Has anyone tried this product?

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PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 6/13/2010 11:42 AM (GMT -7)   
I was at my 6 month GI follow-up on Monday and we engaged in a long discussion about the fact that I am not on a maintenance med because I can't tolerate Mesalamine. He recommended a product called Isotonix OPC-3 as an anti-inflammatory. Does anyone use this? It is SUPER expensive but I did order a bottle (should arrive tomorrow via UPS). My GI said it's like an IV injection - and goes directly to the small intestine. Anyone? I was a little taken back by the fact that it is a Market America product - but if it works, I really don't care where it's coming from.
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/13/2010 1:11 PM (GMT -7)   
I have a friend who swears by it for IBS - don't use it myself due to the cost, but would reconsider if people felt it was helpful.

I'm really interested in your GI saying it's like an "IV injection straight into the small intestine..." Pretty impressive image.

I know someone else who sells it if anyone wants the info....
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/13/2010 10:35 PM (GMT -7)   
never heard of it
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 6/14/2010 5:03 PM (GMT -7)   
Thanks for the input. Huckleberry, I'll let you know how it goes. My bottle arrived today so first dose will be tomorrow a.m. My husband is going to be using it also (so double the price! Yikes!!); He has Ankylosing Spondylitis so he's hoping to reap the anti-inflammatory benefit as well. Maybe he won't be in so much pain all the time. Fingers crossed!!
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1277
   Posted 6/14/2010 5:26 PM (GMT -7)   
I would love to know how it goes as well. I looked up the product and it gets great reviews and makes sense, I keep reading how so many things that are anti-inflammatory from food sources and foods sources are best.

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/14/2010 5:38 PM (GMT -7)   
Good luck Pink!
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 6/14/2010 6:34 PM (GMT -7)   
If my GI recommended I waste my money on something like Isotonix OPC-3, I would find another GI.

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/14/2010 8:07 PM (GMT -7)   
Pink:  Is your GI a DO (doc of osteopathic medicine)?  Does he use this regularly?  I've not heard anyone discuss this b/4 so am interested in it.  Thanks. 

newby


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/15/2010 2:32 AM (GMT -7)   
beave -

wow that's a strong response. Did you try it and it didn't work?
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 6/15/2010 5:45 AM (GMT -7)   

grumpy - he's an MD. He uses this daily along with a Vitamin D supplement by the same company (I didn't even look at the Vit. D - figured I'd try the OPC first). He also recommended silver needle white tea a few times per day - supposed to be good for us Crohnie's.

beave - tell me about your experience with this product. I'd like to hear about it. BTW, I have nothing but the utmost respect for my GI and appreciate that he is willing to explore options other than prescription medications to keep me well.


38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2010 6:21 AM (GMT -7)   
Hey Pink will look forward to hear your results. But I would also like to add get on the Vitamin D3. Many Crohnies as well as even healthy folks are being found to be low on this vitamin. I suffer with Fibromyalgia too and it has really helped in that department alot. Its also really good for your immune system. It helps you not to catch all the bugs. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/15/2010 6:49 AM (GMT -7)   
Many years ago I got some ointment from a friend of mine that raised horses. It was called DMSO I think. I had a lot of joint problems and the stuff was used to help horses with joint problems. It worked like a miracle but they stopped selling it because more people were using it on themselves than their horses and the FDA was about to blow a gasket . I was told a lot of scary stuff about it but if I could get my hands on some now, I'd use it anyway.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 6/15/2010 11:40 AM (GMT -7)   
I used to know somebody who sold it. In my opinion it's a scam product. There is no evidence whatsoever that it helps with IBD.

Their basic premise is this: "Look how expensive it is! If it costs this much, it *must* be doing something." And some people believe that. That's what the woman I knew who was selling it tried to tell me. They even have fancy brochures with lots of psuedo-scientific information, ie, stuff that sounds impressive to a layperson, but is just a bunch of marketing speak to a real scientist. Again, there is no real data whatsoever that this product helps with any disease, and it's very expensive.

I stand by my statement that I would change my GI. But first I would question the current GI's reasons for recommending this product. Does he/she have a financial interest in it? If not, show me some data that it's a beneficial product.

Post Edited (beave) : 6/15/2010 12:51:31 PM (GMT-6)


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 6/15/2010 11:57 AM (GMT -7)   
Hi- I have tried this product.  My Mom has somehow convinced me to try all kinds of stuff.  For me, this didn't work.  In fact it made my diarrhea worse.  But everyone reacts to things in a different way- so good luck with it- keep us posted!

I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


PinkFlipFlops
Regular Member


Date Joined Dec 2008
Total Posts : 73
   Posted 6/15/2010 5:24 PM (GMT -7)   
krw: sorry to hear it didn't work for you and actually made things worse. confused
 
Thanks to everyone else for your input.
 
beave: I hear you and trust me, I'm skeptical.....which is why I asked for input. I know nothing about the product other than what my GI told me and what I've found via online research. Some of the reviews are wonderful, some absolutely horrible. I can only trust at this point. The only way I'm going to know if it works FOR ME is to give it a try. Yup, it's outrageously expensive, and it's not like we're rolling in the dough, but I am willing to give it a try. If there's no improvement, I'm done with it.
 
There were no fancy brochures, no marketing materials at all involved in our conversation at my GI's office - he verbally gave me the main website, I ordered from there and was randomly assigned an online customer service rep in my area, who happens to be female. My GI is male. There is no monetary gain on his part that I am aware of. He informed me there were scientific studies conducted by Yale, but since I wasn't provided any material, I have no data to provide to you.
 
I may very well be back here tomorrow, a week or a month from now complaining that the product is nothing but an expensive scam or that it made me feel worse. Feel free at that point to say "I told you so".
 
In the meantime, my fingers are crossed. Took my first dose this morning. I'll keep you all posted!
38 y.o. F. Diagnosed with Crohn's in 2009.
Never had symptoms until after my daughter was born in 2006.
Currently taking probiotics and digestive enzymes.
Entocort on standby in the event of a flare.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 6/15/2010 5:27 PM (GMT -7)   
The woman I knew who was selling it recommended it for one of my family members who had cancer. I asked how it was supposed to help with cancer and her reply was this: "Well, I've been taking it, and I don't have cancer, so it must work." I didn't know whether to laugh or cry.

debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 6/18/2010 1:41 PM (GMT -7)   
any update?
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Currently:, Entocort EC, Vitamin D, Fentanyl 12mcg / 72hrs, TPN, Cardizem
Currently On SSDI


Question Everything
Regular Member


Date Joined Aug 2012
Total Posts : 444
   Posted 10/27/2012 10:04 AM (GMT -7)   
Isotonix opc-3 Expensive? 30 or 70 dollars 30 days worth naw, pecked up Entocort yesterday as a stopgap until I can get Humira. I'm glad I have insurance 3 weeks worth $820.96 without insurance, copay was 60.00. No comparison to Remicade but everything is relative to you expectations. Hope it works out for you though.

Another thought, back in the 80's I ran into some wannabe hippies and they used "comfrey tea" to sooth the stomach and gut. A herbal thing, any of you try anything like that? Hope I spelled it right. They were a partying crowd and had all sorts of herbal remedies.
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