Mayo Clinic or local hospital? (surgery)

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ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 6/18/2010 12:57 PM (GMT -7)   
So, it seems I need to have 9-15 inches of my SB and 4-6in of my colon taken out. My local hospital (Olean, NY) is kinda small. Everyone I talk to says the Mayo Clinic in Rochester, MN is the place for Crohn's surgery. This, of course would mean BIG costs for travel, lodging, no insurance coverage, etc..

Thoughts?
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in 2004.
Nov. 2009- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2010 1:07 PM (GMT -7)   
Mayo is the best, but if my insurance did not pay for it, I personally would have to go with my local. I have had 2 resections and my local hospital did a great job. Hope that helps.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 6/18/2010 1:41 PM (GMT -7)   
What about Cleveland Clinic? Will your insurance cover them? They are only a few hours drive from you and rated #2...I've done small hospital and teaching hospital and would only do the teaching one now, no matter where I lived!

Sorry to hear you have to have surgery but is best to do it when you have control over the situation and not via the ER!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 6/18/2010 2:25 PM (GMT -7)   
It depends on how you feel about your own surgeon. Although I live just a couple hours from Rochester, I had no doubt my surgeon would do a great job.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/18/2010 4:57 PM (GMT -7)   
Are you sure insurance won't cover it at all? Many times they will cover it but you might be responsible for part or of course for transportation, etc.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 6/18/2010 4:58 PM (GMT -7)   
Mass General and Johns Hopkins have high ranked gastro departments as well and could be closer to home. Mayo, Rochester would be my first choice, but w/o insurance and the cost of flying today and while motel accomodations are surprisingly reasonable around Mayo they aren't as inexpensive as they used to be before all the locals got bought and forced out by the chains and outsiders. On the other hand, you most likely wouldn't spend much time in motels. Mayo is the EPITOME of efficiency and if surgery is indicated they don't waste any time determing that and getting it scheduled. Things are done in a matter of hours and days not weaks and months at Mayo.
My computer says I need to upgrade my brain to be compatible with its new software.


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/18/2010 5:57 PM (GMT -7)   
ZZ:  I would think that there are some great hospitals and doc's in New York state that are a lot easier to get to and from over going to the Mayo hospital.  Having surgery some distance from your home would seem to complicate many things - especially the return trip for recovery. 
newby


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/21/2010 1:07 PM (GMT -7)   
Ziggy, I've done both teaching hospital and local (suburban) and I'm definitely a proponent of the teaching hospitals. I just feel personally that I'm giving myself the best shot when I see the docs/surgeons with the best education and the most experience. I'm not sure why you'd have NO insurance coverage if you travelled. That's my 2 cents worth!

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/21/2010 3:51 PM (GMT -7)   
Depends on the insurance. HMOs aren't any too likely to take kindly to being asked to pay some place like Mayo, Cleveland, Mass General, etc.

On the other hand, I've been blessed by my UAW/GM hourly BC/BS administered coverage at Mayo Clinic, MN (I'm in MI).
My computer says I need to upgrade my brain to be compatible with its new software.


ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 6/21/2010 5:19 PM (GMT -7)   
My insurance pays 80% of all costs after a $1000.00 deductible is paid when i'm out of the coverage area. I just think there tends to be way to many complications with everything BUT surgery: flight, motel, family, etc..

This is my first surgery, on a virgin gut. Later on, when things get complex I may seek out Mayo or another.

I don't know, I just want to get this taken care of, I'm sick of waiting.

-ZZ
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in 2004.
Nov. 2009- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet, Cimzea


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/22/2010 5:35 AM (GMT -7)   
I live about 45 minutes outside Boston, one of the major areas for teaching hospitals. Yet the 3 resections I had were all done at my local hospital, with no complications. The local hospital made it easy for my family and friends to visit, it made going home easier (you would be surprised at how a car ride feels after surgery) and it made follow up visits easier. While we have all these great hospitals at our disposal there is nothing wrong with our local hospitals, a simple bowel resection is everyday surgery for most hospital these days. If there is ANY complicating factors then seek out a teaching hospital. Obviously, you should do some basic research and make sure the hospital isn't on some government black list, and the same with your surgeon. The one time I was inpatient at one of the Boston hospitals, I missed the care level of the nurses from the local hospital and the doctors were so quick, in and out, that I never could get all my questions answered.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 6/22/2010 6:59 AM (GMT -7)   
You have all been so helpful, Thanks!

I have set up an appointment to speak with the local surgeon on July 22nd. I can't wait to get this done!!

-ZZ
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in 2004.
Nov. 2009- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet, Cimzea


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 6/22/2010 11:54 AM (GMT -7)   
Zanne: living where you live you've probably got a lot of docs that were trained at those area Boston teaching hospitals. Out here in the middle of IL we don't have that option. My local hospital could foul up an appendectemy (sp?) with little or no effort. Ziggy post was asking "Mayo or, not" so that's what I gave my opinion on.

Wolfie40
Veteran Member


Date Joined Dec 2008
Total Posts : 947
   Posted 6/22/2010 5:55 PM (GMT -7)   
OMG! The ride home from the Hospital was horrible and I only had a 20 min ride. I couldn't imagine anything longer. OUCH!!
I trusted my local surgeon and Hospital and i think they did a great job.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

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