Having tough time with recent flare, following 5 mo on steriods after obstruction

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champagnekindofgal
Regular Member


Date Joined Jan 2010
Total Posts : 221
   Posted 6/8/2010 7:55 PM (GMT -7)   
Hello all:
 
I could use a group hug ... and maybe some information or some feedback if you can relate to my experience.
 
I've been diagnosed with Crohn's for about 6/7 years.  Have had mild /moderate symtoms up until the last year. moved from CA to IA.  This winter I think I got the swine flu and all hell broke loose.  Six weeks of bad abdominal pain, D, vomiting bile, I ended up in the hospital with a bowel obstruction.  Five months on steriods, I went off. As i went off, my symptoms of throat and mouth sores became more prominent as did my lung and asthma symptoms.  I ended up with a DX of Bronchitis and went on a short 5 day burst of steriods for 5 days and cleared all up.
 
then all hell broke loose again.  Throat sores and scabs changes places but retuned as did lung irritation and coughing.  Then, my entire mouth broke out in ulcers (not to mention vuvla ulcers increasing in the last 2 months which I keep forgetting to mention to the Dr.!)  in my mouth with red round circles looking like cobblestones on the roof of my mouth. Also, sores in my boogey right ear.  I've had sores (no one knew what they were then) on my scalpe and then an abscess on my lower back in the past.
 
Anyone have any ideas????
L
44-single mom diagnosed with Crohn's 2004 via pill camera    6MP kicked into remission (along with modified diet) so went off in 2006.
 
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
 
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/9/2010 8:35 AM (GMT -7)   
First off BIG HUGS!!! I think maybe you might need to go back on the dreaded Pred again. Maybe you need to be on it longer with a slower taper. I hope you get feeling better soon, I know how miserable it is to be so sick. ((((HUGS))))
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/9/2010 9:17 AM (GMT -7)   
Oh my, I'm sending you a big ((HUG)) too. I'm in my own flare (see my other current thread) -- but no sores, thank goodness. Sounds awful. My advice -- tell that doctor EVERYTHING (even the vulvar sores) and hang in there.

We're similiar ages - I'm 47 and wasn't diagnosed til 44. Also a single mom. GOOD LUCK!
Official dx September 2007.
Medications: 6 mp, Pentasa, Prednisone (tapering), Prilosec, Synthroid.
Supplements: probiotics, calcium, vitamin C, vitamin E and a multi-vitamin.
History of hypothyroid (dx 2004), and gall bladder surgery (1997).
44 years old; single mom to three wonderful kids, ages 9 to 15.

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