Alternatives... advice?

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sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 6/8/2010 6:16 PM (GMT -7)   
Ok, so I heard that tumeric tea and mangosteen are great for inflammation.  But when I googled it I found a lot of websites and I'm not sure what brands or websites are reliable.  Has anybody purchased and had good results with either of these two?  Thanks in advance! 
 
Stef
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 6/8/2010 6:18 PM (GMT -7)   
I tried several kinds of turmeric and none of it seemed to make any difference. It did seem to burn a bit on the way out to boot.
Cimzia, Asacol


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 6/8/2010 8:41 PM (GMT -7)   
I don't know about turmeric or mangosteen - but I was wondering what causes the pain in your leg (as per your signature)?

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 6/9/2010 7:46 AM (GMT -7)   
j_web said...
I don't know about turmeric or mangosteen - but I was wondering what causes the pain in your leg (as per your signature)?
Well it all started with prednisone last year.  I never had any leg pain before this.  They said I had steroid withdrawal with atrophy and that it should resolve with quitting prednisone.  So I weaned of a short spurt of prednisone (4weeks starting @ 40mgs) then was put on remicade to help my crohns flare.  Since then (about one year ago) I have had horrible leg pain.  It may be a side effect from the remicade or something else.  We just don't know yet.  I did several blood tests last week with the Rheumy and we'll see what that says.  My dr says if nothing shows up it is probably the remicade and I will have to switch to Cimzia.  They are finally starting to listen to me.  We'll see what happens!  Thanks for asking!
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 6/9/2010 8:31 AM (GMT -7)   
What kind of pain? Muscular? Nerve? Stabbing? I hope you can get it figured out.

I have (supposedly) sacroiliac problems that manifests as horrible pain/weakness throughout my right leg, and sometimes it's bad enough that I can't walk, though normally it's just a bit annoying. I'm going to a pain clinic later this month for an MRI or whatever they think I need to see if we can find out for sure what's going on with it.

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 6/9/2010 9:13 AM (GMT -7)   
What's weird is it is all of the above pain: stabbing, tingling, soreness, shooting, joint pain, muscle pain and nerve pain. Its very weird to describe. I've had trouble explaining this to drs. bc usually all of those pains do not occur at once. They are also migrating, jumping from one leg to the other, or different parts of the same leg. Its just really weird and freaks me out because I never had leg pain before this. Sometimes I think I might have terrets syndrome, bc I'll be fine one minute and the next screaming curse words on the ground. JJ. My mother-in-law says I also sound like i'm having a baby. That's how bad it gets.
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


j_web
Regular Member


Date Joined Nov 2009
Total Posts : 205
   Posted 6/9/2010 10:39 AM (GMT -7)   
I have difficulty explaining mine too, because it's not constant. Sometimes I wake up with a sore hip, other times I'm fine one minute and the next I stand up and can't move - and I cuss when that happens too (I actually got stuck standing up last week and it took over an hour of standing on the other leg plus 2 vicodin to be able to walk back to the sofa). If I don't move it or try to walk, it isn't so bad - but it's very hard to remain motionless. The worst is when I need to use the toilet and CANNOT sit down, I pop a pain killer and hope I can wait it out. Mine seems very related to my Crohn's, for instance, when I tried to step down from 10mg prednisone to 5 mg prednisone last week, that's when I had the leg issues. Sounds like yours could be nerve-related too - probably pinching something in your back and it's radiating to a leg. I had no idea that my problems were in my back until a doctor pointed it out to me. I hobbled into an immediate care place several years ago (before I knew I had CD), the doc held my hips with thumbs on each side of my sacrum and asked me try to touch my toes and noticed that half of my sacrum wasn't moving like it should. If nobody has done that to you yet, try it yourself, just in case! Good luck, the pain sucks.
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