Recommendation to buy Pentassa??

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DaveF
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Date Joined Jan 2010
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   Posted 6/26/2010 1:48 PM (GMT -7)   
I bought 500 mgs of Pentasa from Canada and they came as tablets. My doc says I need capsules not tabs. I have looked online and I can only find tablets. I do not want to buy through insurance. Can anyone please help with a recommendation as to where to 500mgs Pentasa offshore
Thank you
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


grumpygi
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Date Joined May 2010
Total Posts : 266
   Posted 6/26/2010 7:36 PM (GMT -7)   
dfdavedf: How do you tell if the company you are purchasing pharmaceuticals from is legit? Seems to me that the risk is too great for "fillers" to be sold at drug level prices without verification of quality, safety and knowledge about all the ingredients in the product being sold. Don't know if you are in the U.S or not, but generics here are controlled as closely as name brands. The FDA requires the generic drug to be 80% as effective as the brand name drug-the 20% variance is around mean effectiveness. Many of drugs sold from "online" pharmaceutical companies are routed to Canada originating in Africa or other underdeveloped countries. Just sayin, consumer beware.
newby


Rider Fan
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Date Joined May 2008
Total Posts : 1445
   Posted 6/26/2010 8:38 PM (GMT -7)   
Yup, African or Indian made knock-off drugs is what you could get from the online "pharmacies". Buyer beware indeed.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 6/27/2010 7:02 AM (GMT -7)   
I am in the US, am a US citizen but was born in Canada.
Of course if you buy from some no name in Africa you are probabbly going to get ripped off. I mean guess what, the guy who has the 100 million he wants to get out of Africa probabbly is a rip off also. I mean come on, in Texas they would say "This is not my first BBQ!" ...
I expect you are in Sask RiderFan. I bought from a Canadain Registered and approved pharmacey in Winnipeg. My brother in law, who is a fellow both in the CPA and management Consulting fields in Canada installed their accounting software. He knows the CEO of this firm and of others. So long as you are can confirm you are doing biz with a registered Canadain firm, these are a ligit as anytihing in the US. Same thing in the UK.
You give the wrong immpression to lump all online phamacutical sellers in the same group.  I 100% disagree with you firghtening folks to not look at alternativives. The cost is crazy for this disease. With all the tests and insurance I will spend over 20K this year not counting meds. I am on a PPO Blue Cross, and I think the Pentassa will be almost 500 per month. For me this is a ton of cash. I am sick with all the fun of that. I do not want to go bankrupt also.
So again I ask, does anyone know where I can get cheaper Pentasa capsules? 

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 6/27/2010 1:08 PM (GMT -7)   
I buy my LDN from alldaychemist.com, which is based in India. It was one of 2 out of country pharmacies that the LDN community recommends. They do have Pentasa, but I don't know if it's capsules or not. The manufacturer's name is listed (Sun Pharma), so you could contact them and ask.
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 6/27/2010 2:09 PM (GMT -7)   
Spooky Thank you very much. I checked and they only have the generic and I am sure my doc will not go for it. But I do appreciate your recomendation, maybe next time...
Oh well, the search continues....
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/27/2010 5:08 PM (GMT -7)   
dfdavedf: Sorry, don't mean to frustrate you in purchasing from on line pharmacies but here are some links that might help guide and protect you in this process - just be careful!


http://www.nabp.net/programs/accreditation/vipps/

http://www.fda.gov/Drugs/ResourcesForYou/ucm080588.htm
newby


tulipg17
Regular Member


Date Joined Jun 2010
Total Posts : 113
   Posted 6/27/2010 6:43 PM (GMT -7)   
David- have you tried contacting the manufacturer of Pentasa? Last year I had no Rx coverage and I went through their financial assistence program to get a free 3 month supply.

onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 6/27/2010 8:25 PM (GMT -7)   
tulipg17 said...
David- have you tried contacting the manufacturer of Pentasa? Last year I had no Rx coverage and I went through their financial assistence program to get a free 3 month supply.


I did this back in December, and it was very easy to apply for. One-page form, you fill out half, your doctor fills out the other half. about a week later, the GI's office called to say a huge box of Pentasa had just arrived for me, direct from the manufacturer. They only help out if you don't have prescription coverage, though.
Diagnosed with Crohn's in 2008 at the age of 22. Also dealing with gastroparesis & GERD.
Currently on: Remicade, Imuran, Pentasa, Tramadol, Welchol, Phenergan, Ambien, Reglan, Prilosec, Hyoscyamine


