OT any big plans for the 4th of July??

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mtgman
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Date Joined Mar 2005
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   Posted 6/30/2010 9:05 PM (GMT -7)   
i hope everyone enjoys their weekend!  i might even try a burger or two!  my daughter's birthday party Sat then hopefully i'll feel weel enough to take the boat out Sat and Sun...looking forward to a great weekend!  fingers crossed!  oh yeah i mentioned it before but some good advice for crohnie's buying boats- -- make sure it has a head!!  OOPS!!!  hahaha.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


FunGuy
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Date Joined Oct 2009
Total Posts : 1070
   Posted 6/30/2010 9:40 PM (GMT -7)   
Can I assume that your remicade is beginning to work then? I sure hope so.

Taking the boat out? I haven't gone fishing yet this year darn it........ hint hint. Just kidding. we are doing the BBQ thing.
 


spookyh
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Date Joined Oct 2008
Total Posts : 1342
   Posted 6/30/2010 10:23 PM (GMT -7)   
I'm staying inside where there is air conditioning. You are a brave man venturing out in this Arizona heat!
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods


pimfram
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Date Joined May 2009
Total Posts : 506
   Posted 6/30/2010 10:44 PM (GMT -7)   
I'm going to my grandfather's house on a nice lake. Not much of the extended family is going but it should still be a good time.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


Zanne
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Date Joined Apr 2005
Total Posts : 3763
   Posted 7/1/2010 12:02 PM (GMT -7)   
We live outside Boston, huge July 4th celebration. All of our married life, my husband has wanted to go see the fireworks on the fourth with the Boston Pops. Not the whole sitting on the Esplande thing, but some place close to it, so you can hear the music. The fireworks are coordinated to the music. We always watch it on TV. I don't really like crowds and so I never really wanted to go, BUT, for Father's Day this year, that is what I gave him. I planned the whole day.

We are going to a Red Sox game, walk around and see the sights, then the Fireworks and a hotel in the city so we don't have to fight the crowds leaving. I'm sure it will be the only time I ever see the fireworks live. I just hope it doesn't rain.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 7/1/2010 9:17 PM (GMT -7)   
thanks funguy! i'm not sure if it's the remicade starting to work or just a really good week but yeah i feel good-- really tired but my gut is letting me do things that i haven't been able to in a while -- we ate out twice this week!! woohoo! i also think the percocets i'm taking and the iron are binding me a bit so that's helping. well it's going to be hot as heck here in az this weekend so being in the water is key! although Boston sounds great too- haven't been there in a while. i hope you all have a great and safe weekend!!!!!!!!!!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


pillpopper
Regular Member


Date Joined Jan 2009
Total Posts : 209
   Posted 7/2/2010 4:21 AM (GMT -7)   
Zanne,sounds like a great plan!
My wife would beg for no rain,rain delay,or extra innings...
B-12injections,Pentasa,Loperamide,Entocort,6mp,8 week Remicade,Vitamin-D,Fluconazole,more over the counter Vitamin-D, Folic acid,
6-year remission after resection,and maintenance drugs.
.


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 7/2/2010 6:29 AM (GMT -7)   
Made a huge mistake of eating popcorn (just very absentmindedly grabbed a handful before I realized) at the movies that I got dragged to, so I am just praying I do not obstruct.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


ivy6
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Date Joined Sep 2005
Total Posts : 10404
   Posted 7/2/2010 4:03 PM (GMT -7)   

Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 7/2/2010 4:31 PM (GMT -7)   
Going to watch the Fireworks from home here on my recliner. Very good view from front yard! LOL

Matthew

ozonehole
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Date Joined Dec 2006
Total Posts : 559
   Posted 7/2/2010 9:38 PM (GMT -7)   
Here in Taiwan, 4th of July isn't a public holiday. However, my wife is an elementary school teacher, and yesterday (Friday) was the last day of school, and she doesn't resume work until late August. So her "weekend" is nearly two months - I think that calls for a celebration out on the town.

