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jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 6/15/2010 5:31 PM (GMT -7)   
A little over 2 weeks ago I developed pancreatitis on day 14 of starting 6MP. When I got to the ER, my amylase was 6 times what it should have been and my lipase,(which should be between 12 and 60) was over 2000. I was put on a liquid diet for 5 days and then told I could start adding some soft low fat foods. My GI predicted that I should be back to normal in about 2 weeks (which was yesterday,Monday). Yesterday I followed up with lab work and while my amylase is now normal, my lipase is still well over 1000. I'm really starting to worry since my lipase levels have sort of hit a plateau. I am going back to a liquid diet, but I already weigh in the 90s and can't get enough calories on clear liquids. Has this happened to anyone else? Any suggestions are welcomed ;)
JAS


Currently taking: Remicade
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines


QueenCityCrohnie
New Member


Date Joined May 2010
Total Posts : 16
   Posted 6/15/2010 6:00 PM (GMT -7)   
I dont know where I read it but I believe there is higher calorie liquid options, Carnation I believe makes one that has 500+ calories per drink-
http://www.americarx.com/Products/3209.html . Not sure if youve tried that or not. Ive never seen it in stores, so it must be only at select places.
If you dont mind me asking, what were your symptoms for pancreatitis? I had similar issues and was wondering how your experience was-

Zach

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/15/2010 7:49 PM (GMT -7)   
Hi Jas, yes unfortunately I had 2 acute attacks of pancreatitis following 6mp. I'm sorry to say that those attacks
were bad enough to damage my pancreas, so I now have chronic pancreatitis.
My amylase and lipase were extremely elevated for awhile and it did take some time for them to return to almost
normal. They elevate now each time my pancreatitis flares up.
As far as your diet goes, I think as long as you stay away from fats you should be ok. My biggest advice that I could
give you, is make sure that the docs stay on top of this. If necessary get then to run tests to make sure that your pancreas
has recovered. There are enzymes you can be given, that can help the pancreas rest. They help with digestion.

I hope you have the best outcome from all of this. Good luck!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 6/15/2010 10:23 PM (GMT -7)   
Chronic pancreatitis is definitely something I cant stop worrying about. It's terribly painful and I'm not sure mentally I can handle one more complication that I have to deal with the rest of my life.

Zach - my onset of pancreatitis was pretty sudden. I woke up unable to move one morning because I had so much abdominal pain radiating from my left side.it was nearly impossible to do aything and it took several hours for me to build enough strength to get out of bed and to the ER. I was also severely nauseous and unable to keep food down

Ughhh. Sorry to vent...I'm just really frustrated. The pain from pancreatitis is really wearing on me, not to mention I'm exhausted because The pain keeps me up at night. Although, I will say at least the pain is a little less intense and seems to be a tad more relenting at times than it was on onset.
JAS


Currently taking: Remicade
Recently tried 6MP and developed pancreatitis
Allergic to mesalamines


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/16/2010 6:38 AM (GMT -7)   
Yas, I'm sorry if I worried you, but you do need to be aware. I'm hoping this isn't the case with your problem!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/16/2010 12:05 PM (GMT -7)   
Hi all, there is an association of pancreatitis and gallbladder disease: see the following web site. Don't know much about it-just have heard of the association. I'm sorry you all have to go through this, hope you find relief soon.

http://www.acg.gi.org/patients/gihealth/biliary.asp
newby

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