Ticks,Lyme, and Crohn's

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Nate in NY
Regular Member


Date Joined Mar 2010
Total Posts : 66
   Posted 6/28/2010 2:58 PM (GMT -7)   
Ok-
Here's the question. Pulled four ticks off myself (2 yesterday/2 today). Too late to call my doc so I am looking for some feedback.
Do I automatically medicate and destroy the delicate balance I've got going OR do I risk it and medicate only if I get sick???
Rock and a hard place ?
By the way-anybody ever find one of those little maggots then feel them crawling all over yourself?
Crohn's 5/10,Bilateral Uveitis
Sigmoid Colectomy x3 January 2009,loop Ileostomy reversed Memorial Day 2009,Gallbladder out the same time(Failed from TPN,or starvation!)
Psyllium and Flax seeds, Metamucil(not sugar free)PB-8 probiotic, omega 3 fish oil,folic acid, absolutely no Inulin or chicory root, lots of greens and raw sunflower seeds.


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/28/2010 3:16 PM (GMT -7)   
Nate in NY:  Hi, welcome to summer!  My first response is ewwww!  and second is of course to google the topic.  Did these ticks bite and you had to get the head out?  Checkout the topic on the following reputable web site:   http://www.medicinenet.com/lyme_disease/article.htm.   Seems to be a long slow disease process but since you know the date of exposure maybe the best thing to do is call your primary care doc and discuss treatment options with him/her.  Lyme disease is a big deal in the midwest also-even  horses and cattle can be affected.  Take care, let us know what the doc thinks.
newby


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/28/2010 3:26 PM (GMT -7)   
Nate in NY said...
Ok-
Here's the question. Pulled four ticks off myself (2 yesterday/2 today). Too late to call my doc so I am looking for some feedback.
Do I automatically medicate and destroy the delicate balance I've got going OR do I risk it and medicate only if I get sick???
Rock and a hard place ?
By the way-anybody ever find one of those little maggots then feel them crawling all over yourself?


Nate, did you save the ticks? They can be tested for Lyme disease (and probably for the coinfections too, like Babesiosis, Ehrlichiosis, Bartonella, etc.). Even if you didn't you should take doxycycline NOW. Waiting will allow the Lyme spirochetes to migrate into your organs/tissues and then it's EXTREMELY difficult to get rid of them.

Also, please find a Lyme-Literate doctor (LLMD for short). There are doctors who are Lyme experts and there are doctors who THINK they know something but they don't. Never believe any doctor who says all cases of Lyme can be cured with 30 days of doxy.

Please feel free to ask questions on the Lyme forum here.....they can help you find a LLMD in your area. I know of one in New York City, please email me privately if you want his name and info.

Good luck!!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 6/28/2010 6:41 PM (GMT -7)   
Were they deer ticks? I think those are the only ones that can give you lyme disease.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 6/28/2010 7:23 PM (GMT -7)   
^Correct, deer ticks are the only type that carry the disease. If they were deer ticks and did bit me, I would still get the treatment. Even though the odds of contracting it are small, not all people show the classic bulls-eye rash. I've worked with ticks before when working for my local mosquito control, and they had a free service to ID any ticks you found. It probably wouldn't be a bad idea to investigate, if you feel so inclined.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 6/28/2010 7:58 PM (GMT -7)   
The lone star tick (Amblyomma americanum) and the dog tick Dermacentor variabilis) may also transmit Lyme, although they are less likely to than the deer tick. Please see the following link:

http://www.hopkins-arthritis.org/arthritis-info/lyme-disease/#get_lyme
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 6/28/2010 8:15 PM (GMT -7)   
Misquitoes also carry Lyme disease, just not as often as ticks.  Bug repellent is a necessity these days!

newby


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 6/28/2010 11:56 PM (GMT -7)   
In the Pacific Northwest and Southwestern Canada, dog and deer ticks can also cause Rocky Mountain Spotted fever, and only requires a few hours of a bite to transmit. It can also be transmitted by crushing an infected tick with your fingers that have minor cuts and scrapes. We all need to be wary.


Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since May, 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. In the past, 5-asa Salofalk, Asacol, Entocort,  Imuran and Prednisone.

Post Edited (Grandpato2) : 7/6/2010 12:54:10 AM (GMT-6)


Nate in NY
Regular Member


Date Joined Mar 2010
Total Posts : 66
   Posted 6/29/2010 4:31 AM (GMT -7)   
Nah I didn't save them. They were awarded a vikings funeral. My brother in law who is a pediatrician in Mass. feels I should wait. They deal with tons of ticks and Lyme every year. After opening hours I will also put in a call to my doc. Oh and I don't know if the two smaller ones were deer ticks or not.
Crohn's 5/10,Bilateral Uveitis
Sigmoid Colectomy x3 January 2009,loop Ileostomy reversed Memorial Day 2009,Gallbladder out the same time(Failed from TPN,or starvation!)
Psyllium and Flax seeds, Metamucil(not sugar free)PB-8 probiotic, omega 3 fish oil,folic acid, absolutely no Inulin or chicory root, lots of greens and raw sunflower seeds.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 6/29/2010 5:45 AM (GMT -7)   
Hi Nate in NY....A viking's funeral! hahahaha!

