Recently diagnosed with Crohns

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RaeC
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/29/2010 3:53 PM (GMT -7)   
Hi All - I am new to this message board today so bare with me!!  cool   I was Diagnosed with Crohns on April 27th this year. I have been struggling quite a bit with doctors and treatment. Before I was diagnosed my family doctor prescibed me Asacol, which obviously did not help much since I have Crohn's and not Ulcerative Colitis. Since seeing my doctor I have been on Pentasa and now Levsin. From what I have gathered not many people are familiar with Levsin, is this true? I am not impressed with the results so far... I was told to take it "as needed" (which is an under statement) up to 3x a day. You can not take it while on a full stomach, which is usually when I need it the most!! Any insight on this medication would be extremely helpful.

Also, I have recently discovered that I have formed external hemroids...is this a common side effect? It is VERY painful and what ever I can do to reduce or eliminate these would be GREAT!
 
One more thing, does anyone else find relief by laying on their stomach? That seems to be the only thing that really makes me feel better...even over the drugs (sigh) :(
 
THANKS IN ADVANCE!!!!
 
LIZ

ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 6/29/2010 4:05 PM (GMT -7)   
Welcome Liz!

I have not had experience with Levsin, but I do find that if I lay down on my side I get some relief from my CD. I used to lay on my stomach to help me sleep, but I find it better to be on my side.

Best of Luck!
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in 2004.
Nov. 2009- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet, Cimzea


RaeC
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/29/2010 4:13 PM (GMT -7)   
thanks for the information...I appreciate it :)

MaryS
Veteran Member


Date Joined Jan 2003
Total Posts : 1668
   Posted 6/29/2010 8:06 PM (GMT -7)   
Sorry to hear of your diagnosis. Being a newbie can be a struggle in finding the right treatment.
My Daughter was diagnosed back in 1999 with Crohns/Colitis and has taken both Pentasa and Asacol, currently on Asacol. Very familiar with Levsin. That was prescribed very early on after Daughter's diagnosis for cramping pain. She was in College at the time and found she could only take it at bedtime because it knocked her out if she took it during the day. She never thought it did much so later down the line she was prescribed Bentyl instead which helped a bit.

In lieu of taking Levsin or Bentyl during the day, my Daughter found laying down with a hot water bottle helped quite a bit. Also, those ThermaCare patches were pretty helpful for that nagging lower right quadrant pain. She would use those to get through her daily College courses.

Hope you find a treatment that works perfect for you. Lots of trial and error goes on getting to the right one(s). rolleyes

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 6/29/2010 8:21 PM (GMT -7)   
I was under the impression that Asacol could work for Crohn's patients if the inflammation is in the colon. But, I don't really know. I was originally dx with UC and they put me on it, but the Asacol actually made my bleeding worse.

about the hemorrhoids, is it possible that they are anal skin tags? I've never had hemorrhoids, but I do have the tags. They can be quite painful when swollen and especially as they are forming.

The heating pad helps me a lot. It's rough during the summer months, but I still use them. have one in all of my "usual" spots - office desk chair, bed, etc. I just keep a few around.

Good luck and sorry to hear of your diagnosis!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 6/30/2010 6:03 AM (GMT -7)   
I have Crohns Disease in the TI/Cecum area and have been maintained solely with Asacol for almost 5 years. It is used in Crohns.

As for the Levsin this is not a maintenance med, this is an antispasmotic to help with intestinal spasms. If you are feeling bad after you eat, go ahead and use the Levsin and see if it helps. It best to use it before you eat, but you can use it afterwards too.

Also, many of us have external and internal hemmoroids. You might want to try either Preparation H or even Tucks pads to give some relief.

Welcome to Healingwell also!

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tewcute
Regular Member


Date Joined Mar 2010
Total Posts : 300
   Posted 6/30/2010 11:40 AM (GMT -7)   
Welcome Liz! This is a great board and you will find much suppoer here.
 
I actually use Hymoax during the day. It is the same as levsin as they are both Hyoscyamine Sulfate. It seems to work well for me if I take about 30 mins before a meal. If I have serious cramping however this does not cut it for me. I also use dicyclominne(brand name Bentyl) for night time. I find this one to be a little too strong to use during the day when I might have to drive. I have discovered a hot water bottle and even a nice hot bath work very effectively for my cramping. Some people love levsin and swear by it but it is a very mild muscle relaxer. They prescribe it for babies so it is not super strong.
Dx with crohns February 25, 2010. But suspect I had it since 2002 with very mild symptoms.
4 lialda a day.
3 entocort daily for the next few months
hyosamine for daytime
Bentyl for evening
Multigen


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 6/30/2010 12:14 PM (GMT -7)   
Hi Liz and welcome!

A couple of things to do for the hemmies....

Sitz baths help alot. I use epsom salts, but I have read that you can buy "sitz bath remedies". Not sure how they work.

Ice packs. I know, not something I wanted to do either, but it does help to reduce the swelling and pain. I would sit on it a couple times a day (wrapped in a towel) for about 15 min. each time.

Good luck!
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


susans53
Regular Member


Date Joined Jun 2010
Total Posts : 318
   Posted 6/30/2010 2:19 PM (GMT -7)   
I could not live without my heating pad! I should buy stock in them, I burn thru them so fast!
UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
Multiple complications
J-pouch redo- July 3,  2001
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?


joy47
Regular Member


Date Joined Feb 2010
Total Posts : 75
   Posted 6/30/2010 6:26 PM (GMT -7)   
Ive never used the levsin, but i have used bentyl it really never did much for me. Im like susans53 the heating pad is the best for everything. I dont leave home without it. Also hemmys the sitzbath is immediate relief and the aid of prep H usually works for me. Good Luck to you. :-)

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 6/30/2010 7:00 PM (GMT -7)   
So sorry about your diagnosis. I was diagnosed in Sept 2007 and found this forum that very same month. You will find lots of advice and support here.

I LOVE my heating pad too.. use it frequently. I'm old-fashioned and also love the hot water bottle for cramps.

Ice packs for your bottom will help and always using wet wipes - not dry toilet paper. I like Tucks pads but there are lots of brands of flushable wipes. If you don't have it already, ask for the Lidocaine/Hydrocortosone prescription cream. Comes with a little applicator. I find this VERY HELPFUL when things are bad from either hemmies, tags or other painful symptoms.

Good luck.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.

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