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peony1978
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/21/2010 11:17 AM (GMT -7)   
I have just joined and would like to introduce myself.  
I am 32 and was diagnosed with Crohn's 9 months ago.  I am still trying to figure out all of the lifestyle changes.  I was literally fine one day and sick the next.  So far I am taking daily: Pentasa 4 grams, Entocort 9mg, omeprazole 40mg, Zofran 8mg.  I tried 6mp but it made me very nauseous.  Last week my gi added Miralax and milk of magnesia because I am suddenly constipated and having a lot of pain.  Humira has been suggested-it makes me a little nervous. 
 
I am loosing 1/2 to 1 pound a week.  How in the world do you gain weight during a flare?  I still don't know if this is a flare or my new "normal".
 
peony1978

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 6/21/2010 11:29 AM (GMT -7)   
Hopefully this is a flare that you just haven't resolved yet. It took me about 4 years to work out all the kinks, and I still have problems occasionally, but my quality of life is pretty good. I hope you feel better soon! I've had problems with slow bowels - I hesitate to say constipation, because I haven't had a hard stool in .... 10 years? - and it does get annoying.

At one point in the midst of my worst flare, my DR asked what if anything made me feel better. Since I had just fasted for Yom Kippur and then again two weeks later for a colonoscopy, the answer was so clear - not eating made me feel great. Clearly, that is not a solution, but doing a low residue diet to rest my bowels did help me feel a lot better. I revert back to that whenever I'm feeling bad. I don't know if you've made any dietary changes, but you might find that changing a few simple things will help a lot.

peony1978
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/21/2010 11:36 AM (GMT -7)   

It makes me feel better knowing that I am not the only person who feels better when I don't eat.  I continue to adjust my diet and just when I think something is ok to eat...it's not.

You are right that you can't call it constipation, although my GI does.

 


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 6/21/2010 12:50 PM (GMT -7)   
Hi! Welcome to the board. We are glad to have you although I hate that you have to have crohns. I was like you losing steadily up to a pound a week when I started my first long term flare in october. The doctors said it was not a significant amount of weight..but given my past history I am slow to lose weight and I never ever lose weight when I am not trying to. What person usually does? I lost a total of 25 pounds since October. Again, not terribly alot but enough. I had chronic inflammation like pain in my upper colon/stomach area and very bad cramping and spasing. I feel like I am slowly coming out of this flare now and I have way more good days than bad. I have just learned that some things I may have to live with as I will never be 'normal' again. I have been on treatment since February and we did have to make adjustments. We added in Entocort and upped my Lialda. This mediine does take a while to kick in I am afraid. As far as food to gain weight I started drinking Carnation instant breakfast along with my cereal on the morning. It helps give me iron that I need and has other vitamins. One warning is there is a good amount of sugar, but to drink something like Ensure is so repugnant to me!! I also have started drinking the V8 fusion drinks. They are suprisingly good and a way for me to get a flavored drink that doesn't have added sugar.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Multigen


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/21/2010 8:22 PM (GMT -7)   
Hi and welcome. Sorry you have crohns. Lots of good people here and now one more.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/22/2010 6:22 AM (GMT -7)   
Hey Peony and welcome to the Healingwell Crohns forum, only sorry you have to join our group. Look forward to hearing more from you.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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