Please Tara try to keep your chin up, I believe positive thinking is one of our best defenses against the malaise of any chonic disease.

My heart goes out to you and your family.

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 6/6/2010 2:10 AM (GMT -7)   
Welcome! This is a great forum with lots of information and people who really care!
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/6/2010 3:23 AM (GMT -7)   
Hey! Tara, Welcome aboard to this fab forum you will get lots of friendly advise and support here. Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/6/2010 7:09 AM (GMT -7)   
Hey Tara and FogoverLA welcome to the best Crohns forum out there, only sorry you both have to be here. You will find alot of support here so stick around, you just may make some new and understanding friends here. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Love_Art_Baby
Regular Member


Date Joined Jun 2010
Total Posts : 59
   Posted 6/6/2010 7:57 PM (GMT -7)   
Thank you everyone for all the replies and support!! Yes my husband uses everything he makes for everything, and still have to go to my Mom & Dad on top of that( which I HATE)
I had been trying to go to get my RN, I was a Nurse Aide when I got fired, which with the Chron's and the Arthritis that has now come with it, I guess I can no longer do that, I can't squat, or lift or do any of the things I did before, I just got certified in Phebotomy, so hopefully I can get a new job I can actually do? I hope?!
My husband doesn't get insurance yet with his job, he just went from contract to full time and won't be eligible for another few months. So mom & dad are paying for my COBRA, that stuffs expensive!!! and I can't have a lapse with a pre-existing condition, so I have no choice...
Again, thanks everyone!!! smilewinkgrin
23 y/o
Diagnosed in 2007
Misdiagnosed w/ Lactose Intolerance at 11 y/o
Misdiagnosed w/ IBS @ 16
3 hospital stays in the last 6 months
been on Asacol, Pentassa, Remicaide, Humira, Prednisone on and off (I think it's the devil) and lost more random things.
Right now 6MP,about to start Cimzia, just went off prednisone AGAIN, just stopped Humira
 
Married with a 3 y/o

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