You never mentioned whether you thought the ticks you pulled off of you had actually bitten you....?

Ahhh....ticks... what brought us here....

I will preface this story by saying that we live in a part of the country (central) where the doctors (several of them--even an infectious disease specialist) assured me we have virtually NO Lyme disease.

My son and hubby love to hunt. It was spring, five years ago when my son had two ticks on his back after hunting. They had bitten him, and my husband threw them away. I never saw the ticks because I was out of town, but I did see the classic red bulls-eyes they left. So classic that I took pictures (thank goodness!).

Because of the impressive bulls-eye marks (about 5-6 in. in diameter), I insisted he undergo the standard treatment--Doxycycline for 8-10 weeks. During all the blood tests we had done, we discovered he was anemic... (he had not yet been diagnosed w/Crohn's) This became a chicken/egg scenario... was he anemic before the tick bites, or did the transmitted infection from the ticks cause the anemia? (anemia is listed as a symptom of Lyme)

Eventually we ended up at an infectious disease specialist. My son was done with the antibiotic, but I wanted to know why he was anemic (other doctors couldn't explain it) and also make sure we weren't missing some test that should be performed.

Thank goodness I had those pictures, because all 3 of the doctors we saw thought it was silly to follow through with any treatment, again, because of where we live; we just don't have Lyme here. The infectious disease doc was very impressed with the pictures and stated that SOMETHING was definitely transmitted from the ticks to my son. He was more inclined, due to where we live, to believe it was STARI (Southern Tick-Associated Rash Illness). http://www.cdc.gov/ncidod/dvbid/stari/ I was dubious. We don't live in the south, either!

He said we did the right thing by treating and followed with a couple of other tests which ultimately came up negative (this was several months after completion of the antibiotic). STARI is thought to be less serious than Lyme, with symptoms lasting 3-6 months...but they really don't know much about it. Last I heard, they aren't even sure what is transmitted from the tick.... not good...

Sorry this is so long... I just want to say that I think it was the Doxycycline skull that ultimately messed up my son's system SO BADLY that he flared--a true Crohn's flare. It was clear at that point that we were dealing with something other than an infection from ticks. sad Ultimately he was scoped and we received the definitive diagnosis.

I'm not saying that the antibiotic CAUSED my son's Crohn's (although we will never know for sure), but I believe it most definitely worsened it and brought on the flare. So I think you are smart to be VERY cautious about upsetting your delicate balance--as you put it! As you said, you are somewhat between a rock and a hard place. Keep in touch with your doctor, but knowing what I know now, I'd be inclined to wait and see. Just my two cents, of course! smilewinkgrin

Best wishes!
Mom to 18 year old son diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium, vit. D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Incorporate Specific Carbohydrate Diet (SCD) recipes, too. Med-free.

Threads discussing diet:
http://www.healingwell.com/community/default.aspx?f=17&m=984588
http://www.healingwell.com/community/default.aspx?f=17&m=1533705
http://www.healingwell.com/community/default.aspx?f=17&p=1&m=1262312


NJGirl04
Regular Member


Date Joined Oct 2009
Total Posts : 22
   Posted 7/5/2010 7:53 PM (GMT -7)   
Hi Nate -
I would go to the dr as soon as possibe (TOMORROW!!!) I had gotten Lyme Disease and did not know until it was the advanced stages and it was the worst experience of my life. I was told I had MS, Fibro, or just to learn how to deal with my Crohn's when it was really Lyme. I am in NJ where it is common, as well as NY. I ended up having to travel over an hour each week to get treatment from a LLMD which my insurance would not cover not to mention the long term damage I have (as if having Crohn's isn't bad enough!!!). My WB has come back negative since the treatment, but I pretty much lost a year of my life not to mention the costs, and long term side effects I will have from it!

I don't want to scare you but I wish I had gone to a dr and gotten meds sooner than I did.

Keep us posted!!
 
~Robin~
 
Crohn's since 2000 / Lyme Disease 2009
Currently on: Prednisone (30 Mg), Cimzia & Bentyl 
Previously was on: Pentasa, Asacol, Flagyl, Remicaide, Humira, Entocourt
Hospitalized more times than I can count... I could probably glow in the dark if you turn off the lights from all the tests!!!!!!!
 
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