Symptoms since I was 15 (now 50), 2 “definitive” IBS diagnoses but no treatment except “eat more broccoli, you are not getting enough roughage"..lol, CD in small bowel diagnoses with Pill Cam 06/2010, Kapidex 60mg, Prednisone 30 mg (tapering down over the next couple of months), Pentasa 4,000 mg, Amitripyline 10 mg, SCD, Freeda - Multi Vitamin & 2000 UI D3, Melatonin 9mg
I think this debate is good as it brings out different perspectives.
I have traveled all over the world (about 36 counties, including China and India).
Barb, if I did not eat products packaged in these countries I would have starved lol and I like food way too much to go hungry. In fact I am planning another trip to India right now and will enjoy the great food of this country again soon.
I agree that you have to be aware of who is manufacturing any meds. I would want to more research if I was buying from India. However I would not preclude it as some of the most sophisticated manufacturing in the world is done in China and India.
However, the Pentasa I bought from Canada, was shipped manufactured under license by Fering in Switzerland. Take a look at the link that describes the plant. You will see for instance it is FDA approved plus a whole lot more.
It is the same chemical make up as the pentsa made by shire only the transport (capsule with coating vs tab) is different. As I have also spent time in Switzerland I have no concern about an inferior manufacturing process. In fact if I had to take a bet I would bet they are the same or maybe Switzerland is even at a higher standard. As such, for me, I have no concern at all with the quality, given I know who and where the meds were manufactured.
tewcute, thanks for recognizing the crazy cost for this stuff. I told my doc yesterday I just cannot stand the cost and we have to figure something out. She gave me the name and # of a company in Auz that might sell the shire pentasa manufactured in the states. She said her drug rep told her it is less expensive in Auz because in the states they have to add a lot to cover lawsuits while in Auz they do not have to. If anyone knows what pentasa is sold in Auz can they please let me know.
Grampa, if that does not work potentially I will have to move to an alternative med. However, as I am small bowel my doc has a strong bias right now to go for the shire pentasa as she thinks this is the best delivery for my issues. But thanks for the suggestion and it is not off the table for me. I looked at the cost of the others and it is about the same as pentasa tabs in canada.
Sgirl – Apriso is designed to work best in a different part of the gut than Pentasa. That is one of the reasons my doc will not go for it. Perhaps you might want to look and make sure the meds you are taking are designed for your issues. Also you might want to dicsuss Kapidex with your doc as a way to ensure optimal effectiveness.
I am still searching out alternatives and will keep you posted