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leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 6/18/2010 10:13 AM (GMT -7)   
So my back has been hurting. Lots. I went to put my toddler in the bathtub on Friday night and it totally locked up and my knees went out for about half a second, resulting in me faceplanting the tub to prevent dropping said toddler. I figured I just pinched a nerve and it would be better in a few days.

Five days later, I STILL can't sit comfortably and I've had 2 more episodes of the back locking up. Go get x-rays done Wednesday, and the doctor is like.....I'm not sure what's going on, but it's not good. Sends me to the orthopedist. I saw him Thursday, and apparently I have fractured- yes, FRACTURED - the two pieces of bone that hold one of my vertebrae in place, resulting in it slipping out of place and squishing the disc/nerves. No WONDER it hurts.

So now I have to get an MRI to determine the extent of the damage. He thinks it was an actual defect in the bone that finally gave way, but it is a total *** to be told you have totally fractured parts of your spine and not know it.

At least the bright side is it's not Ankylosing spondylitis, which was my big fear. But still, ARGH.
30/f
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Remicade - 1 infusion so far
Darvocet or Lortab as needed for pain


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2010 1:13 PM (GMT -7)   
Whine away sweetie!! I am so sorry you have this new development. Keep us posted on what the MRI tells you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

g27
Regular Member


Date Joined Jun 2010
Total Posts : 34
   Posted 6/18/2010 1:15 PM (GMT -7)   
Ouch! Sorry to hear you're in so much back pain. I've thrown my back out a couple of times and that was horrible - I can't imagine that plus an actual fracture. But as you've said, at least it's not ankylosing sponfylitls. I hope your doctors give you some good guidance, and that you're feeling better really soon!
Gillian

Female, 29 y/o, dx Crohn's in June 2010, but probably had it for 10 years prior
Currently on 9 mg Entocort, plus elemental iron and calcium/vitamin D supplements


ALgirl
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 6/18/2010 1:32 PM (GMT -7)   
You definitely have the right to whine!  Actually I feel bad for whining about sacroiliitis lately now. 
Diagnosed w/ Crohn's 2010
Diagnosed w/Hemicrania Continua (variation of migraine disorder)fall 2009
Diagnosed w/bilateral sacroiliitis/possible developing ankylosing spondylitis due to Crohn's 2010
Current meds: Pentasa, prednisone taper back up to 40 mg a day, omeprazole (Prilosec), zonisamide (Zonegran)
 


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/18/2010 3:32 PM (GMT -7)   
Ow!! Leysa! That's horrible!

I hope they are doing something to help you with the pain?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/18/2010 4:52 PM (GMT -7)   
I am amazed at your stoicism since I've got a bulging disc that flares once every 2- 3 years and I find it UNBEARABLE. It completely stops me in my tracks when it happens. To think of you having a fracture and bathing toddlers, etc is amazing.

Hope they can manage your discomfort and wishing you speedy recovery.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/18/2010 5:49 PM (GMT -7)   
leysa:  I sure hope you feel better soon-can't imagine your pain and hope you find relief soon!  Secondarily you are a hero for protecting your child- I know its small comfort when one is in agony.  Take care of your self.   
newby


leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 6/18/2010 7:36 PM (GMT -7)   
Thanks for the comforts, guys......they actually did offer me pain meds, but I passed since I have a pretty good cabinet for the belly trouble that I almost never touch as it is. If it gets bad enough I have resources, hehehe. I really think that because it's been bothering me for so long that I have just adjusted to it, and now the only thing that flat-out stops me is when it locks up (which is what the doctor thinks is the vertebrae sliding too far and crushing the disc).

Bottom line : Do not ignore back pain. I've had this stiffness in my lower back for almost 2 years - it started when I was pregnant. I just figured it was a pregnancy thing. Orthopedist thinks that the extra weight of pregnancy is what finally caused the bone to give in, and it continued to wear away over the last 2 years. There's literally NO bone in 2 spots on the x-rays. :(

I also have to have a nerve test done on my right leg, because it pretty much failed in the office test for reflexes/etc.

Not happy. :(
30/f
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Remicade - 1 infusion so far
Darvocet or Lortab as needed for pain


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/18/2010 10:09 PM (GMT -7)   
Geeeeeeeeeeeez, Leysa, you have a reason to whine. I'm sure they will do surgery but arn't they going to put you in a brace until this is fixed. You dont need any extra injury ....Hope they fix it soon and keep us up to date...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 6/18/2010 11:34 PM (GMT -7)   
My back has gone out a couple times, and I don't know how you're dealing with it without taking meds. I didn't even do any damage that was seen on imaging, and it was intolerable.

What do the doctors think you'll need to do to help heal? Physical therapy, or.....surgery?
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/19/2010 12:32 AM (GMT -7)   
Goodness, whine away girl, bad back trouble can be a real battle at times hope you won't have any. Just to be sure ask Dr. for a bone density test, as I see your on prednisone. Hope you've had a baseline previously.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 6/19/2010 4:39 AM (GMT -7)   
You have every reason to whine hope the docs soon sort you out Bev x
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 6/19/2010 9:13 AM (GMT -7)   
I had the same thing happen to me about 4-5 years ago.  You can look up spondylolisthesis
It is great you were diagnosed so early; I had the MRI first, which only showed a bulging disk, then 3 epidural steroid injections at hospital before back doctor would even SEE me!  He diagnosed it with x-rays in several different positions.  I was unable to sit AT ALL, or stand still for 3 months.  All I could do was lie down or walk.  The good news is that most cases will resolve over time without surgery.  2 things that really helped me were hydrotherapy; pool excercises and hanging from "noodles" in the deep end of the pool.  Being in the pool really takes the pain away; it is unbelievable. Had to go to a physical therapy place that was located in a gym with a pool for that.  The second thing was that after two months of that with much improvement, but a less than total recovery, my PCP sent me to a sports doc who does prolotherapy.  He treated the SI ligament at 2-4 week intervals.  On my way to the first visit there, I had to travel lying down in the back seat, as I could not sit at all; 2 weeks after 1st prolotherapy injection, I was able to sit to drive myself there and back on the 40 minute trip.  Two weeks after that treatment, I was back to figure skating again.   It is one of the most painful injuries I have ever dealt with; hopefully, it will resolve soon for you.

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 6/19/2010 5:30 PM (GMT -7)   
1asalsa, yes, that is part of what the doctor told me. It's reassuring to hear it can sometimes just be treated via therapy....I really really really do not want to have surgery unless it's absolutely necessary. The idea of someone mucking around with my spine just freaks me out.

I have the MRI and nerve test both scheduled for Thursday and I follow up with the orthopedist that following Wednesday. I'll report back.

All I can say is, this sucks. Sitting is just.....arghhh. Bad.
30/f
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Remicade - 1 infusion so far
Darvocet or Lortab as needed for pain


1asalsa
Regular Member


Date Joined Feb 2010
Total Posts : 40
   Posted 6/21/2010 5:55 AM (GMT -7)   
Good luck; please let us know what happens.

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 7/1/2010 1:18 PM (GMT -7)   
Ok, I survived.

The MRI showed that the vertebrae sliding around has torn the disc slightly; it's not good, but it's not as bad as it could be. The doctor is recommending physical therapy for now, and hopes that it will continue to improve. As for the bones, there's really nothing to be done but hope they stay put, and that physical therapy will improve the muscles around them, thereby stabilizing the spine a bit.

*whew*

Now if I could kick this flare, I'd be good.
30/f
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 10 mg taper in progress
Remicade - 2 infusions so far
Darvocet or Lortab as needed for pain

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