Flare w/o D? Crohns misdiagnosis?

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QueenCityCrohnie
New Member


Date Joined May 2010
Total Posts : 16
   Posted 6/19/2010 2:37 PM (GMT -7)   
Going on 6 months since diagnosis. To this day I have not had high frequency or diarrhea. What are common symptoms of a flare? Really all I have had is pain, nothing too severe, and gurgling in my stomach (which is actually pretty constant.)
I really dont even think I have crohns. Cant you have ulcerations in your intestines without having crohns? Is it possible to be misdiagnosed with Crohns? What are some similar diseases? IBS? etc?

tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 6/19/2010 3:53 PM (GMT -7)   
You can be misdiagnosed as there are other things that can mimic this. IBS for one. But, I would not only go by having or not having D. I was misdiagnosed for 8 years as having IBS when in fact I had crohns. Even when I started this last flare in Ocotober which finally made me seek out a GI doctor I never had D. I had multiple bowel movements to be sure but never had an issue with D. I did not start that till two rounds of Flagyl in February. The best way they can tell is to do tests and rule out other issues. I had a colonoscopy, small bowel follow thru (barium swallow) and blood work to be diagnosed. Many people actually have varying symptoms for a flare. For me I had a constant nagging inflammation feeling in my upper intestine. The best way I could explain it is imagine someone on the insides of your intestines rubbing it with sand paper. I also got painful cramps and spasing. Many people on this site have issues with joints, skin and eyes.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Multigen


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/19/2010 4:16 PM (GMT -7)   
Hi, welcome to this discussion board-there are lots of great tips, suggestions and support here. As far as diagnosis I think it is a slow process that combines progressive symptoms, blood work and biopsy results. As for me, I have had low right sided abdominal pain for the last 1 1/2 years culminating in removal of a perfectly good appendix and subsequent hospitalization for 3 days due to a bad infection all in March. April was the month of lots of bowel movements, weight loss and pain. Seems that everyone is a bit different in presenting symptoms and the route to final diagnosis not straight. I had a hard time understanding what a flare consisted of, again so different for each person. My GI said that it was any increase in symptoms, so good luck, keep reading and asking lots of questions. Take care.
newby

Post Edited (grumpygi) : 6/19/2010 5:23:43 PM (GMT-6)


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/19/2010 4:24 PM (GMT -7)   
Were the ulcerations biopsied?

My inflammation is in my small intestine where they can't reach it for a biopsy. Both upper endoscopy and colonoscopy were fine, the inflammation showed up when I swallowed a pill cam. My diagnosis is "ileitis, probably Crohn's".

I will eventually get a second opinion, I just hate the tests.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/19/2010 4:25 PM (GMT -7)   
I have never had diarrhea - except right after surgery for about a week. It's a misconception that all people with Crohns have chronic diarrhea. Lots of us have normal BMs or constipation.

When I'm flaring, it's pain, joint pain, sores, gurgling, tons of gas, etc that are my symptoms. It's taken me a long time to zero in on my MY symptoms and not worry about others, you know? Me and my GI have a good understanding of my body and it's signs.

grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/19/2010 4:26 PM (GMT -7)   
Dagger: DITTO-we are twins separated at birth!
newby


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/20/2010 7:50 AM (GMT -7)   
I suffer with more constipation than diarrhea. If you are finding that your bm's are really slow, you have alot of gurgling, and pain, you may have a stricture or narrow area from the Crohns. Not all of us have diarrhea. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/20/2010 8:59 PM (GMT -7)   
Yep, I agree with the others who posted and said that not all Crohns patients have Diarrhea...I certainly don't and I have Crohns and know for SURE it's Crohns for over 10 years. Most of the times I have those exact problems in a flare--the gurgling, pain, constipation and never diarrhea....the docs told me since the intestines can get SO inflamed during a flare that it can constipate you naturally since the path of course is more blocked....and yes, the other reasons people stated too...with me scopes showed it was the inflamation of the crohns acting up that was causing most my problems when I flare---now to just STOP the flares...ugh....
29 year old Crohns patient of 10 years. Currently on Imuran and Vitamin B12 injections.

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