Remicade and blood work

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BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 6/26/2010 7:47 AM (GMT -7)   
For those of you on remicade, how often do you have blood work done? And what kinds of tests does your doctor order? I've been on remicade since November and I've only had blood work done one time. I don't know if my doctor just doesn't think about it or think it's important. I would love to hear any input from what other doctors do. Thanks so much :-)
35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.


~Trying to avoid surgery as long as possible~


mv4au
Regular Member


Date Joined Jan 2010
Total Posts : 37
   Posted 6/26/2010 8:44 AM (GMT -7)   
I have blood work done before every treatment.
32 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery


Aidy
New Member


Date Joined Nov 2003
Total Posts : 16
   Posted 6/26/2010 9:39 PM (GMT -7)   
i also get blood work done every time (i go in every 8 weeks). i get my infusions at an arthritis dr's office and it may be their requirement (though my gastro is def. interested - esp since i'm pregnant right now).
-Diagnosed with Crohn's in 2000 when I was 21
-Took Asacol and 6MP while pregnant (healthy pregnancy/healthy baby!)
-Currently on Remicade and Pentasa
-My dad and 2 of my 3 siblings also have Crohn's.


WendyG
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 6/27/2010 3:05 AM (GMT -7)   
they draw blood every time my son goes for treatment

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 6/27/2010 6:23 AM (GMT -7)   
I always get drawn when I see my GI but never have before an infusion.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 6/27/2010 8:26 AM (GMT -7)   
Every 4-6 months for my hubby when he visits the doctor. They don't do any bloodwork before treatment. They watched his bloodwork more closely when he first started remicade (every 2 months or so). He's been on remicade now over 2 years.
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/27/2010 9:05 AM (GMT -7)   
Every time. When I went to a ped GI, they required it. My adult GI never said anything, but I request that it be done before every infusion.

BellsforHer
Regular Member


Date Joined Oct 2005
Total Posts : 429
   Posted 6/27/2010 1:59 PM (GMT -7)   
Thanks everyone for your replies. I'm going to ask me doctor when I call next week to have remicade scheduled.
35 year old Female

Entocort EC 9mg per day and Remicade

Tried Remicade 2 yrs ago for about a year and a half and loved it, got off it due to costs, tried Humira and it just didn't work for me so now back on Remicade.


~Trying to avoid surgery as long as possible~


onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 6/27/2010 8:28 PM (GMT -7)   
. . . They require bloodwork for Remicade?

Wow, I always knew my GI was not the brightest crayon in the box, but . . . wow. What are they supposed to be checking for?
Diagnosed with Crohn's in 2008 at the age of 22. Also dealing with gastroparesis & GERD.
Currently on: Remicade, Imuran, Pentasa, Tramadol, Welchol, Phenergan, Ambien, Reglan, Prilosec, Hyoscyamine


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/28/2010 1:16 AM (GMT -7)   
As with drugs like steroids I believe the danger is to the liver and certainly your white and red blood cell count. Others more educated can be more presise than I. For the first year I was on Remicade I was checked every 8 weeks now it's every 4 months. (I'm in the begining of my 4th year now).
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/28/2010 3:04 AM (GMT -7)   
I have my CBC, liver and kidney function checked. I also have my vitamin D levels checked because I had low counts for over a year. I *think* liver and kidney function are checked because of the amount and type of meds we're taking, just to make sure everything is okay. And the CBC is to check red blood cell count (for anemia) and the white blood cell count (Remicade can alter that in some people since it's a type of immunosuppresant).

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 6/28/2010 6:33 AM (GMT -7)   
I start rem for first time tommorrow, what can i expect as far as the next day goes? should i just relax around and see how I feel or what? I'm 60 today and I really wanted my infusion today on my birthday, would be appropriate, but oh well

artist guy


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 6/28/2010 3:57 PM (GMT -7)   
CBC/diff, AST, ALT- those are your liver enzyme levels since Remicade is processed by your liver. Unless indicated by your doc, it isn't necessary to have bloodwork done every infusion. I've been on Remicade for 2 years and had them checked every few months after starting treatment. Now it's once every 6 months. If you are concerned, talk to the doc and I'm sure he'll order bloodwork for you. Better to be safe than sorry!
Pentasa- 4 g q day; 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; omeprazole 40mg; Xanax-ANXIETY; Effexor ER 150 mg
Hope this clears up soon, I want to start having babies!


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/29/2010 12:12 AM (GMT -7)   
artist guy don't anticipate anything, alot of us have no symptoms at all. Hope your one too!
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

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