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 6/28/2010 1:25 AM (GMT -7)   
Dave congratulations on a very thorough check of your supplier! As most of us know from the media this can be a very shady enterprise to be involved in. Most people would have great trouble finding legitimate sources. A suggestion, why not start a thread on reputable dealers that others can add to and resourse from. Unless this violates healing well policies it may help others.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 6/28/2010 5:01 AM (GMT -7)   
Hey Grampa and all
Sorry to all for my snippy attitude in my last post. I guess between the cost, weird symptons and gut issues I sort of lost it. (I am going to the doc this morning to discuss med alternatives. Also, I dropped to 20 mg of Predisone, the pain has subsided mostly in my legs but I still can not move my toes on the right foot. This is a little freaky)
I have actually been thinking not only about posting ligit sources but prices. Let me give you an example. I bought the Pentasa from Canadadrugs.com. These are the folks I referenced in my last post. Not only were they the cheapest but they gave a 25% discount on the first order and they pointed out proactivly to me to use a credit card with international fees. I bought 6 months supply and saved $250 on the 25% first order and what ever compared to a higher priced supplier. The first card I gave them would have cost me about 25 bucks in international fees. I checked, based on their input , used another card and saved the $25. This is what I did and found on my own. I bet others know more and have found even better.
I am a business man who negotiates a lot. It seems to me that if we had a forum to post what we were paying and we brought volume to a suppplier we could leverage our buys to lower prices. I can and would use my CPA brother in law to broker any deal and provide local repersentation if it made sense.
This site has been great for me. Giving me lots of encouragement and support. However, from a practical, how do I get the meds without going broke, I am struggeling. Perhaps folks here are used to the thousands of dollars per year, but an unbudgeted $10 k per year or more is not something I can easily absorb. I have 3 kids in colledge, I make more than poverty and I have insurance. So I am one of those that pays top taxes and does not get a break on anytihng.
Am I making sense or have I lost the plot?
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/28/2010 8:20 AM (GMT -7)   
Dave:  Good idea, I think it would help a bunch and might open a new buisness opportunity that you could explore with your business knowledge.  I'd buy from someone I knew who could protect my privicy, finanical transactions and provide qualtiy medications.  So far my expensives haven't been bad, but know that could change at a moments notice.
 
Take care, Barb
newby


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 6/28/2010 9:36 AM (GMT -7)   
I'm currently STILL waiting to hear from the Pentasa financial aid people. My application was faxed in by my Dr the beginning of May and still haven't heard anything. last I checked they were waiting on a dx code from the dr's office and they've faxed that in several times and still nothing. Getting frustrated as I'm running out of the Apriso samples my dr gave me as a substitute. If that doesn't go through my dr gave me a rx for going through Canada. He has several patients who go through them but I'm not sure what site/company they use.
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 6/28/2010 10:08 AM (GMT -7)   
After lots of research i used the above referenced site. For sure they are 100% ligit. If you have to use them make sure to get the 25% off on your first order. However be aware that the pentasa made in canada is made by ferring and the pentasa made in the us is made by shire. The chemical make up is the same but in canada it is tabs and in the US is in capsules. I am going to talk to my doc re this but her first comment was that i needed the capsules.
I will let you know what she says
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/28/2010 11:36 AM (GMT -7)   
Dave:  I know you have researched the pharmaceutical company in India - but I always have huge concerns over the manufacturing process done in underdeveloped countries.  Certainly the U.S. is not perfect, but by and large the water essentially clean, the processing plants sterile -or if not the FDA as a regulating body steps in and shuts the place down.  European medications I think have fairly strigent controls also and maybe better evironmental protections than us, but all of this is why I won't eat any food packaged or processed in China and am careful with other food grade products imported from many other foreign countries.  Just a thought!  Barb
newby


tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 6/28/2010 6:31 PM (GMT -7)   
Dave, I hear ya about the cost of these meds. I was in complete shock. I hae never been on long term meds before this and was used to getting only an antibiotic from time to time. Luckily with my insurance I have copays but I cannot imagine paying the bulk of the cost of these meds.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Multigen


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/28/2010 6:39 PM (GMT -7)   
grumpygi said...
Dave: I know you have researched the pharmaceutical company in India - but I always have huge concerns over the manufacturing process done in underdeveloped countries. Certainly the U.S. is not perfect, but by and large the water essentially clean, the processing plants sterile -or if not the FDA as a regulating body steps in and shuts the place down. European medications I think have fairly strigent controls also and maybe better evironmental protections than us, but all of this is why I won't eat any food packaged or processed in China and am careful with other food grade products imported from many other foreign countries. Just a thought! Barb


I have to agree. With all the manufacturing going on in China and India with little environmental control, the risk of heavy metal contamination is very high.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 6/29/2010 12:08 AM (GMT -7)   
Have you researched other 5-asa's? Salofalk and Asacol are avaliable here in Canada as well, probably others but I've tried these two. Perhaps they're cheaper and your Dr. would agree. Both are tabs.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


DaveF
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Date Joined Jan 2010
Total Posts : 1109
   Posted 6/29/2010 12:11 PM (GMT -7)   

I think this debate is good as it brings out different perspectives. 

 

I have traveled all over the world (about 36 counties, including China and India).

