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NJDarthane
New Member


Date Joined Jun 2010
Total Posts : 3
   Posted 6/24/2010 7:39 AM (GMT -7)   
Was diagnosed (after a GI doc rushed me into day-procedures on Christmas eve) with crohns a year and a half ago, it was seemingly mild till it spread down far enough to hit a VERY sensitive bundle of nerves and apart from this the doc said he wouldn't have had me on anything at all.

Slowly stepped the imuran up to 200mg a day and 12.5mg pred 3/7 and seemed to be fine for about 16mths, then I had a massive flare up.

Now the imuran upto 250mg a day and 12.5mg pred 4/7 AND 7500mg of colazide daily, its a modest handful each day.

Learning to live with it, on that much imuran I am finding I am very sensitive to sunlight (basically if its any brighter than heavy overcast outside I am wearing sunglasses or just walking around blind), and being in Australia I also need to be careful of skin cancer.

Main reason I logged on here is to ask about diet, I have had a dietician telling me to be careful of some foods, and has had me keeping track of what causes pain, when I asked my GI doctor about it he almost laughed and said that once the drugs are working right, diet won't affect it too much.

Also got the "flu going around" which seems to have progressed into an oral yeast infection, calling my doctors tomorrow to see if they can see me quickly or could just cut me a script (have had these before, but not usually this bad).

Anyway, Hi :)

edit

Oh should have probably said, was diagnosed just after I turned 29, male.
250mg Imuran daily
7500mg colozide daily
12.5mg (4 days a week) pred

Crohns finally in check :)

Post Edited (NJDarthane) : 6/24/2010 8:42:27 AM (GMT-6)


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 6/24/2010 8:12 AM (GMT -7)   
Hi n glad you found us here
im sure more pppl will answer your questins about imutan
ive not be on that one yet many here hv..
again welcom to the family
u will get great support n input here
hugs lyn
                 Co Mod for... CROHNS..ANXIETY/ PANIC.....ALZHEIMERS
        DX.. a/p ....crohns ...fibro... pyoderma gangrenosum..seizures....deaf
            meds..lyrica..pentasa...valproic acid..ativan...diazepam....t 3 s prn
                  Help HEALING WELL...DONATE...www.HealingWell.com
                        WE CAN N WILL GET THRU THIS TOGETHER
                                                   LYN                       


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 6/24/2010 10:56 AM (GMT -7)   
There are lots of disccusions on this topic in this forum. Take a look at "Food and Crohns" going on right now. In addition you can use google. Tyoe your question followed by Healingwell and all the older threads will come up. I did this and lots of great info came up.
I just added my comments re food on the other couple of threads so I will not repeat here.
Welcome and Auzies are great and so is Auz.
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone starting at 40 mg (moving to 30 soon YEA!!), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 6/24/2010 12:24 PM (GMT -7)   
Hi :p

Not sure what you want to know about diet, except that for every person who has Crohn's there will be a different opinion on it :/

It's not very helpful but it's something you really have to make up your own mind from, based on your own experiences and background reading. GIs won't generally help out in this area either. I actually feel sorry for newly-diagnosed people facing this confusion. It's not like Coeliac disease, where diet effectively = cure. Most people with Crohn's end up forging their own diet through trial and error.

I personally think that diet probably doesn't affect the outcome of Crohn's in most cases. But nobody actually knows, so if you feel that excluding certain foods, or going on a special diet, helps your symptoms then go for it. I could be wrong. Just wish we could find out, one way or another.
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