Welcome to this forum Kim. I was diagnosed three years ago at the age of 55. Had a colonoscopy, immediately admitted to hospital where I underwent more tests and Crohn's diagnosis before being released a week later. All the while having virtually no Crohn's symptoms. They found a stricture in my colon which I had surgically removed a year ago.
Initially being told I required surgery or Remicade, I have done a whole lot of research, been referred to different GI's and two surgeons, talked to a lot of people and asked many questions on Healing Well forum. Real learning curve but like you said you have to be your own advocate.
Good luck and I'm sure you will find people very helpful on here.