fistula for the ladies

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Miss Dee
New Member

Date Joined Jun 2010
Total Posts : 2
   Posted 6/29/2010 5:55 PM (GMT -6)   
Hello to all.  I am new here.   I have had crohn's for 5 years.   For the first 3 I was misdiagnosed.   I am currently on Remicade.   I will be going for my fourth infusion in 2 weeks.   It is helping, but I still do get some cramping.   I was told I have a fistula.  Do any of you ladies know if it can cause vaginal spotting.   I am just so sick of not feeling well, as I know all of you must feel the same frustration.   Anyway.  thanks in advance for your imput.
Miss Dee

Forum Moderator

Date Joined Nov 2003
Total Posts : 7054
   Posted 6/29/2010 7:16 PM (GMT -6)   
Welcome to Healing Well, Miss Dee! I'm glaad that you have joined us. I did Remicade for 2.5 years. It worked really well on my gut symptoms. At my last colonoscopy, there was no sign of active Crohn's in my TI or colon.

Haven't had a fistula myself [thankfully]. If the fistula is going to your vagina, it can definitely cause a discharge. It the fistula opening is large, you would likely notice that the discharge is not normal [wrong color, odor, etc]. If the fistula opening is really tiny, then it might be more difficult to tell. Did the doctor tell you where the fistula is going to? Did he/she know?
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

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Date Joined Aug 2007
Total Posts : 1202
   Posted 6/29/2010 8:04 PM (GMT -6)   
I have one fistula that tracks out to two openings, both cut during a i&d (incision and drainage). Have you been told where your fistula tracks to and from? It's possible that a fistula could connect two sections of bowel, say from small bowel to large bowel, leaving everything inside. Sometimes they can go to another organ, like the bladder or into the vaginal canal... That would definitely cause discharge of all sorts of stuff from the vagina. In my case the fistula(s) go to the perianal area, so the drainage appears outside the vaginal canal, but in that area (one of the incisions is literally right on the opening). If yours is an fistula to an external area, you'd be able to see it. If it's recto-vaginal or bowel-to-bowel, you won't see it with a mirror.

Not sure if this is helpful. Sorry you have to go through this. The fistula might just be the worst, besides the pain, for me!

Hang in there!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

Miss Dee
New Member

Date Joined Jun 2010
Total Posts : 2
   Posted 6/30/2010 7:50 AM (GMT -6)   
Thank you for your replies. They were very helpful.   Sometime my drs. don't explian things to me very  well,  but again maybe it is just me.   I find myself having a hard time concentrating and absorbing info lately.     I was told that the fistula is rectal and causing problems with my bladder.  It is very small at this time, but causes me so many bladder issues.   I also have a bladder infection again.     My urologist has since flew the coup and I am now looking for a new one.   My GI said that the Remicade should help heal the fistula.   I have only had 3 infussions so far so I guess I will have to be a bit more patient to see what happens.  
Thanks Again
Dee smilewinkgrin
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