 

Barb, if I did not eat products packaged in these countries I would have starved lol and I like food way too much to go hungry. In fact I am planning another trip to India right now and will enjoy the great food of this country again soon.

 

I agree that you have to be aware of who is manufacturing any meds. I would want to more research if I was buying from India. However I would not preclude it as some of the most sophisticated manufacturing in the world is done in China and India.

 

However, the Pentasa I bought from Canada, was shipped manufactured under license by Fering in Switzerland. Take a look at the link that describes the plant. You will see for instance it is FDA approved plus a whole lot more.

 

http://www.pharmaceutical-technology.com/projects/ferring/

 

 

It is the same chemical make up as the pentsa made by shire only the transport (capsule with coating vs tab) is different. As I have also spent time in Switzerland I have no concern about an inferior manufacturing process. In fact if I had to take a bet I would bet they are the same or maybe Switzerland is even at a higher standard. As such, for me, I have no concern at all with the quality, given I know who and where the meds were manufactured.

 

tewcute, thanks for recognizing the crazy cost for this stuff. I told my doc yesterday I just cannot stand the cost and we have to figure something out. She gave me the name and # of a company in Auz that might sell the shire pentasa manufactured in the states. She said her drug rep told her it is less expensive in Auz because in the states they have to add a lot to cover lawsuits while in Auz they do not have to. If anyone knows what pentasa is sold in Auz can they please let me know.

 

Grampa, if that does not work potentially I will have to move to an alternative med. However, as I am small bowel my doc has a strong bias right now to go for the shire pentasa as she thinks this is the best delivery for my issues. But thanks for the suggestion and it is not off the table for me. I looked at the cost of the others and it is about the same as pentasa tabs in canada.

 

Sgirl – Apriso is designed to work best in a different part of the gut than Pentasa. That is one of the reasons my doc will not go for it. Perhaps you might want to look and make sure the meds you are taking are designed for your issues. Also you might want to dicsuss Kapidex with your doc as a way to ensure optimal effectiveness.

 

I am still searching out alternatives and will keep you posted

 

David

 

 

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


Grandpato2
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Date Joined Dec 2009
Total Posts : 681
   Posted 6/30/2010 3:06 AM (GMT -7)   
Quick semantics check here. "capsule with coating" is what I'd call a tab. For me a capsule is able to part in the middle with little granule like meds inside. The salofalk I think is solid the asacol is a capsule with a ph specific coating.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.


DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 6/30/2010 11:35 AM (GMT -7)   
Grandpa, I think we are on the same page. The Shire pertasa is a capsule ("part in the middle with little granule like meds inside") using your defintion, while the fering perntasa is a tablet or pill.
BTW, I did some more reasearch and it appears it is not sold in Auz....

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


Callagirl
New Member


Date Joined Jun 2010
Total Posts : 8
   Posted 6/30/2010 11:52 AM (GMT -7)   
WOW, I have had my eyes opened reading this thread!!!! I guess I take for granted having insurance that covers medications at a low co-pay amount. Good Luck to everyone and I am sorry that you have to deal with such high costs to treat

DaveF
Veteran Member


Date Joined Jan 2010
Total Posts : 1109
   Posted 6/30/2010 2:17 PM (GMT -7)   
lol I am getting my eyes opened also, and I liked it way better when I did not have to know any of this
Thanks for the good thoughts
David

Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda  - Multi Vitamin  & 2000 UI D3,  Melatonin 9mg


sgirl
Regular Member


Date Joined Jul 2009
Total Posts : 417
   Posted 6/30/2010 6:54 PM (GMT -7)   
I have enjoyed this thread especially since I'm looking at getting the pentasa elsewhere. I'm going to try calling shire again tomorrow to see what they have to say on my application. I was taking Pentasa for 5 months, then I ran out and my insurance would only cover $75 for the entire year. Once I was out and waiting for the application my GI wanted me to take apriso since it was similar to pentasa and said it may or may not treat my affected areas. I'm just very disappointed in how long Shire is taking to get back to me, it shouldn't take 2 months.
Diagnosed with UC in February 2009.
Diagnosed with Crohn's Colitis December 2009.
Flaring since October 2008
Possible Rheumatoid Arthritis

Medication: Pentasa 6x daily, Imuran 50 mg, multivitamin, Vit B12 1 g, omeprazole. Sulfasalazine


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/30/2010 7:15 PM (GMT -7)   
dfdavedf:  hope you find cheaper meds, your course of action is commendable.  Do you mind if I ask you a couple of questions regarding travel - as in how do you manage your disease and travel so much?  I travel a couple of times a year, only recently been dx and am a bit concerned about my August dive trip to Utila and managing life.  Any suggestions?
 
(oh and ps -re the topic of eating processed foods from foreign countries) still am really careful when in country, and still wouldn't purchase food stuffs from one of the most polluted countries in the world -as per World Healt Organization). :)
newby

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