PAINFUL FISSURE!!! SURGERY?

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krw135
Regular Member


Date Joined Mar 2010
Total Posts : 183
   Posted 6/17/2010 12:53 PM (GMT -6)   
Hi, so I have a really bad fissure right now.  It hurts so bad, I can't even describe how bad it hurts!!  I go to my dr next Wed to get it checked out and go from there.  I have some nefedipine (sp?) I have been using and I take a bath as much as I can.  I run home during my lunch break and soak.  I do have some pain meds- but they aren't touching the pain.  I feel "decent" for about 10 minutes after a bath- then the pain is back.  I have been using wet wipes over TP, and keeping the area clean.  I do not have a colon any more, so all my BM's are loose and while I don't have to strain to go- it still hurts like hell.  Any advice to get me thru till Wed?  I just cry with every bm-which averages about 10-12 times a day.
 
Also, has anyone had fissure surgery?  If so what all is involved?  Is it done under general or local?  Recovery time?  Any help will be greatly appreciated.
 
Thanks!
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 6/17/2010 3:39 PM (GMT -6)   
I am sorry to hear you are having so much pain (((((((((((((((((((((hugs)))))))))))))))))))))))))))))))))
No, I've never had surgery for the fissures(but I DO constantly struggle with them), but I HAVE had rectal surgery for necrotized, thrombosed hemmies...and haven't been able to sit correctly since...

The nifedipine ointment works, but also too, my doc gave me Lidocaine Hydrochloride Jelly, USP, 2% which also worked wonders...just a note, the "Jelly"(an aqueous solution) works better than the "Ointment"(petroleum based) even at higher percentages...maybe your doc can call this in?(I hope)

Also, as to the wet wipes...if you live in the US, try the Prep-H wipes (or the drugstore knock-off brand)...they feel even better than some of the wet-wipes and most are septic/sewer safe...some of the wet-wipes can irritate too...

Hmmm...have you tried a sitz bath...the one the goes over the loo...right after surgery I used it ofter, especially with Epsom salts and warm (not hot) water...
"The earth laughs in flowers"


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 309
   Posted 6/17/2010 7:30 PM (GMT -6)   
Don't have anything too helpful to say (except I also like the Prep H wipes better than regular flushable wet wipes) but sending you (((hugs))) and support.

Hang in there and if you really can't stand it tell your doctor that you can't wait til the appt for some more pain help.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 6/17/2010 10:05 PM (GMT -6)   
I feel your pain. The pain is the worst feeling ever. Then after my BM I would have this throbbing sensation down there and consistently got worse (and more painful) the closer I got to my next BM. Take a bath or shower didn't even help me. For me going on pred to calm my flare caused the fissure to slowly heal. From there it came and it went with flares then finally healed up. My doc also prescribed me nefedipine. Now I use Analpram for hemmie pain.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
----------------------------------------------
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.


muOpiodReceptors4diarrhea
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/17/2012 5:13 AM (GMT -6)   
I had my colon/rectum removed at age 16, diagnosed age 7.
Unable to gain weight, constant diarrhea, impaired healing, over-wiping - led to my first fissure.
I fasted for two weeks (same pain, also 10--12 BMs, insane pain right?!) and that healed the first one.
Second fissure didn't heal after 1 month of fasting (I lost 30lbs, very emaciated) - Dr. prescribed hydrocodone for pain.
It took months for the fissure to heal but I noticed the slowing effect and thickening of stools due to the medication - I would't poop for 4 hours after each pill I took.
Amazing! I thought I was going to win a nobel prize for realizing this Godsend. I looked it up and found out that my Dr.'s knew about the slowing effect of opiates the whole time (after searching 12 years for something that would slow my diarrhea and allow me to gain weight, only to be 'too little too late' since I ended up getting a fissure)
Anyway, the mu opioid receptors in the intestines are agonized by opiate meds which slows the peristaltic muscle contractions (that push food through your intestines).
I've not had a fissure since, my stools are more formed, sleep through the night, gained 50 lbs. of much needed weight, hydrated, never get colds anymore, etc. - only thing is that since opiates are so controversial, it has been tricky trying to find a Dr. to prescribe them and I've gone through all sorts of hell with that - after taking opiates long terms (4 years now), running out of meds will result in an other worldly hell with withdrawal symptoms (diarrhea being one of them) - so heed the warning. But even with that negative (which is a big negative), I still choose to take the opiates because they also treat my stomach cramping/gas, I can fart without liquid coming out ( a common j-pouch complaint?), I can go places without using the restroom (or try to find it), etc.
There is a company that makes tincture of opium which is pretty much used for chronic diarrhea, so I'd like to try it, , only can't find a Dr. who is willing to prescribe. If anyone is from Southern CA. and they take tincture, please let me know who your Dr. is. I have a wife and two baby boys so I need to get this resolved ASAP :) Here is the company link: http://marathonpharma.com/products/opium-tincture

muOpiodReceptors4diarrhea
New Member


Date Joined Mar 2012
Total Posts : 3
   Posted 3/17/2012 5:16 AM (GMT -6)   
Also, try putting a gob of really soft lotion on the toilet paper (we have a big bottle of some kind of cocao butter lotion). It works better than baby wipes (16 years of chronic-diarrhea exp.)

minnietoty
Veteran Member


Date Joined Dec 2010
Total Posts : 1662
   Posted 3/17/2012 1:58 PM (GMT -6)   
Lidocaine and sitz baths are the best for my fissures as I have too hemmies and proctitis. My colocrectal surgeon told me to apply as much lidocaine as I like before a bm and after a bm. Apply it also from outside. Don not insert anything inside the anus or rectum in order not to irritate them.
Hope you feel better soon:)

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 3/17/2012 3:23 PM (GMT -6)   
I had a horrible fissure once, too. I know how awful it is. I took Proctosedyl suppositories, which helped a little.

Maybe a steroid cream with antibiotic will help (Fucidin H is a good one), and add some dead sea salts or epsom salts to your sitz baths too. Apply vaseline before your bms, and hold a warm wet cloth to your bum when you're having a bm. I know it's messy, but it is soothing.

If it's really bad, maybe switch to a bland liquid diet for a couple of days, and drink some chamomile and plain broths (Campbell's organic chicken is nice).

Hope it heals quickly.
Co-Moderator for Crohn's Disease and Epilepsy forums.
Crohn's Disease since the 1990s.
Close family member has had epilepsy for more than 45 years.
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