Crohns is back :(

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pursey
New Member


Date Joined Jun 2010
Total Posts : 10
   Posted 6/30/2010 7:52 PM (GMT -7)   
HI new to the website, but not new to crohns. Was diagnosed in 91. I have had approx. 15 surgeries. Lost count a long time ago. I have had an ileostomy for about 8 years. Lost all of my large
intestines and in all these years they never found a trace in my small til now. Here we go again. Has anyone had this happen to them. My small has always been clear for all these years. What triggers it all of a sudden? Does your body go into a kind of remission and then all of a sudden, it's back?? Started a drug new to me pentasa. Also back on prednisone. No stranger to that unfortunately! I have been on asacol, humira, immuran, prednisone. Sure there's been more, just cannot remember all of them. Take care! sad

crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 7/1/2010 11:24 AM (GMT -7)   
Hi, I had a right hemicolectomy 16 years ago then went into remmision I then got crohns in the small bowel which I had operated on last year  unfortunately it can come up all of a sudden anywhere within the digestive tract. Bev x 
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “


pursey
New Member


Date Joined Jun 2010
Total Posts : 10
   Posted 7/1/2010 12:44 PM (GMT -7)   
crohnielass, Thank you! I thought I was safe from it, but finding out differently. They say preventative drugs are the most important thing for us now. I hope you keep fighting to be put on something. I have a great surgeon who monitors me closely and he has put me on steroids for a short while, and is keeping me on pentasa. I have been hearing a lot of great things about that drug. Read into it and talk to your Dr. about it. If you do not have great ins., the makers of Pentasa have a program where you could possibly get it for free. It is Shire US inc. I really appreciate your comment and best of luck to you. I just learned of a great guy from Fort Wayne, Indiana that is traveling on his motorcycle to raise awareness and funds for the crohns and colitis foundation. Check it out!! What a great person to do this for us!! Take care, Barb gordosvancouveradventure.blogspot.com turn
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