Got some bad news today

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Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/18/2010 6:41 PM (GMT -6)   
So some of you may have read in my CT Enterography post that the scan showed my Crohns was doing great, but they had found growth on my kidney.  Well I met with the Urologist today and have found out that the growth on my kidney is a tumor.  I will be having surgery to have it removed in the next 2-3 weeks.  He said that at this point they can not tell me 100% if its cancer, but he said the odds are 60-40 that it is cancer.  The will biopsy it afterwards.  The one good thing is that when they remove the growth I will be cancer free if the tumor is cancerous.  So at least there is some good news with the bad.  My GI when he had told me the results of the CT scan said the growth was 1 cm which is really tiny.  Well the Urologist said its bigger than a centimeter and showed me that it was about the size of a half dollar coin. 
I am glad the surgery is really soon as I will have time to recover before my total knee replacement sometime in the early fall.   Feeling a little stunned at the moment, as I have been so busy trying to wrap my mind around the knee replacement, and now this. sad    I was so expecting him to tell me it was a cyst.  And then when he was typing up the surgical request to read renal mass, really shook me up.
Anyways, if you all would kindly keep me in your thoughts and prayers I would appreciate it greatly.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 6/18/2010 6:45 PM (GMT -6)   
You are in my thoughts ((((((((((((((((((((((((Nanners)))))))))))))))))))))))))))))))))))))...I am sending out all the best vibes...I wish this wasn't so though...
All the best,
"The earth laughs in flowers"

Regular Member

Date Joined Sep 2007
Total Posts : 317
   Posted 6/18/2010 6:45 PM (GMT -6)   
Oh Gail - I just happened to log on as you were posting this I guess.

BIG HUGS to you -- and lots of support.

Your positive and caring attitude benefits so many here at healingwell....and it will sustain you through whatever is coming, which I hope is swift, painless and quickly resolved.

Prayers, good thoughts, hugs....all good things to you always.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 6/18/2010 6:47 PM (GMT -6)   
Oh, Nanners! How horrible and upsetting and unnerving for you. You don't need this; not on top of everything else.


Of *course* you're in our thoughts and prayers.

Is there anything you can do for yourself, right now, to help yourself to digest this news and calm down enough to sleep? I'm guessing it's getting pretty late there...

What can we do to help?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 6/18/2010 6:52 PM (GMT -6)   
(((hugs))), Nanners. At leas the progrnosis sounds promising. And maybe fate just tossed it in here to take your mind off than knee surgery for awhile. Chin up, ole gall, this too shall pass.
My computer says I need to upgrade my brain to be compatible with its new software.

Veteran Member

Date Joined May 2006
Total Posts : 1177
   Posted 6/18/2010 7:03 PM (GMT -6)   
I'm so sorry to hear your bad news Nanners. I too was wishing that it was just a cyst. You will be in my thoughts.

Your head is probably still reeling! I think the only comfort in this situation is that by chance you caught it really early. While surgery is something noone looks forward to, it sounds like it is very early and that it's fixable. Perhaps focusing on the positive will help allay the fears.

(((Hugs))). Ivy is right. You need to be able to get plenty of rest, and stay healthy to get through this. If you are anxious and not getting sleep, I suggest you take the anxiety meds and maybe a sleep aid at night to help you get enough rest. I hope all of it goes smoothly and you recover and put this one behind you very soon.

Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission

Regular Member

Date Joined Jan 2010
Total Posts : 193
   Posted 6/18/2010 7:11 PM (GMT -6)   
You are in my prayers. You give so much understanding and encouragement to all of us. We will be strong for you, this time.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
digestive enzymes

Regular Member

Date Joined Apr 2007
Total Posts : 208
   Posted 6/18/2010 7:37 PM (GMT -6)   
Sending good thoughts and keeping you in my prayers!!!!!

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 6/18/2010 7:37 PM (GMT -6)   
Oh Gail, I'm so sorry to hear that. My dear, you will be in my thoughts and prayers until this is all over.
Jeez, I can't believe this, it's as though your body starts to recover from one thing to be hit by another.....

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 6/18/2010 7:51 PM (GMT -6)   
Nanners: Gosh, I'm sooo sorry that you have another issue to deal and on top of bad knees. Will be praying for you- I count you as a friend . . .take care.

Regular Member

Date Joined May 2009
Total Posts : 250
   Posted 6/18/2010 7:59 PM (GMT -6)   
Poor Nanners.  Doesn't it seem like sometimes it never ends?  Wow.  Its all alot to deal with.  You will be in my thoughts and prayers as you have given all of us much support.  Thanks for all you do and hope everything goes well. 
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 6/18/2010 8:10 PM (GMT -6)   
My thoughts and hopes for the best possible outcome to you who gives so much to others on this forum and no doubt everywhere she goes. Good Luck

Regular Member

Date Joined Jan 2005
Total Posts : 140
   Posted 6/18/2010 8:14 PM (GMT -6)   
Nanners, just when you've conquered one mountain, life has thrown you another. Stay strong! Take it one step at a time. You're always a great source of support on this board, please allow us to return the favour.

