I've noticed a slight worsening in my condition since I had my last Remicade infusion on May 24th. I'm due for another one on June 17th.
Why do people get worse like this? Does Remicade take a long time to wear off, but eventually wears off?
What is the Remicade actually doing to our bodies? Can anybody explain it in layman's terms, so that I can understand it enough to explain it to my family?
I still think it's an amazing drug, but I just want to understand it better.
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
The surgeon said it is inoperable and so I start Remicade on May 7th.