safe list making me go!

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Regular Member

Date Joined Jun 2008
Total Posts : 221
   Posted 6/20/2010 11:25 PM (GMT -6)   
For the past year I have felt the best I have since I was diagnosed. Now on the one year anniversary of getting a colostomy I seem to be getting sick. My safe foods have slowly been going to my no list. The worst part is that not only has it been making me go but I go so much in so few minutes, literally minutes after I eat something, that the poop goes through my bag. I don't know what to do. I have just been getting my life back on track and don't want to deal with the same thing all over again. Need advice, support, and just to vent.
Diagnosed with Crohns Oct. '07.  Have had 9 abcess/ fistula surgeries.  Colostomy 20 March 2009.
Current Meds:
Imuran 200 mg                            Omeprazole 20mg                     Vitamin D 2000 i.u.          Remicade 10mg x8wks
Synthroid 112mg                          Lexapro 20mg                           Tylenol  50mg
Birth Control                                 Calcium  500mg                         Morphine 40mg
Sucralfate 1gm x4                         Multi Vit                                     Cyclizine   50mg

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 6/21/2010 2:42 AM (GMT -6)   
Search in the window above the following "Healing Well What are your safe foods?" this was a topic late last year and will give you an idea of what some of us eat as safe foods and maybe you'll get some ideas to help you. Sorry your feeling so poorly. Before my only surgury in 2002 I was in your position as well, frequently there were no safe foods or even liquids. Thus the surgury. Hope things go better for you. Perhaps a few or more days of liquids only? Remember to keep up your electrolites and vitamin and minerals, possibly using Boost or Ensure like products to give your system a rest. Rob
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3106
   Posted 6/21/2010 6:07 AM (GMT -6)   
I've been told that Colostomies work 'differently' with Crohn's should check out the Ostomies Forum (use 'Quick Jump') and ask some of the posters there.

Is it diarrhea, or quick transit? If it is diarrhea, you may want to be checked for C-Diff (if they don't already) when you have your monthly Labs.
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

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