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tabicat
Regular Member


Date Joined Apr 2010
Total Posts : 171
   Posted 6/18/2010 8:58 PM (GMT -7)   
So, today was my first visit to the GI in about 3 years.
 
He prescribed me sulfasalazine and folic acid.
I also have to have a scope in a couple months shocked
 
Is there anything anyone can tell me about Sulfasalazine?
Any weird reactions I should look out for?
 
Thanks!
26 y/o female from Kentucky.
Diagnosed with Crohn's in 2004. Colon resection in 2004
Had symptoms since about 2002.
Not currently on any medication. On Pentasa and Entocort in the past, with no results.
 
*we're all okay until the day we're not. the surface shines, while the inside rots*
 


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 6/18/2010 9:16 PM (GMT -7)   

I take a low dose of sulfasalazine on top of my 3g pentasa.  I had to get blood tests every 2 weeks while I built up my dose from one pill/day to my current dose of 3 pills/day.  They were checking liver function, because this medicine can adversely affect the liver.  I took blood test for about 3 months and then when all was fine I was able to skip the blood tests.

The only slightly negative side effect I've had is really yellow urine.  There's an increased risk of headache, so I make sure I take my larger dose at night when I'm going to sleep anyway.  I've been getting frequent headaches as part of perimenopause, and I haven't noticed them getting any worse with this drug.

I credit sulfazine with significantly reducing the arthritis I was having in my hands and wrists.

Good luck!


tabicat
Regular Member


Date Joined Apr 2010
Total Posts : 171
   Posted 6/18/2010 9:35 PM (GMT -7)   
Thank you!
I'm prescribed 4 tablets (2000mg) a day.
I did read online about the yellowing or skin/urine... scary stuff!

there's a warning on the bottle to avoid prolonged sun exposure.
did you have any issues with this? what would be considered "prolonged"? lol
26 y/o female from Kentucky.
Diagnosed with Crohn's in 2004. Colon resection in 2004
Had symptoms since about 2002.
Not currently on any medication. On Pentasa and Entocort in the past, with no results.
 
*we're all okay until the day we're not. the surface shines, while the inside rots*
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2010 7:31 AM (GMT -7)   
This was the first medications they used on me when I was first diagnosed over 30+ years ago. I have since developed a allergy to sulfa meds, so can no longer take it. I never had any side effects other than the yellow pee. I would avoid the sun during the afternoon hours, you don't won't be laying out on this stuff. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

sickofitall
Regular Member


Date Joined May 2009
Total Posts : 250
   Posted 6/19/2010 12:45 PM (GMT -7)   
Sulfsalzine irritated my stomach. They gave it to me for joint pains but I was unable to take it long enough to help for them. I lasted about 2 months then i realized the stomach pain was not going away. My GI did give me prilosec to help, but i discontinued the med anyway. But that might help you. Much luck to you.
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain
 
 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/19/2010 4:30 PM (GMT -7)   
"Prolonged sun exposure" varies from person to person. It could be 5 minutes, it could be 2 hours. Wear a good sunscreen and cover up whenever you are in the sun. The med makes some people sensitive so that they burn really fast but some people don't have that problem at all. You won't know until you get a bad burn.

If you are in the sun and notice any red or discomfort, cover up immediately. Don't forget the top of your head. I was taking an antibiotic that makes you sun sensitive and took care of everything except the top of my head. A peeling sunburn on your head looks like gross dandruff.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 6/21/2010 9:23 AM (GMT -7)   
Tabicat, I'm a freckled red-headish 48 year old, so I never go into the sun without slathering on the sunscreen. I haven't noticed any difference in my sensitivity to the sun, but that's probably because I avoid it to the best of my abilities.
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