Also, small community of American expats here, so we'll plan our own July 4th party. Even our non-American expat friends will join us - any excuse for a party is always welcomed. It's convenient that July 4th falls on a Sunday this year, so nobody has to work. We've got enough nationalities around here to rotate holidays - a few years back we did a Bastille Day (July 14) party with our French friends.

cheers,
Robert
Crohn's since 1988
3 resections


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/2/2010 9:51 PM (GMT -7)   
that sounds fun! the more holidays the better! haha
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 7/3/2010 2:00 AM (GMT -7)   
My wife and I are going to a firework show that Carrie Underwood and the Osmonds are performing at. It will be weird to go to my favorite football stadium without seeing a game but I am really excited to see my favorite American Idol. I am praying that I can make it through the concert without having any problems.

huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 7/3/2010 2:55 AM (GMT -7)   
I'm on Cape Cod with some extended family, 2 out of 3 kids and some friends. Have a stack of books and The New Yorker to catch up on. Going to the beach today and heading home tomorrow for 4th at home so not battling traffic on Monday.

CD-wise doing OK but still some prednisone craziness. Had a few glasses of wine last night and not going well so will hold off on cocktail hour for the rest of this weekend. But, otherwise a perfect weekend for me.

Zanne - hurray for the Esplanade! I've done it a few times -- always wonderful. A hotel is a great idea so you don't have to get all the way home with the crowds afterward.

So many fun plans to read about -- happy 4th everyone. Be well.
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/3/2010 11:22 PM (GMT -7)   
great day! fun birthday party for my daughter...a nice nap...then dinner and fireworks in Cave Creek, AZ...love it! although on the way home we did drive right by a fairly large brush fire no doubt started by some idiots playing with fireworks...
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/4/2010 12:07 AM (GMT -7)   
Oh, Huckleberry! I am so jealous about Cape Cod. I've seen that in movies and it looks idyllic. I hope you're having a wonderful time.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 7/4/2010 6:49 AM (GMT -7)   
Staying home and will shoot bottle rockets off the back porch tonight. Its illegal so I really enjoy it...Glad your feeling better Mtg. Hope its the start of good times...Happy fourth...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


RedSoxGirl85
Regular Member


Date Joined Jun 2010
Total Posts : 265
   Posted 7/4/2010 8:01 AM (GMT -7)   
Zanne have a WICKED PISSAH time at the Red Sox game! Have a Yawkey Way Suasage for me on Yawkey Way not inside the Park and have a Fenway Frank for me inside the Park! While your at it have an $8 beer to wash it all down!

Everyone be SAFE and HAVE fun! I'm watching the 4th of July Parade in America's Hometown in the Central Air will not be watching it outside even though I could throw a baseball and it would hit the parade route. Way too hot out there and after watching the news they said it's going to be harder to breath for some people because of the humidity. I'll venture outside once it cools off some! Used to love the heat and summer not so much anymore. Think it's the prednisone that makes me hate it!! GO SOX!
RedSoxGirl85
50mg 6MP
10mg Prednisone
1000mg Sulfasalazine 3x Daily
50000IU Vitamin D Once a Week
100MCG/ML INJ, 1ML Cyanocobalamin B12 Every 3 Weeks
 


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 7/4/2010 5:36 PM (GMT -7)   
Ivy6 -- the Cape is really beautiful...especially when you find the quiet spots. I grew up spending summers there so it just doesn't feel "summer" to me til I get there.

I spent a whole day on the beach and two great evenings with friends. Now my son is off with his dad on the Esplanade in Boston and I'm cozy at home watching the Boston Pops concert on TV.

Happy 4th
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 7/4/2010 6:16 PM (GMT -7)   
Jealous jealous jealous jealous jealous.

How long do you spend there? What sorts of things do you do? (PLEASE give me a virtual holiday: it's the middle of winter here and I'm cold).
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/4/2010 10:12 PM (GMT -7)   
Hope you all had a wonderful 4th!!!!!
we hit the lake for a few hours and the sun did me in!
got home, ate and took a nice long nap!
then watched some fireworks on tv bc we were all too tired to head out again!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


huckleberry
Regular Member


Date Joined Sep 2007
Total Posts : 317
   Posted 7/5/2010 3:46 AM (GMT -7)   
Everybody's plans sounded nice. Hope some of you have today off from work, too. I do but am heading in for a few hours of "catch up" at my desk while nobody's around. (Still getting up insanely early -- on Pred -- so may as well.)

