Obstruction Symptoms

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Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 6/29/2010 1:34 PM (GMT -7)   
I had my appointment with the surgeon today. I was supposed to have surgery July 8th but they are postponing it until I've taken Humira for a full month. They said my stricture might close as the Humira reduces my inflammation. A little scary to hear this. I was just wondering for those who have gotten an obstruction how they felt when it happened. I also have to watch what I eat really closely.

Thanks guys!
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections Purienithol (6MP), Calcium, Multi-Vitamin, Prilosec, just starting Humira
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/29/2010 3:11 PM (GMT -7)   
When I get an obstruction, I get some really noisy gut sounds, then nothing, no bowel sounds, no bowel movements. Lots of pain, coming in waves. Bloating to the point of looking like I am pregnant. Sometimes I get nausea, but not always. If I get to the point of vomiting I am in serious trouble. I hope you don't have to experience it.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/30/2010 6:07 AM (GMT -7)   
My obstructions are pain that comes in waves much like labor pains, no air will move out of either direction, no bms, extreme bloating, and nausea. If I start throwing up then as Zanne says you know you got problems. The pain is so bad, there is no way you can stay home, you have to go to the ER. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 6/30/2010 6:20 AM (GMT -7)   
Same. Pains that come in waves that are worse in the middle of stomach around belly button.  No bowel sounds, felt like I needed the loo but nothing happening and felt sick. Stomach was very swollen.  Happened to me twice so far, should have gone to hospital the first time but just thought I was having a really bad day.  Went second time (2 weeks later) and was in for a week !  It is like no other pain.  I would say anything that is not normal for you and painful should be investigated - take it from one who didn't !

Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 6/30/2010 9:09 AM (GMT -7)   
Sounds like you all have had the same symptoms. I appreciate you telling me what they are. I'm so paranoid now because I'm so close of getting an obstruction. I'm a walking time bomb for now! I pretty much can't eat anything healthy for the next 2 months!
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections Purienithol (6MP), Calcium, Multi-Vitamin, Prilosec, just starting Humira
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 6/30/2010 9:24 AM (GMT -7)   
I would like to point out another symptom that points to something else: A few months ago I had bad pain, bloating, no bm for 5 days, nausea, and I thought it may have been a blockage. I kept taking Darvocet for pain, and I was passing gas like crazy, but nothing solid.

I went to the ER and got a CT, even though I knew it would cost a bundle.

It ended up being extreme constipation (due partly to the Darvocet) which explains the gas and bowel sounds, as well as the pain and bloating. I would agree with the above that when the pain gets bad enough that you can't think about anything else, go to the ER.

They print more money every day, there will only ever be one you:-)

Hope that helps,
-ZZ
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in 2004.
Nov. 2009- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet, Cimzea


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 6/30/2010 10:36 AM (GMT -7)   
I just wanted to say something about your comment about your statement "I can't eat anything healthy for the next 2 months". It can be really hard when the world in general is touting fresh food and as little processed as possible. BUT right now that is not what is "healthy" for you. If you can wrap your mind around the fact that at various times your diet will need to change to accommodate your disease and that doesn't mean you are eating "bad" it means you are doing what your body needs in order to be healthy in the long run.

You can get lots of healthy nutrition in a liquid or low fiber form. You just can't eat raw, fibrous food.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


JAB
Regular Member


Date Joined Nov 2003
Total Posts : 351
   Posted 6/30/2010 10:50 AM (GMT -7)   

I don't understand why the reduction in inflammation would close the stricture. Sounds like fun times none the less. Hopefully the Humira helps you feel better and you can dictate the terms and time of your surgery. I've been having a number of the symptoms listed in the responses which quite frankly SUCKS. I think it's just a matter of time before it's my turn to have surgery. sad

Anyway, I hope the Humira helps you feel better in the meantime.

 

JAB


Irishmom4
Regular Member


Date Joined Sep 2008
Total Posts : 457
   Posted 6/30/2010 5:29 PM (GMT -7)   
During the years I was having frequent bowel obstructions I would eat a lot of peanut butter toast , soups and applesauce. I ate very small frequent meals. I also stayed away from carbonated drinks during or after meals.

I did this for 5 years before I finally had my resection surgery. It doesn't get rid of your Crohn's, but I haven't had an obstruction for 4 years. (knock on wood)
Good luck with your Humira.

Elizabeth
Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol,  Imuran, Folic acid, and Enalapril.
 


dt19&99
Regular Member


Date Joined Apr 2009
Total Posts : 174
   Posted 6/30/2010 6:06 PM (GMT -7)   
You can make it through without an ER trip if you wanna stay in bed for a couple days (because due to those waves of pain thats all I could do during my first experience)... Thats the symptoms I've had, waves of like a clamping pain, no movements through my bowels (gas or otherwise) and even had a hard time getting enough water. 2nd time I've had it happen my gf made me go to the hospital, although I was vomiting that time around. If you wanna deal with it you can stay at home but I'd definately recommend that hospital visit if you start the vomiting (not to mention they can give you something to deal with the pain). After going through it at home and at the hospital, I'll probably pick the hospital next time around.

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/30/2010 7:10 PM (GMT -7)   
Both times I had obstruction symptoms I had the wavelike pain people describe here and the intense feeling of D (but no or very little actual D) with simultaneous vomiting. Very hard to manage, intense, scary. Hard to get out of bathroom/bedroom. Also passed out in bathroom both times. Cold sweats, shaking.

If it happened again to me I would go straight to ER.

Hope you get by with no problems!
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 6/30/2010 9:36 PM (GMT -7)   
Thanks again for all your advice. I know that if I feel really bad I should probably contact someone right away or go to the ER before it gets worse. Sounds like it's very hard when an obstruction occurs and I can totally see why. Let's hope this Humira doesn't shrink my stricture too much before surgery.
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently on: Monthly B-12 injections Purienithol (6MP), Calcium, Multi-Vitamin, Prilosec, just starting Humira
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 7/1/2010 4:52 AM (GMT -7)   
I am not sure that the stricture is closing when you're getting humira, but the inflammation around the swollen area where the stricture is will dissapear. The narrowing that has been there will now and then lead to obstructions.
The obstructions will come and go depending on what you're eating. If you're having healthy food loaded with fibers you're in big trouble. If you're eating something that is cooked not to well, meat, onions or sprouts, your done. But if you're eating chicken, if your using a vegetable/fruit juicer you will get loads of healthy nutritions without the damaging fibers. I have had a lot of obstructions during some years, and 95 % of them lead to vomiting and gross pain. Untill I learned what food to avoid. /Bee

BeeSting
Regular Member


Date Joined Nov 2008
Total Posts : 392
   Posted 7/1/2010 4:53 AM (GMT -7)   
I am not sure that the stricture is closing when you're getting humira, but the inflammation around the swollen area where the stricture is will dissapear. The narrowing that has been there will now and then lead to obstructions.
The obstructions will come and go depending on what you're eating. If you're having healthy food loaded with fibers you're in big trouble. If you're eating something that is cooked not to well, meat, onions or sprouts, your done. But if you're eating chicken, if your using a vegetable/fruit juicer you will get loads of healthy nutritions without the damaging fibers. I have had a lot of obstructions during some years, and 95 % of them lead to vomiting and gross pain. Untill I learned what food to avoid. /Bee
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