Veteran Member

Date Joined Jan 2010
Total Posts : 8424
   Posted 6/18/2010 8:22 PM (GMT -6)   
Ack. Well, there's still quite a high chance it won't be cancerous. But if it is, then my very best wishes for a speedy recovery. I hate to think of the worry you must be feeling over this; I won't tell you not to worry, as I'm sure it's impossible, but I do really hope that it's over ASAP.

*hugs* :-/

Regular Member

Date Joined Dec 2009
Total Posts : 44
   Posted 6/18/2010 8:54 PM (GMT -6)   
So sorry to hear about this new problem!  You are always so supportive of everyone here, now it's our turn to do that for you. Try to keep positive thoughts, and I will definately keep you in my prayers. Diana

Veteran Member

Date Joined Mar 2007
Total Posts : 1471
   Posted 6/18/2010 9:18 PM (GMT -6)   
Hi Gail,
Just wanted to include my support. I know that things will go well. Prayers and best wishes coming your way. 
My daughter was diagnosed Feb. 19/07, (13 yrs. old at time of diagnosis), with Crohn's of the Terminal Illium. Has used Prednisone and Pentasa. Started Imuran (02/09), had an abdominal abscess (12/08). 2cm of Stricture.

Regular Member

Date Joined Mar 2010
Total Posts : 105
   Posted 6/18/2010 9:37 PM (GMT -6)   
You are in my thoughts and prayers.
Diagnosed w/ Crohn's 2010
Diagnosed w/Hemicrania Continua (variation of migraine disorder)fall 2009
Diagnosed w/bilateral sacroiliitis/possible developing ankylosing spondylitis due to Crohn's 2010
Current meds: Pentasa, prednisone taper back up to 40 mg a day, omeprazole (Prilosec), zonisamide (Zonegran)

New Member

Date Joined Jun 2010
Total Posts : 11
   Posted 6/18/2010 9:49 PM (GMT -6)   
Hi Nanners.
I have only just met you through this forum. You are obviously a warm and welcoming person, always there for others. I am so sorry about your bad news. You will be in my thoughts. Hope the procedure is quick and over soon

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 6/18/2010 10:01 PM (GMT -6)   
Hi Nanners, I've posted here before when they thought I had Crohn's disease and just read your post. I wanted to share with you that my Mother-in-Law had kindey cancer a loooong time ago and when they found it, it was spreading up the tube that goes into your kidney. She had her one kidney removed and has been completely fine every since.

I also had a client once who's husband had kidney cancer omg... probably 20 years ago... exact same as my mom-in-law... he even was to the point where he had blood in his urine... they took out his cancer kidney and he's been cancer free ever since.

I just wanted to share those two stories with you and hope that it eases your mind some.

Just be thankful they found it early and that it can be taken care of :)

Hope this helps
 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
Prior Meds:
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
Current Meds:
Pentasa 2000mg 2x a day, Nexium 40mg 1x a day, Culturelle 2x a day, Xanax as needed and Ambien 10mg.  B-50 Complex 1x Day, Vitamin D 5000 IU per day.  

Regular Member

Date Joined Apr 2010
Total Posts : 69
   Posted 6/18/2010 10:07 PM (GMT -6)   
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections Purienithol (6MP), Calcium, Multi-Vitamin, Prilosec, just starting Humira
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 6/18/2010 10:38 PM (GMT -6)   
Praying for you, for healing and for your health.

Veteran Member

Date Joined May 2010
Total Posts : 8375
   Posted 6/18/2010 11:18 PM (GMT -6)   
Nanners, what a bummer! The good news is that kidney cancer is so curable when found early. The bad news is surgery - uck! So glad they caught this tumor on your CT, and I hope the surgery goes smoothly and your recovery is quick.

{{{HUGS}}}} to you!

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 6/18/2010 11:47 PM (GMT -6)   
Sometimes when it rains it pours! So sorry your going through this! I've been there..sitting in the Dr.'s office thinking something so clearly and they throw you a major curveball! sigh! I'm praying this all goes smoothly and you can just sit back this summer and heal up for your next adventure! Sounds like by Christmas you'll be all better!
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 6/18/2010 11:58 PM (GMT -6)   
Hopes and prayers that all goes OK and you have a quick recovery. Big hug too((((((((((Nanners)))))))))) just in case it helps....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7056
   Posted 6/18/2010 11:58 PM (GMT -6)   
Gosh Gail - I am so sorry! It certainly is good that it was caught when it was still small. The waiting is going to be the pits. My thoughts are with you....
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

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