Hi everyone..been away but have a question

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Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/14/2010 4:03 PM (GMT -7)   
Hi to everyone
 
Well I've been off the forum for a while.  Have been having some trouble with tiredness and sweating..still!  I started Pentassa 2000mg daily almost 2 weeks ago. No side effects to report..phew!! But, I do have lower back pain.  I have had this on and off for probably about 2 years and in that time I remember I have had a couple of episodes where it has been really bad, but I put it down to my profession.  I remember being at work on a couple of occassions and walking down the stairs was incredibly painful.  After a few days it settles.  But over the last couple of weeks I have noticed that it is there more consistantly and when I bend down to pick something up, my lower back cracks.  This may be nothing to worry about, but it is becoming troubling.  Does anyone else suffer from this, and if so what on earth is it?  I am a little worried that it may be some form of arthritis. I don't suffer from joint pain anywhere else, at least not yet!  But would like some ideas from anyone who may know, just so I can suggest to the GI next time I see him..which is in about 3 weeks.  I definitely does not feel like muscle pain.  Any ideas would be most appreciated.  Thanks everyone.
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 6/14/2010 4:11 PM (GMT -7)   

 

   Back problems such as arthritis & AS are very common with our DD, please see a doctor with experience in these issues ASAP.

    Matthew

 


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/14/2010 4:32 PM (GMT -7)   
Thanks Matthew,
I was a bit afraid that I would get a "get to the doctor on the quick" post. I can't believe that if the bowel isnt a big enough worry for us, that we have to be on the look out for just about every other possible thing going wrong. I feel like I'm waiting for my left arm to just drop off randomly!! Anyway, advice taken. Very difficult to get to my GI at the drop of a hat. Am having a scope in 3 weeks, I'll give him a message re the back, but sure as eggs he won't see me before the scope. I'll manage it conservatively as best I can till then. My liver functions are a bit elevated from bloods I had taken a week ago, so I don't want to be taking pain relievers on a regular basis. Thanks again
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil, multivitamins, pentassa 2000mg daily


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2010 6:26 AM (GMT -7)   
Charlee I would recommend getting in with a Rheumatologist. I personally think every Crohnie should have one on board. We have so many joint issues related to Crohns. I suffer with Fibromyalgia and Osteoarthritis myself. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/15/2010 6:40 AM (GMT -7)   
Yep, what Matthew and Nanners said. I have A.S. or you could say I have a case of the A.S. but it took a rheumatologist to find it out. The remicade has help a lot but I still have bad days.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 6/15/2010 4:16 PM (GMT -7)   
I have Osteo in my back now, don't know if its CD related or just Old Man Chronos getting his due, but back problems tend NOT to go away & get worse usually. DO NOT TAKE LIGHTLY.
And yes, I have mild Crohn's that is usually quiet or near remission for years, but still get complications. I have NOTHING nice to say about CD..

Matthew

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 6/15/2010 7:05 PM (GMT -7)   
Thank you all,
Have left a message with my GI and am going to see the GP next Tuesday (earliest I can get in).
We don't have a Rheumatologist in the town that I live, so i guess it will have to be in Sydney.
Seeing a specialist in Sydney from where I live, I'll be lucky to see a specialist in rheumatology by maybe.....2080. Anyway, will push for an earlier appointment if possible. I'll see if the GP will at least order an Xray or CT just to see if the radiologist can pick up on something.
Thanks everyone.
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil, multivitamins, pentassa 2000mg daily

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