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Regular Member

Date Joined Jul 2008
Total Posts : 20
   Posted 6/10/2010 6:50 PM (GMT -6)   
I am really having the worst time ever with the fatigue right now, don't get me wrong I have all the lovely pain, nausea, bathroom issues you name it but I am most frustrated with the extreme lack of stamina. I can barely make it through a day with my kids, naps are a must and work is out of the question right now. Any advice on how to make life work when sleep is all I feel like doing??
Sad and sleepy cry
 Faith Not fear!
I am to blessed to be stressed!
32 year old,Mommy of 3 gifts from God.
Crohn's officially April 2008 after bad bleed and massive weight loss. (Life long tummy problems)
Meds: Imuran 100mg,  Pred. 40mg current taper 5mg every 2 weeks fingers crossed.
Multivitamins and Iron.

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 6/11/2010 12:45 AM (GMT -6)   
sorry to hear that! i'm in the same boat. i need a nap as soon as i get home from work and there are many times during the day at work whrn my eyes are closing...i started taking iron bc my blood count was low but the fatigue is a tough one to deal with...i hate not being able to play with my 5 year old bc i need a nap...i feel like a crappy dad but i know what you mean- it's an overpowering feeling of fatigue. maybe b vitamins?
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 6/11/2010 6:57 PM (GMT -6)   
Many things cause fatigue including crohns itself. Drugs are the worst culprit and it can be hard to figure out which ones, because most of us are on multiple drugs at a time.Try to figure out when fatigue started can be difficult as it usually builds up slowly over weeks or months. Among other things, I track my hours of sleep each night so I can see fatigue trends happening sooner. Perhaps you use the search engine up top to find other posts on healing well regarding fatigue. Try to think back to when you started to feel fatigue, did you start any new meds? or up doses? Go back a month or two consider the same things. Maybe others can help you by listing what caused them trouble, here's some that have affected me. Prednisone, either gives lots of energy (no sleep) or fatigue (too much sleep). I've had both reactions at different times. Two 5-asa's, Sulofalk and Asacol have caused fatigue above a specific dose, but are problem free below that dose.This last one I think is specific to me and took plenty of experimenting ot figure out, Sugar! I'm not diabetic and am tested for it every once in a while, certainly when I found out this problem. A few months ago fatigue showed up and it was very bad. I was at the time having partial blockages about every week for 2-3 days on a liquid diet and recovering for a few more (2-3) days also on a liquid diet. I was losing weight so to counter it when on the liquid diet days I was eating lots of candy and Jello and on the few days I could eat I was eating things like cookies, candy and jello. I was able to maintain my weight doing this and the time frame was over a month. When the fatigue showed up the only thing I'd changed was the amount of sugar I was eating and believe me this was more sugar than I ever ate before by a long shot! So I experimented and sure enough if I ate too much sugar the next day I'd get tired and if I continued it would get worse fast. There was a direct relationship between the sugar I injested and how I felt the next day. Very strange, even my family Dr. was suprised. I hope this isn't too ranbling and is helpful, again perhaps others will list what they've found cause fatigue for them. Best of luck Rob
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

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