Endoscopy- decisions decisions

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meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 6/10/2010 3:36 PM (GMT -7)   
 
 I am getting an endoscopy on June 18th because my doctor believes that the crohn's must be in my small bowel.I'm taking nexium and domperidone,those meds work well and I'm afraid that he won't see the disease.I would like an ''official,confirmed by biopsy, dx'' of something ....I've been dx'ed and undx'ed a few times already; this, by various doctors
I'm contemplating idea NOT taking my nexium and domperidone a few days before the scope.Maybe the disease will be easier to see if I do this????
 
What would you do
 
Symptoms are  severe''D'' ,it even wakes me up, constant fatigue,anemic,joint pain,aphtous ulcers in my mouth,nausea,sometimes vomiting,low grade fevers,chills etc etc
Desperate for answers-Anne
 
 
 

unconfirmed crohn's disease since 2000,then confirmed as ''text book case of crohn's'' then it was celiac disease,shortly thereafter it wasn't celiac disease!
Taking pentasa,(prednisone when necesary)nexium,domperidone,prochlorazine (as needed),lomotil


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 6/10/2010 4:26 PM (GMT -7)   
By endoscopy, I assume you mean upper endoscopy. If you have excessive acid production that was causing damage to your stomach and esophagus and the Nexium has stopped that, stopping the Nexium for a couple days is not likely to have much impact. Your other medication, domperidone, from what I read, only controls symptoms. During an upper endoscopy, the scope can't get very far into the small bowel so it is possible that your GI won't be able to get a definite diagnosis. There is another diagnostic test, the capsule endoscopy, that exams the small bowel using a tiny camera in a pill.

I know how frustrating it is not to be able to get a confirmed daignosis. Many here went through many tests spanning long periods of time before they got a diagnosis. Hang in there, okay! As far as what you should do, I let you decide that.
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8545
   Posted 6/10/2010 4:40 PM (GMT -7)   
If you've got suspected small bowel disease, I would go for a pill cam test if at all possible, as that is the only test which visualises all of the small bowel. (It's some ridiculous length: 20m or something like that.)

Good luck. Not that I would wish Crohn's on anyone, but your symptoms sound like pretty classic Crohn's to me. I hope you get your official diagnosis.

meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 6/12/2010 7:27 AM (GMT -7)   
thank you for your suggestions! I tried to get off the nexium and domperidone but it wasn't such a good idea after all-I will seriously consider the capsule endoscopyThank you,Anne
unconfirmed crohn's disease since 2000,then confirmed as ''text book case of crohn's'' then it was celiac disease,shortly thereafter it wasn't celiac disease!
Taking pentasa,(prednisone when necesary)nexium,domperidone,prochlorazine (as needed),lomotil


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/14/2010 1:24 PM (GMT -7)   
I would be considered about taking the pill "cam". If any narrowing, scarring or inflammation is present wouldn't it be possible for the "cam" to become lodged somewhere on the way through?

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/14/2010 1:24 PM (GMT -7)   
I meant, I would be concerned...

meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 6/14/2010 3:43 PM (GMT -7)   
uhm ...i'm sure the specialists would know what to do in that circumstance-Anne
unconfirmed crohn's disease since 2000,then confirmed as ''text book case of crohn's'' then it was celiac disease,shortly thereafter it wasn't celiac disease!
Taking pentasa,(prednisone when necesary)nexium,domperidone,prochlorazine (as needed),lomotil


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/14/2010 6:29 PM (GMT -7)   
If stricturing or partial obstruction is suspected then the Agile Patency Capsule should be attempted first. The APC is the same size as the PCE but is a dissolvable pill. You swallow the APC early one morning at your gastro's office. 24 to 26 hours later you go to an maging facility for an abdominal xray. If the APC wasn't able to pass it will show up on xray and you and your doctor will know you are NOT a candidate for the PCE. IF however, the APC can't be found, it has passed and so will the PCE. If the APC does get stuck it is guaranteed to dissolve w/in 2-3 days.
My computer says I need to upgrade my brain to be compatible with its new software.


meandmyhunny2
Regular Member


Date Joined Feb 2007
Total Posts : 90
   Posted 6/15/2010 7:48 AM (GMT -7)   
Stricture or partial obstruction are not in question at this time.I am familiar with this procedure as I've had it done before.That it be APC or PCE is not relevant at this time.My question was about taking a particular med or not.Thank you Anne
unconfirmed crohn's disease since 2000,then confirmed as ''text book case of crohn's'' then it was celiac disease,shortly thereafter it wasn't celiac disease!
Taking pentasa,(prednisone when necesary)nexium,domperidone,prochlorazine (as needed),lomotil


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 6/15/2010 8:53 AM (GMT -7)   
I had every test in the book done, including promethues 7, upper gi, colonscopy, and a few others. Each said something differrent and most were illogical. Prometheus 7 said I for sure did not have CD. The Upper GI differential diagnosis said "some thing is causeing a CD flare" yet I was really undiagnosed. One of the diagnosis was I was taking too many laxitives and yet I have never taken one in my life. In any case I had the pill cam and clear as day the doc should me the pictures of the ulcers throughout the small bowel. So in my experience and now opinion, if you are undiagnosed and it might potentiall be the small bowel you might wish to really consider the pill cam. As you can see from my signature, for the first time I am on a proper treatment plan and moving towards a managed remission.
David
 

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone starting at 40 mg (moving to 30 soon YEA!!), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/15/2010 10:20 AM (GMT -7)   
Domperidone is for gastropareses to hasten the stomach emptying process. That is NOT going to affect an upper endoscopy procedure.

Nexium is a proton pump inhibitor and supposedly has some healing properties of the esophagus, etc. so that might affect upper endoscopy results.
 
I see no reason to expect or suspect that Nexium would have any healing properties in the major portion of the small intestine, the ileum. The duodenum and jejunem are short enough and close enough to the stomach that POSSIBLY Nexium could have SOME healing properties in them but I seriously doubt it.


My computer says I need to upgrade my brain to be compatible with its new software.

Post Edited (CrohnieToo) : 6/15/2010 11:24:25 AM (GMT-6)

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