not absorbing steroid

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WendyG
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 6/27/2010 3:02 AM (GMT -7)   
i was just wondering if anyone here has had the problem of their body not absorbing the steroid. My son has Crohns and was doing good with the treatments until they started going down on the steroid and doctor said he wasnt absorbing the steroid. they have tried prednisone and entcort. I was wondering if anyone else has had that problem and what did your doctor do? I am so tired of seeing my son hurting and constantly having to go to hospital every month. He has had the remicaid treatments and they helped at first but after his second they have stopped making any difference.

Thanks
Wendy

prednisone, remicaide, 6mp, nexium, flagal

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/27/2010 3:20 AM (GMT -7)   
Are injected steroids an option for him? (Hydrocortisone (sp?))
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


WendyG
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 6/27/2010 4:08 AM (GMT -7)   
the doctor has never even mentioned it. he does great on iv steroids when he is in the hospital but soon as he comes home and goes back on the pill kind he gets worse and they say they have to go down in mg or it can do damage to him. we are just about ready to try a different doctor. did everyone else have so many problems getting into remission and having no pain etc.? he seems worse now than when we first found out.

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 6/27/2010 7:11 AM (GMT -7)   
How about enteral nutrition (special full-liquid diet to induce remission)? It can sometimes work when everything (including steroids and Remicade) has failed. It is an old treatment for Crohn's, validated in randomized, controlled trials, but not much used today in the US.

WendyG
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 6/27/2010 8:52 AM (GMT -7)   
i have never heard of it. he said something about stopping all foods and putting a tube down his nose or surgery.

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 6/27/2010 12:38 PM (GMT -7)   
The tube feeding would be enteral nutrition. I would certainly give that a try before deciding on surgery. It does not have to be taken by tube; your son could drink it from a glass. The decision to use a tube instead is typically because the doctor worries that the patient will not be willing to stick with the liquid diet for a few weeks. Some people find it difficult, others much prefer drinking the formula to having to have a tube.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/27/2010 3:23 PM (GMT -7)   
You can find more info by clicking on the nutrition link in my sig.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


WendyG
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 6/29/2010 3:43 AM (GMT -7)   
thanks so much! yes my son hates the tube but not sure if he could drink it. we are going in friday for another colonoscopy

Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 6/29/2010 6:39 AM (GMT -7)   
The first couple of days can be tough, but if he is willing to persist through that initial period, in spite of perhaps disliking the flavor and texture, the taste buds adjust. The taste seems normal within a day or two.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 6/29/2010 9:15 AM (GMT -7)   
I became resistant to oral steroids too..it was the only thing that helped when I needed a break from my continuous flaring, now I use the natural route and diet change listed in my sig below...
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

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