Hello I am new here.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 6/5/2010 6:17 PM (GMT -7)   
Is IBD the same as Crohn's? I have inflamation in my elbow as well and migraines. I was told that I have IBD and had a high inflamitory/SED rate. Been taking Prednisone for a month. I have had many past surgeries over the last 2 years for my intestines due to perferation during ERCP and septic, ileostomy (which was reversed).  I have had a long nightmare but due to this perferation and spent 9 weeks in the hospital with 21 more days off and on due to obstructions and resection.  Any way, hello. I will post more another time. I know I need to find out more and go to a specialist just pretty freaked out right now with all I have gone through over the last 2 years.
Lesa

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/5/2010 6:55 PM (GMT -7)   
IBD=Inflammatory Bowel Disease...yes Crohn's disease is one of them including Ulcerative Colitis...however this is a bit different from IBS=Irritable Bowel Syndrome...neither of which is a picnic to have.

Welcome LesaJT...I am sad that you have to have this disease...we are here to answer any questions...listen to anything you may have to say, scream or cry, or smile...I am so sorry that you have had such a rough time...
"The earth laughs in flowers"


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/5/2010 8:07 PM (GMT -7)   
Welcome to the forums
sorry for the reason
you can also check out the Ulcerative Colitis forum here for some answers
glad you found us
tk care n stay with us
lyn
                  
 
        
         ..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic
             Crohns.. PG ..Seizures..Neuropathy..A/P...Fibro..Deaf 
        medications..lyrica..diazepam bid..ativan..prn...trazadone at hs..folic acid    
                                    mtx..potassium..dilantin..pentasa..lomotil..val acid
                                      DONATE TO www.HealingWell.com
                                       I AM STRONGER NOW THAN EVER
      TRUE FRIENDS WILL B THERE FOR YOU..SUPPORT YOU THRU EVERYTHING
                                                      LYN
                                                         
                                  
 
 
 
 
 
 
 
 
 
 
 
 
                                                                                                      


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 6/5/2010 8:20 PM (GMT -7)   
welcome Lesa.. sorry you have to be here but this is a wonderful supportive group...

hugs. I am so sorry you have been through so much...
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009

Diagnosed with Crohn's March 2010- Mayo Confirmed May 2010
Imuran, Prednisone, Colestipol. propranolol, vivelle patch

Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol, Prednisone, Pentasa
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/6/2010 3:28 AM (GMT -7)   
Hi Lesa, and welcome! you have gone through a lot but, you have come to the right forum for great friendly support and advise. Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/6/2010 7:06 AM (GMT -7)   
Hi Lesa and welcome to the Healingwell Crohns forum. You will find alot of supportive and loving folks here. Sounds like you have been thru the ringer. I am a little confused though thru everything you have been thru, that you don't have a GI doctor on board. You really need to be followed by a Gastroenterolgist (GI) and on some kind of maintenance med too. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 6/6/2010 8:43 AM (GMT -7)   
I just started taking the pred a month ago and wanted to start there first. I have a deap fear of doctors and going to the doctor and have been passed around our small town. The GI docs here dont see you as a person and I can not realy afford much and asked my doc to keep me in house with him for now. The GI docs casued much of my problems with not diagnosing the problems. I am not a good advocate for my self and would rather sit at home and be miserable then deal with these doctors and the hospitalizations thay have put me through. The 84 days in the hospital and almost dying has caused a huge amount of anxiety and depression and I wll not have a scope done, sicne that caused the perferation. I usaully try to find ideas and ask the doc to try them. I just got the diagnosis about 2 weeks ago. Prior to that doc was calling it IBS, scar tissue and adhesions. Now I have inflamed intestines too. The experiences in the hospital caused me some serious emotional and mental health issues. Untill I get SSA I cant afford to spend much money and not sure what else they can do for me. We have mediocre insuance but too many medical bills alfready gto try and pay off. The Pred is making me aggitated and enraged or crying easily. But has help some.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/6/2010 9:02 AM (GMT -7)   
Lesa I understand your anxiety has many of us with this darn disease have developed it with our Crohns too. But....this is a chronic and incurable bowel disease which much be treated at all times. The Pred is a good start, but its also a good time to start a maintainence med with it. Usually the maintenance meds take time to kick in, thats why its good to start them with the Pred to help out until they kick in. You could have even more serious consequences without maintenance meds. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 6/6/2010 10:43 AM (GMT -7)   
What is a maintenance med for IBD? I dont know what to start looking into? I currently take a lot of meds for different diagnosises. I need to list them in my signature, I guess. I feel so aweful I cant seem to get things done or motivated to seek help. I guess I need to ask my husband to step in and help me figure all this out since he is an RN. I gotta get off the pred. its making me too moody.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/6/2010 1:59 PM (GMT -7)   
Hi! Welcome to the forums!
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.


LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 6/10/2010 4:12 PM (GMT -7)   
You all list all kinds or meds but I dont know what is for the IBD? I need to ask my doc about what treatments. I see him MOnday and my husband is going with me. Please help. I dont know what to do or ask.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/11/2010 9:48 AM (GMT -7)   
Hmmm...to start off...it might help reading this posting...it might help....

www.healingwell.com/community/default.aspx?f=17&m=1144027

So let's take Wolfie's post, for example...The Asacol is a traditional maintenance 5-ASA medication...the Humira is a more recent medication, but has been considered by some a a maintenance Medication, but may also be used to induce remission, and is an anti-TNF medication...the FolicAcid, Multivitamin, 1000mg Calcium, Vitamin D, Monthly B-12 injections may be used to treat deficiencies in the diet either caused by disease or some of the medications... Pepcid Complete, Questran, may help treat some of the symptoms...(I hope I got this right, please correct me if I don't)...

I hope this helps a bit...I know there is a lot of info...but also do some searches here...look at all the posts, you can search this site too...and just keep asking questions...
"The earth laughs in flowers"

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 7:11 PM (GMT -7)
There are a total of 2,734,405 posts in 301,211 threads.
View Active Threads


Who's Online
This forum has 151329 registered members. Please welcome our newest member, OleMiss1990.
352 Guest(s), 9 Registered Member(s) are currently online.  Details
whatdoigotDOC!, TOOTY, chrisp1, Huddie, time2reclaim, aloha234, The king, trumpet123, Annie88


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer