Anyone Usig LDN? Low Dose Naltrexone

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

teedlebomb
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/21/2010 8:26 AM (GMT -7)   
My buddy has Crohn's and is close to surgery to remove part of his bowel.  I've read great stuff about LDN.  Anyone have any info?  Tnx!

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 6/21/2010 9:03 AM (GMT -7)   
i got script for it once but never filled it. I always wondered how strong the medication is, like is it on par with stuff like asacol or does it have the strength of stuff like Imuran/Remicade. So is it completely ridiculous for someone has failed biologics to even start LDN?
Crohn's Colitis diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc


teedlebomb
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/21/2010 9:35 AM (GMT -7)   
Tnx jp. You may as well try it if you're not happy with your current meds. From what I've read, it works very well for some people. Appears to work best the when intestinal bacteria are balanced - yogurt, bio-beads, good food, etc.

dms40
Regular Member


Date Joined Oct 2009
Total Posts : 37
   Posted 6/21/2010 12:10 PM (GMT -7)   
My 16 year old son is on LDN, he went on it August 2009, he started Hyperbaric oxygen at the same time, his CRP went from 48 down to 3 within 5 weeks and he gained 9 pounds, after stopping HBOT his LDN was compounded incorrectly (with Lactose) in Dec/Jan and he went through another flare where his CRP again rose to the 40's.  We got the compounding fixed and he is now in remission, latest blood work showed normal CRP numbers again,  he is also on SCD.  
As with other drugs I believe it works for some and not for others, it was suggested to us when he first went on it to do a yeast treatment which we did with a natural product called Candacin. 
Also, it is a good idea to start with a dose of 1.5 mg and work up to 4.5, the only side effect is some strange/vivid dreams.  Some people feel worse on it at first before they feel better, but there are many Crohn's success stories using LDN.   Your biggest problem with LDN may be finding a Dr. to prescribe it, or getting a GI to support you while you try it, ours was VERY skeptical at first, but I was the PITA mother who didn't take no for an answer - I figure the bigger medicines are still out there if LDN doesn't work (or quits working). 
As for whether it's on par with Imuran etc, no probably not, because it works in a completely different way, ASA's try to control the inflammation, Imuran suppresses the immune system, LDN modulates the immune system, or tries to kick start the immune system to work appropriately, and to not over react. 
Here is a link to an LDN yahoo group, you might find some answers there.
 

teedlebomb
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/21/2010 12:43 PM (GMT -7)   
Tnx dms40. I'll pass this info onto my buddy. He's skeptical about LDN too since its "his gut" that we're trying to help but he's running out of options as his doctor is now discussing surgery to remove part of the bowel. We'd like to avoid that. And congrats on being a PITA mother. The docs don't know everything, regardless of what they believe, and need to let us help them out sometimes. The web is a great source of info and can help a great deal in doing your own research. Tnx again and best of luck with your son.

dms40
Regular Member


Date Joined Oct 2009
Total Posts : 37
   Posted 6/21/2010 1:58 PM (GMT -7)   
No problem Teedlebomb, I hope your buddy has great results if he decides to go ahead with it.  Two things to keep in mind when getting a prescription filled, no lactose as a filler, avricel or acidophilus is good and the pharmacy must use quick release naltrexone. 
 

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 6/22/2010 1:36 AM (GMT -7)   
Thanks for the info on LDN dms40. This past week or two it is becoming apparent that son's medication is maybe not working as it should do(Azathioprine/Pentasa). Will go armed with info on LDN at next appointment(at least GI will not be able to 'instantly dismiss it' because he did encourage me to do active research online smilewinkgrin )

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 1281
   Posted 6/22/2010 4:24 AM (GMT -7)   
My friend has UC and she started LDN a few months ago. She is doing great, she said she actually wakes up with no symptoms at all and this is the first time for that in years!

I am getting ready to try it, I should receive it this week.
Diagnosed with Crohn's in 1998, father has UC we were diagnosed at the same age.

Currently on Prednisone, Sulfasalzine, Probiotic, Flax Oil, Calcium, Magnesium, D3. Previously on Remicade, just stopped Humira after 9 months, wasn't working.

No surgeries so far.


njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 6/22/2010 10:00 PM (GMT -7)   
My daughter has been on LDN for about a year, now. Used it to taper successfully off Entocort.
 
The LDN lowered her sed rate right away, but the CRP has inched up slightly since she stopped the Entocort.  
 
So now she is trying strict SCD combined with LDN to see whether that tamps down the CRP.
 
No side effects that we can see or that have shown up in labs.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 11:11 PM (GMT -7)
There are a total of 2,736,221 posts in 301,362 threads.
View Active Threads


Who's Online
This forum has 151452 registered members. Please welcome our newest member, sarajseri.
215 Guest(s), 4 Registered Member(s) are currently online.  Details
c130j, bluelyme, jrpsf, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer