need some diet ideas

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/22/2010 4:32 PM (GMT -7)   
Hi all,

My throat and mouth are super-sore and ulcerating, and I'm trying - in a very brain-foggy state - to remember the sorts of non-acidic, soft foods that will just slip down the throat without causing too much pain.

So far I have:

* pureed soups
* fruit smoothies
* pureed veg
* soft bread with margarine / peanut butter etc
* eggs
* porridge / semolina etc
* baked custard / rice pudding / tapioca / blancmange / ice cream etc
* shepherd's pie / cottage pie


All of this is starting to sound and feel VERY stodgy so I'm after any extra ideas? I can't handle dairy and can only do lite soy milk, so that excludes some dishes and obvious solutions like cheese. And please remember that it's winter here, so soft fruits like melons aren't really available. I have enteral feed here but really don't want to go down that route, because it's foul and fatty and full of bad things like palm oil that I'd much rather avoid.

I'd probably be able to hash this out by myself, but it's been a while since I've had to deal with upper gastro ulcers, so I'm hoping that someone here might be able to refresh my memory on some foods that will work.

Thanks heaps,

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 6/22/2010 6:06 PM (GMT -7)   
Get a prescription for Oracort. It is a dental steroid and helps IMMENSELY with mouth ulcers.

Otherwise, drinking chamomile (or decaf green tea) with unpasturized honey also helps. Drink it warm, not too hot, and swoosh it around in your mouth for each mouth full.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/22/2010 6:41 PM (GMT -7)   
Thanks, Roni.

You know, an oral steroid has never been offered me. I wonder why not - maybe it's not available here? I will ask about it, when I get to see my gastro.

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/22/2010 6:46 PM (GMT -7)   
Ivy:  I'm not the most seasoned person  on this web site -so your foods seem "safe" enough to me, but with more pain - do you think cold popsicles would help? Even chilling jello to sloshie set would provide protein and cold at the same time - something to help ease the pain at least for a bit.  Am sorry that you are struggling, you have been a great source of advice for me and I appreciate your wisdom so much. 
 
 Another suggestion is to  make sure you are getting  your daily calcium dosing-women need 1200 mg/day (minimum) without the negative effects that dietary restrictions and crohns meds have on calcium absorption and retention. 
newby


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/22/2010 6:59 PM (GMT -7)   
No worries about the calcium, GrumpyGI. Right now I'm thinking that my soft foods are overly reliant on carbs and dairy, and I need to explore some other ideas. But thank you.

The jelly is a good idea. I'm thinking of making some real stuff, though (with real gelatine) because the packet stuff reminds me too much of bowel prep.

Frozen stuff - good idea. Thanks. Maybe even if I grind up some ice cubes and mix it in with things?

Thanks, too, for the kind words.

i.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/22/2010 7:07 PM (GMT -7)   
Ivy; Have you tried any of the soy ice creams and soy yogurts? No references here - but just another alternative that I was fondling in the whole food store recently (still didn't have the courage to buy any . . .probably would rot in my fridge). But any way - would put ice cubes in anything if it meant feeling better. do be careful with using too much steroid even in an oral product - interferrs with tissue healing and can make things worse if used too often or too long. best always. barb
newby


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/22/2010 7:12 PM (GMT -7)   
Soy yoghurt is revolting :-) here - puree fruit in tofu and you'll get about the same result - but the ice cream is ok.

You're right about the steroids. Maybe that's why they've never been prescribed...
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 6/22/2010 7:41 PM (GMT -7)   
Oracort doesn't interfere with tissue healing. On the contrary, when I don't have it, I suffer for days longer. I put the oracort on my mouth ulcers and within hours, I feel a huge difference. It is the only thing that helps me, way better than gargling with salt water.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/22/2010 7:49 PM (GMT -7)   
I think the point is that extended steroid use can weaken skin tissues, so you're both right.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 6/22/2010 9:04 PM (GMT -7)   
most people over look the power of water in cases of ulcers and mouth sores and fatigue. i am not saying it is dehydration, but these are definitely some symptoms. i'd say drink more water. ditch all other liquids and drink at least 1/2 gallon per day for a while and see what happens.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


viv1123
Regular Member


Date Joined Apr 2010
Total Posts : 20
   Posted 6/22/2010 10:53 PM (GMT -7)   
Echicanea Tea is good for mouth ulcers.
Viv1123


dreamlady
New Member


Date Joined May 2010
Total Posts : 19
   Posted 6/23/2010 12:06 AM (GMT -7)   
Ivy I am also in winter here in Australia - Apart from the Crohns I also suffer from reflux/gastritis but am actually not too bad atm. I stay away from all the acidic fruits, etc. I have been able to buy and eat rockmelon (however it is more expensive this time of year and not as good as summer time). How about some steamed fish (just dont add anything like lemon, soy sauce - too acidic) I eat a lot of fish and find it nice and soft and easy to digest. Papaya/paw paw is also good to eat and nice and soft and not acidic. I also use rice milk these days instead of dairy and make banana smoothies with that. I agree the soy yoghurt here is awful!

DREAMLADY
dx April 2010
Current Medications: Predisone 15mg, Imuran 150mg, Somac 20mg, Coversyl 10mg, Vit. D - daily

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/23/2010 1:16 AM (GMT -7)   
Dreamlady, steamed fish is a brilliant idea! I've been eating tinned tuna but somehow steamed fish slipped my mind, which is pretty silly of me. (I told you I was foggy).

What sort of fish do you buy to steam?

btw, I thought you might like to know that I've just been to see my doctor. My blood tests are still good, but I'm running a temp so they seem to be thinking that I might have some sort of infection somewhere, but they haven't been able to find it. I'm unconvinced (hey, it looks like Crohn's) but am reassured that, whatever it is, it's not so nasty that it's obvious.

In the mean-time, I'm going to make another smoothie. My throat hurts :-(.

Thanks again for the advice and ideas. Please do keep 'em coming...

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/23/2010 6:31 AM (GMT -7)   
(((Ivy))) I am so sorry to hear of the mouth ulcers. Ouch, ouch ouch! The one thing above I think would be good for you is the frozen things. Maybe make some slushy like smoothies? Hope this clears uo for you soon.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lamb61
Veteran Member


Date Joined Jan 2005
Total Posts : 1718
   Posted 6/23/2010 10:52 AM (GMT -7)   
Ivy,
When I'm having throat & mouth issues I find it best to avoid most sugary foods. In fact eating things like popsicles, jams etc. tend to give me upper CD issues. I also noticed that fatty foods will also give me probs. Hope you're feeling better soon.
 


dreamlady
New Member


Date Joined May 2010
Total Posts : 19
   Posted 6/23/2010 9:53 PM (GMT -7)   
Ivy I tend to eat a lot of salmon these days but in the beginning even this was a bit too heavy for me to digest so I started off with white fish like perch fillets which are nice and soft and quite easy to digest but really any white fish fillets like john dory etc would be good. Hope you are feeling a little better!

DREAMLADY
dx. April 2010
Current medications: Predisone 15mg, Imuran 150mg, Somac 20mg, Coversyl 10mg, Vitamin D - daily
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 8:53 AM (GMT -7)
There are a total of 2,732,069 posts in 300,986 threads.
View Active Threads


Who's Online
This forum has 151152 registered members. Please welcome our newest member, JesperTrottier.
254 Guest(s), 10 Registered Member(s) are currently online.  Details
imagardener2, Michael_T, ASAdvocate, ks1905, colitisteen98, Traveler, JamesE, Mister Mike, multifacetedme, joee


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer