Man... I hate Crohn's even when I'm feeling well....

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Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 6/9/2010 10:48 AM (GMT -7)   
Here's the deal... June 24th, my college's Project Succes program (a program for first-generation, low income, and/or disabled students that does various things such as take us on cultural trips, offer tutoring services, offer academic advising, etc.) is having a cultural trip to the Fox Theatre in St. Louis to see Wicked (which will be most awesome)...

What is not most awesome is that they will be providing us lunch.... at this place... Which is my worst nightmare and probably a few other Crohnies' worst nightmares as well...

http://www.fountainonlocust.com/fountainonlocust.com/Menu.html

I'm not angry at the Project Success people... It is awfully nice of them to be providing lunch to the lot of us... It's just... well... The menu is really sucky... :(.... I mean.... The food all looks delicious and everything, but that doesn't help you any if you can't eat any of it because it will make you sick...

If I can't request my food items to be customized so that they can be safe for me to eat (some restaurants will do that, but some others don't), then, I'll probably have to bring a packed lunch....

It's times like this I really miss being able to eat whatever I want... :(
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 6/9/2010 10:52 AM (GMT -7)   
Awww bless you're heart. I know what you mean though!

BTW welcome to St. Louis, I live 20 mins from there. The Fox is awesome!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/9/2010 11:11 AM (GMT -7)   
Cool... :)... I don't live very far from St. Louis myself, obviously... Of course... Due to my lack of transportation and limited finances, I don't get to go out very often... So, I really am looking forward to the trip...

I'm just... wary about the restaurant... Either way it goes, I know I will be extremely envious of all the people who'll order ice cream... :(... Or those hand-made chocolates....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8566
   Posted 6/10/2010 7:35 AM (GMT -7)   
How sick would a meal with ice cream at the end of it make you? How soon after the meal will you be able to go home? As you don't often get to go out, maybe you could use this as an excuse to treat yourself and forget about consequences. But if you have to spend the rest of the day with the group afterwards, perhaps that's not the best day to treat yourself to a lavish meal that you rarely get to experience.

Sometimes you'd be surprised, though. I've predicted bad outcomes from restaurant meals which have left me feeling no worse than a meal at home would - it's not always possible to predict how you'll react in advance. I personally find that it's the amount of food which makes the biggest difference; there's a fine line between being uncomfortable but able to function and being a comatose, groaning wretch. In restaurants which serve large portions there's no easy way around this, except to leave half of your plate (I hate doing this) or to share. Another tactic is to leave out a course such as a starter (or dessert, but I'd rather miss out on a starter than a dessert... <_<.)

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/10/2010 10:28 AM (GMT -7)   
Ice cream is too much....

I can handle a tiny bit of butter... I can handle yogurt (as long as it is not frozen), and I can handle a small amount of milk in certain baked goods (A bowl of milk with cereal is too much, though, I know that)... I'm not sure where the cut-off line is, but I know even a small ice cream cone will do me in... I don't handle dairy very well at all...

As for how long, it would take me to get back home, that would probably depend on the traffic up in St. Louis.... I'd say... probably about 40 minutes.... And considering that ingesting milk products makes me very nauseous... and the fact that I get car sick easily... well... It would NOT be a good combination....

And anyway, it's not just the ice cream.... Pretty much everything on the menu is smothered in cheese.... is spicy.... contains raw vegetables (I used to be able to handle raw fruits and vegetables without much trouble, but now... They really tear me up *it literally feels like I'm being ripped to shreds inside*)... Or contains vegetables which will most likely contain seeds... Which I know I can't handle based on the fact that I tried eating a small bit of blackberry cobbler (which really made me sick)... and I tried eating some strawberries, too (which didn't hurt as bad as the black cobbler did, but it still hurt enough to make me want to avoid them... and I used to be a strawberry addict)... I thought if the seeds were small enough, they wouldn't bother me... but... I was wrong... :(

It really just isn't worth the pain (well, dairy usually doesn't cause much in the way of pain... some gas pain... it mostly just makes me really sick to my stomach)... I mean, I really love food... if it didn't bother me too much, I would wolf it down without a second thought.... But I know the problems it'll give me... and that scares me... I really hate the thought of being in pain...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


MissCris
Regular Member


Date Joined Jun 2006
Total Posts : 321
   Posted 6/10/2010 2:49 PM (GMT -7)   
That really sucks and I totally understand. I have been feeling pretty well because of the steroids but I still have to be careful about what I eat. There were a few times last semester that we had events for my internship where they provided lunch and it was always "healthy food". Tons of salad and fruits so I would end up eating nothing or just eating rolls. It can be frustrating but at least if you know what they are serving ahead of time you can bring something with you to tie you over like a bagel or something.

How awesome that you get to see Wicked!! I am so jealous! I have been wanting to see it for so long. I hope you have a great time!!!
"Be ashamed to die until you have won some victory for humanity" ~ Horace Mann


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/10/2010 3:32 PM (GMT -7)   

firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 6/10/2010 4:09 PM (GMT -7)   
I feel your pain. Even when we're in 'remission' we still have to do research on restaurants and plan ahead. Kind of like a  diabetic does.

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8566
   Posted 6/10/2010 5:31 PM (GMT -7)   
I guess that does rather suck... :-/

It's weird. I know I have severe disease but it doesn't seem to make much difference what I eat. I do suffer, but in a different way to most Crohnies, so it would seem. *scratches head*

Well, I've run out of good ideas. I guess you might have to bring along a packed lunch after all. I hope you at least enjoy the company and the show!

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/11/2010 5:07 PM (GMT -7)   
Boy I hate restaurants like that, everthing looks and I'm sure tastes great. Me I'd order the roast beef on the bagette and leave all the fancy smancy stuff off. That and a little margerine is safe food for me. I don't know how many times a beef dip or beef sandwich has saved me from making a bad mistake. Rob
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

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