colonoscopy done

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Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 6/20/2010 11:15 PM (GMT -7)   
well last week I had my scope...it was terrible, I have never felt so much pain, I don't think the sedation was enough and I felt every little thing they were doing!!
The good news is they said the colon looked normal,showing no signs that the crohns has spread into the large intestines, although they did say they found it difficult to get round the colon because of my incisional hernia. So to me it sounds like some of my problems are maybe because of my hernia.
However, they did say that my ileocecal valve and appendix orofice was distorted....I am still trying to figure out what that actually means, if anybody could help me on that one?
I am only due to go back and see the specialist on the 6th september for any results and the next actions to be taken.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/21/2010 1:27 AM (GMT -7)   
Don't you just love the timely concern for your health, welfare, comfort and concerns??? Scope in June and ta ta, we'll see you in September.

#1] I'd be looking for a new gastro. One reason being if you have a healthy colon there is absolutely NO REASON you should have had so much pain during the colonoscopy even if you had had no sedation or analgesia at all. This doctor obviously has NO SCOPING SKILL AT ALL. And no concern for his patient's comfort at all either. He's barbaric. Your pain could well have been caused by adhesions from your previous surgery. Still, he should not have continued w/the scope w/o adequate sedation.

#2] I have no idea what was meant by "ileocecal valve and appendix orofice was distorted". Where was your resection? Was it in the terminal ileum? The ileocecal valve is at one end of the cecum, its where the terminal ileum and cecum meet. The appendix drops off the bottom of the cecum. The cecum is the first part of the colon. Where is your incisional hernia located? Quite often the first resection for Crohn's is at the terminal ileum and requires removal of the ileocecal valve and some part of the cecum and/or beginning of the ascending colon.


My computer says I need to upgrade my brain to be compatible with its new software.

Post Edited (CrohnieToo) : 6/21/2010 2:32:40 AM (GMT-6)


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 6/21/2010 9:51 AM (GMT -7)   
don't forget we are dealing with the NHS here, you don't get to really chose who your gastro is, and whoever is doing the scopes for that day,is who it is,there is no choice in that either! I think the pain was caused by them basically moving the hernia to get to the intestines and also they were moving me left right and centre every which way to get through the colon.
my resection was an ileocecal resection, they did remove part of the small intestine and a portion of the large as far as I can understand.My terminology isn't very good when it comes to this, but obviously didnt remove the valve if thats possible.
My hernia is on the right hand side of my belly button, if that is any help at all, but they haven't actually told me where abouts it is in relation to the colon.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 6/21/2010 10:38 AM (GMT -7)   

I am so sorry you went through this. My sister had a similar experience where she was awake and in pain. My other sis who is a nurse told me to speak with the anesthesiologist and specify my desire to be completely out. I did and my experience was as follows.  

Doc: I am giving you the med to put you asleep,  it might feel warm

me: How long does it take?

Doc: Wake up now, the procedure is finished, would you like a drink?

It sucks that the med profession would operate so poorly and be so insensitive. I will be extra careful that I am explicit moving forward. Truth is, if I was awake I would be making such a fuss they would put me to sleep, even if they had to knock me on the head to do it.

David

 


Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone starting at 40 mg (moving to 30 soon YEA!!), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg

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