How much did B12 help you?

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Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 6/19/2010 8:59 AM (GMT -7)   
Another fun report from the GI nurse yesterday: my B12 count is just over 200 and they really want to get me back up into the Normal range (200-600).  That's all fine & dandy, but again - another monthly shot, which I am not excited aboutrolleyes
 
So, for those of you doing B12 shots, what kind of benefit have you seen since you started them? 
Is it pretty minimal or did it really change your daily life?Any negative reactions/side effects?
 
I'm curious to know, and others considering B12 shots may be also.
 
Thanks!
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!


*Life is 10% what happens to you and 90% how you react to it.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/19/2010 9:56 AM (GMT -7)   
No side effects at all. I found it helped my energy levels some. If you don't want to do the shots, you can always try the sublinguals they work just as well for some. I prefer the shots.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 6/19/2010 10:05 AM (GMT -7)   
It's not the immediate results of B12 that really count. ( I really don't feel any different following my shot) It's so terribly
important to your life to keep your numbers within normal range. With low B12 levels, you could start suffering with peripheral
neuropathy and worsening lethargy. It can also affect your mental health, if left unchecked.
As for reactions, there should be none, as this is a natural vitamin. The only effect you might have is mild soreness at the
injection site.
Your level of 200 is still low, so the benefits for you out weigh the soreness of a shot. Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3110
   Posted 6/19/2010 11:54 AM (GMT -7)   
Not a big deal at all :-) I notice more energy only when I've gone too long between injections.

I give myself monthly shots...never thought I could, but it is SO EASY! More convenient than going to my doc's office, too!

Like Dunny2 mentioned...there are many reasons why you need to keep those numbers up. Your signature also mentions you've had resections...you really need injections if you've had your TI resected since that's where the vitamin is absorbed.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 6/19/2010 3:27 PM (GMT -7)   
Get the shot. Over time, low B12 damages nerve cells, which and can cause dementia, depression, numbness or tingling in your fingers and toes, anemia, memroy loss, and  disorientation.
 
Even 300 is not enough...B12 is supposed to be in the 400 and up range.
 
  
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 1000, 10mg zinc. SCD diet modified years ago to include potatoes and rice. 


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/19/2010 10:37 PM (GMT -7)   
i have been thinking about the b12 shots as well...i'm going to ask the doc next week- although from what i've heard from a chiropractor friend who treats some chrohns patientd the b12 has been a big benefit to them and their energy levels.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


Dooger73
Regular Member


Date Joined Aug 2006
Total Posts : 29
   Posted 6/21/2010 6:45 AM (GMT -7)   
Thanks, guys - I'll be starting my shots this week. I know the LT effects of B12 deficiency can be pretty ugly, I was also trying to gauge what the more immediate benefits may be. Yes, OHIO - 2 resections @ my T1 - probably a big factor in my B12 #s. I'm just glad to be getting some solid direction from my GI and looking forward to maintaining better health...but I still hate needles! =)
Dooger73
(not-so) Successfully In Denial of my Crohn's Disease since 1985!
Resection surgeries 1993 and 2004 and aggressively avoiding another.
May 2010: Currently on Pentasa and enough Prednisone to revive a dead horse!
Proud husband to my wonderful wife and daddy to 3 great kids!
Life is 10% what happens to you and 90% how you react to it.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/21/2010 7:55 AM (GMT -7)   
I notice when I am due because my scalp gets all tingly. And I tend to sleep a little bit better, not as restless. Other than that, I don't notice anything. It is much easier to do the shots at home than to drive to the doctors, wait around for the shot, then drive home. But I'm to chicken to give myself the shot, so my husband does it for me. He calls it playing darts with my arm.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 6/21/2010 5:46 PM (GMT -7)   
B12 shots or sublingual B12 is essential, especially if you have lost the terminal ileum. No terminal ileum - no B12 absorption. And as another poster mentioned, the long-term consequences are serious if you don't get them.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/22/2010 12:18 AM (GMT -7)   
At every 4 weeks, all I notice is 2 nights of great sleep with good dreams. If I forget and go to 5 weeks I notice more energy for a day as well.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

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