I swear, I am so sick and tired of being sick and tired, I don't know what to do. And, I don't know what is making me feel so bad right now and don't know which doc to call. For the past few weeks, I've had HORRIBLE joint pain. Saw the rheumatologist and I am on 400 mg of plaquenil. They say it takes a long time to work. I had a few days of honeymoon feel great days but that didn't last long.
The colon is only so-so, it's been hurting off and on too but the joint pain and fatigue are a much worse issue right now. However, I am wondering if perhaps I have an infection in the GI and that is why I am aching like I am sick. Several weeks ago, I was in a flare and when I talked to my GI, she mentioned more CT scans. I am gonna glow if they keep doing these. Why can't they just give me antibiotics and see if I get better? Do your docs make you get a CT scan every time you are in a flare. Oh, and to complicate things, my ANA is now positive. Any advice for which doc to call?
Question, do you think the immune suprpession of the plaquenil is causing a flare of an infection in my colon??? I also have diverticulum.
I am so tired of not feeling well and dragging myself to work each day in pain. I feel like they don't know what is wrong with me and I have never been in remission with the colitis for any real good length of time. I'd be happy for 6 good weeks of normal bm's and no pain.
Thanks for listening........and apologies for being such a prolific whiner on this site. I just don't know what else to do or who to ask for advice.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, high BP, fibromyalgia, GERD, restless legs and periodic limb movement in sleep, low thyroid, the list keeps growing..........................
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux (trying again)
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA rheumatologist suspects mixed connective tissue disease 4/2010
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!