Ivy -- virtual trip to Cape....hmmmmm.

Well, I'll skip the part that involves days of fretting about exactly when to leave to avoid traffic...let's assume we've arrived calmly in under 2 hours from Boston :-) The most exciting part is going over "the bridge" -- one of two bridges that connects the Cape to the mainland. I go over the Sagamore. We always cheer when we cross over and somehow even though it's just highway on the other side, it instantly feels "vacation-y" once you've over.

(Long post warning)

My mother and sister both live on the Cape, near but not on the water. First thing we do is admire the garden, have wine and cheese and often, since I'm coming from the city and dying to see the water, I drive about 2 miles over to a small beach and take a long walk -- often with the sunset. There's a long dock that I love to walk on and see the fishing boats either unloading, or just docked there. There's something about those little clanging noises of the riggings against the masts (combined with the smell of salty air) that just makes stress melt away.

In the morning, I get up early and take my beach chair, umbrella, book and a thermos of coffee (if I'm good with CD) or tea (if I'm in a flare) over to a bigger beach with a big beautiful arc of shoreline and houses up on the dunes. I love to get there before 8. I usually start with a long walk along the water with my ankles in the water and then settle in for almost the whole day. At various points, family drops by to join me, but sometimes I'm alone, which I also love. I like to stay ALL DAY. I never get bored. If it's high tide (my favorite) I always, always, always go swimming - even if it's cold. I love the salt water, floating,...all of it. If it's low tide, I walk way out on the sand bar. My kids are big now, so we don't collect minnows and hermit crabs anymore but I still pick up pretty shells, and am always looking for heart shaped rocks.

I have a crazy thing I've done for years which is put on the big SPF sunscreen and then top it with the good smelling coconut oil of my youth -- Hawaiian Tropic. Then, I feel protected but smell beach-y. By the end of the day after all the walks, swims and re-applications of sunscreen, I'm a deleriously happy sandy, salty, oily mess.

In the late afternoon, back to the house for a shower (feels wonderful!) sometimes a nap. Either a barbecue for dinner or sometimes out to dinner at a seafood place. Once in a while, an outdoor concert or play at the local playhouse -- mostly though I'm home for a movie or going to bed early.

Next day, I either head back to the beach (depends on weather) or I go shopping. Lots of little places tucked in along a tree-lined historic road called 6A. Shops and art galleries interspersed with shingled gray Cape Cod houses with beautiful gardens. I have a few favorite places that I like to check out and I've been collecting paintings from the Cape for years. Or, I head to one of the towns that has a walkable downtown -- Provincetown (where my mom lived for more than 25 years and I worked summers as a teen), Chatham. Browsing, shopping, lunch. You could spend a whole week in each.

Other days, sometimes a visit to the flea market with the kids -- or a bike ride along the dunes or on the Cape Cod Rail trail, which goes for miles and connects to the National Seashore. I'm a wimp though and hate being super hot so I rarely do the bike trail in the summer. If I'm staying longer, a ferry ride over to Martha's Vineyard is fun. Somehow, I've never been to Nantucket even though I've been spending summers on the Cape for over 40 years.

I tend to stay away from the big touristy spots and traffic-y drive times like Fridays and Sundays. It's mostly just reading, relaxing, enjoying the beach and cozy small villages.

Ivy -- hope you can get there some day -- or that you have a wonderful relaxing vacation in another fabulous place!
Official dx September 2007.
currently flaring (June 2010) with colitis
Medications: Pentasa, Omeprazole, Prednisone, 6MP
History of hypothyroid (dx 2004, take Levoxyl), and gall bladder surgery (1997).
47 years old; single mom to three wonderful kids, ages 12 to 18.

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