Strictureplasty - views please

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missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 6/22/2010 6:38 AM (GMT -7)   
Having had an MRI which showed fairly extensive active Crohns and strictures dotted about the small bowel my GI said resection is not an option.  He wants me to start on Remicade for which I am waiting for funding to come through (I live in the UK).  I understand that Remicade will not heal the scarring only help the active Crohns.  If this does not work (assuming the NHS will fund the treatment) then he said I will probably have to have strictureplasty.  The question is should I be asking for the surgery anyway.  My reasoning is that at the moment I am in fairly good health (steriods keeping things under control with Methotrexate) and if I may need surgery anyway isn't that the best time to do it, along with I'm late 50's so not getting any younger.  I totally understand that surgery shouldn't be undertaken lightly and there are always risks involved, but it seems silly to wait until I have another obstruction and have to have something done in an emergency.  What do you all think ?

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 6/22/2010 6:46 AM (GMT -7)   
I'd much rather have surgery when my active Crohn's is "deactivated" by Remicade rather than by steroids!!!!

I'm firmly convinced that my 20 year remission of Crohn's after my resection was because I was fortunate to have spent 6 weeks in hospital on IVs and NPO and my active Crohn's "shut up" and "shut down" and in remission at the time of my resection.
My computer says I need to upgrade my brain to be compatible with its new software.


mikesmom
New Member


Date Joined Jan 2007
Total Posts : 4
   Posted 6/22/2010 3:11 PM (GMT -7)   

 

I am not a CD patient, I am the mother of one. 16 months ago, my son presented with a psoaz abscess.  they tried to do a colonoscopy, but he had a stricture 8 inches long, and about the diameter of a pencil sitting directly above his rectum.  As he is allergic to remicade, his physician told hom that surgery was the only viable option, and that he would most likey have a permanent ostomy.  He declined the surgery, electing instead to have a drain inserted into the abscess through the psoaz muscle.  He then started a homeopathic treatment with Thiosinaminum along with 200 mg of CoQ10, gradually bumping it up to 1 gram of CoQ10 per day, along with the antibiotics prescribed to relieve the abscess.  At the end of a month, the tissue that looked black and dead 30 days post hospital began to pink up.  at 3 months, the drain was discontinued.  The area where the stricture had been was pink and slightly narrowed compared to the bowel above it, it was nonetheless functional and the abscess had resolved.  One year later, the abscess reoccurred, along with a fistula, but the stricture is still gone. If remicaid is not a viable option and stricturoplasty is not in the near future, perhaps some careful research on thiosinaminum and possibly a visit to a homeopath might be worthwhile, at least as a bridge to other treatments?

 


   mom to Mike the wonderkid, with a broken body and a too kind heart, CD, LD, ASD, auto-immune arthritis, when will he get to be just Mike?


pixie3333
New Member


Date Joined Dec 2013
Total Posts : 1
   Posted 12/17/2013 3:00 PM (GMT -7)   
@mikesmom I hope your son is doing well. I was curious to know what dose of thiosinaminum your son took to help with the stricture? I am considering trying thiosinaminum for myself to treat my intestinal strictures, but I am having trouble finding any information about doses. Thanks :)
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